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Doctor insights on: Overlapping Eds Symptoms

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Can you explain why there are crossovers (overlaps) among the different types of eds?

Can you explain why there are crossovers (overlaps) among the different types of eds?

Complicated : There are a number of types of eds and they are slightly diiferent diseases based on their individual genetic abnormalities. ...Read more

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Dr. Lois Freisleben-Cook
344 doctors shared insights

Ehlers Danlos Syndrome (Definition)

Ehlers-Danlos Syndrome is a medical condition characterized by hypermobile joints, very elastic or stretchy skin that bruises easily, and other abnormalities. It is caused by defects in collagen, an important structural protein that is responsible for the strength of many different types of tissue including skin, ...Read more


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Does age increase the severity of eds symptoms/problems?

Does age increase the severity of eds symptoms/problems?

Yes: Ed becomes more common with increasing age. However, other factors play a role and are certainly more controllable. Not smoking, and controlling blood sugars and blood pressure will help symptoms of ed. Also, exercising will increase blood flow and decrease symptoms of ed. ...Read more

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How long can someone with eds live after symptoms begin?

How long can someone with eds live after symptoms begin?

It depends: There are several subsets of eds as well as a condition known as benign hyper mobility syndrome. Most individuals with eds have relatively mild disease and can expect a normal life span. ...Read more

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I have ehlers danlos hypermobility. I have almost every symtoms that is listed for hypermobility. What arethe chances of having vascular eds symptoms?

I have ehlers danlos hypermobility. I have almost every symtoms that is listed for hypermobility. What arethe chances of having vascular eds symptoms?

Possible: Certainly possible.Easy to determine.See your doctor for proper evaluation and diagnosis.Particularly if you have excessive fatigue, shortness of breath, chest pain or exercise intolerance. ...Read more

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Is there any relations between my carcinoid tumor and my EDS and SLE and if I have symptoms can I expect another tumor?Thanks

Is there any relations between my carcinoid tumor and my EDS and SLE and if I have symptoms can I expect another tumor?Thanks

No association: EDS and Lupus are unassociated with carcinoid. The carcinoid syndrome is usually due to endocrinologically active malignant tumors that develop from neuroendocrine cells (mostly in the ileum) and produce serotonin. It can, however, occur from tumors elsewhere in the GI tract (particularly the appendix and rectum), pancreas, bronchi, The primary has to be removed to prevent metastasis. ...Read more

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If a CD19 antigen result of 9% in lymphocyte phenotyping is above average, what can be the cause? Have many symptoms: EDS, PH, high ANA, pain, cough

If a CD19 antigen result of 9% in lymphocyte phenotyping is above average, what can be the cause? Have many symptoms: EDS, PH, high ANA, pain, cough

My: understanding is that the mutation, which would cause low levels, is associated with lymphoma. Also, thus far animal (mouse) studies identify it as a possible target for autoimmune diseases like bullous pemphigoid. No association to Enlhers. ...Read more

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Can weak ab wall causing insides to rise during strain with ultrasound but no sign of hernias, be just another symptom/result from eds?

Can weak ab wall causing insides to rise during strain with ultrasound but no sign of hernias, be just another symptom/result from eds?

Hmmmm: Sounds like you have a condition called diastasis recti, which is the separation of your abd muscle laterally causing a bulging in the middle. No hernia though. ...Read more

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Pulmonary hypertension in echo, so heart catheterization next. With EDS (weaker collagen)&many vascular symptoms, is the test OK for me? Other option?

Pulmonary hypertension in echo, so heart catheterization next. With EDS (weaker collagen)&many vascular symptoms, is the test OK for me? Other option?

It is the best tests: EDS can cause pulmonary hypertension, a condition that usually is difficult to diagnose with the physical exam only. Most cardiologist would start with non-invasive testing like an echocardiogram but to confirm such diagnosis right heart catheterization is still the best ( invasive) diagnostic procedure. Follow up with your cardiologist because there is treatment for pulmonary HTN. ...Read more

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How do you get eds?

How do you get eds?

Genetic!: You are born with it. It (several variants) are genetically acquired and in the patient's dna. It not acquired! treatments are symptomatic. There are no cures. ...Read more

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What are the types of eds?

What are the types of eds?

EDS types : Ehler danlos syndrome is a disorder of elastic fibers -----genetically based and many sub types have been identified. ...Read more

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