Doctor insights on:
Over The Counter Treatment For Von Willebrand
Do you know any person with von willebrand disease and factor five disorder both? I have both and I am told I can have no treatments?
Bleeding disorder: This is relatively common hereditary bleeding disorder, the bleeding episodes can be corrected transiently by infusion of fresh or fresh-frozen plasma or cryoprecipitate. ...Read more
Several options: The medicines for stopping or preventing bleeding for patients with von willebrand's disease include DDAVP (desmopressin injection, and stymate nasal spray), Amicar (epsilon aminocaproic acid), tranexamic acid, and von willebrand's factor/factor viii concentrates). Which one one should choose depends on the severity of disease and severity of bleeding. It should be decided by a specialist. ...Read moreSee 1 more doctor answer
What happens if my girlfriend has von willebrand disease and I don't what's the chances of our children getting it?
50% in most cases: An overwhelming majority of von Willebrand Disease (VWD) is dominant, meaning that if you carry one gene, you have VWD. Supposing that your girl friend has one VWD on one chromosone, and the other is normal, the chance of her passing that VWD gene to your offspring would be 50%. Most patients with VWD have type 1 disease which is fully compatible with normal life span. ...Read more
Can you tell me if my girlfriend has von willebrand disease and I don't what's the chances of our children getting it?
Do you know of any person that has von willebrand disease and factor five disorder? My dr tells me I am unique. And I can't be treated for either one.
Why?: I agree that there are probably others out there with the same combination of problems. And this should not preclude any necessary therapy. If you have bleeding due to your vwd, treatment can be provided without greatly increasing your risk for developing a clot. Conversely, many patients with fv leiden (what I think you mean) don't need to take blood thinners, so VWD shouldn't be a problem. ...Read moreSee 1 more doctor answer
Stimulaton test: Patients with type 1 VWD less vw factor than normal people. However, they store vwf normally in the cells that line their blood vessels. This can be released into the blood by certain drugs; one of these is ddavp (desmopressin). In a DDAVP (desmopressin) challenge the vwf level is measured, a dose of DDAVP (desmopressin) is given, and the level measured again to see if it goes up significantly. If so, DDAVP (desmopressin) can be used to control bleeding. ...Read more
It is possible, but: Depending on the severity of your disease, it is possible, but only in consultation with your hematologist. The severity of VWD is quite variable from patient to patient. If you really wanted to get a tattoo, you could pre-treat yourself with the appropriate medicine as if you were having an elective surgery, but you would have to pay for it out of pocket (i doubt insurance would cover it). ...Read moreSee 1 more doctor answer
No: Most blood centers say no, mostly because the risk for you donating (venipuncture) is not trivial and impossible for the blood center to assess at the time of donation. You could always donate your time as a volunteer at a blood drive, however! ...Read more
Ask hematologist: This is a decision that you should make with your hematologist. There is not a one-size-fits-all answer for this one. Vwd is a variable disorder with different levels of bleeding between different patients and subtypes of the disease. ...Read more
Yes: About 1% of humankind has at least mild vWF. If you're presently being managed on medication by a hematologist, get his/her thoughts. If it's not been a huge problem for you, and your physician has released you, then go ahead. VWF involves the blood itself and its platelets, while the tattoo involves the deep skin. ...Read more
Depends: Usually this desease does not effect the outcome of an abortion since the way the uterus stops bleeding is by contractions, not clotting. However, if there are complications that require further surgery, this could present a very difficult situation for the patient. Fortunately, abortion care is very safe and rarely results in any need for additional surgery. It is the safest sugery bar none. ...Read more