Doctor insights on:
Stats are limited: In one study: "Twenty-seven patients with neurosarcoidosis followed for at least 5 years" nobody died. http://www.neurology.org/content/57/5/927.short Another article: "Long-term clinical outcome of neurosarcoidosis has not been thoroughly evaluated. The low prevalence of the disease makes large, long-term follow-up studies difficult." ...Read more
Yes.: I don't think we are here to alarm anyone of their condition but rather to advise. Neurosarcoidosis is not be taken lightly and has to be treated with good understanding of outcome, side effects and what to expect. It is best you discuss it with your neurologist or your pmd. You have better rapport with them. ...Read more
Yes: Discuss with PMD......for needful evaluation.Get a more detailed answer ›
Wife has neurosarcoidosis and now her left arm and hand are swollen to 3 times their normal size and she has extreme pain. What to do for relief?
Gabapentin 3x day for neurosarcoidosis. No seizure. Does the doses have to be exactly 8hrs apart? Sometimes i want to go to bed early or sleep late.
I was diagnosed with neurosarcoidosis. I need a second opinion. One leg lost most sensation and the is weak. Bulging disk as well. Cauda equina?
Possible - but: I am presuming that there is biopsy evidence for the disease; if you have seen a pulmonologist, a neurologist, and/or a rheumatologist i would seek immediate treatment. Ucla and usc are both nearby hospitals replete with sub specialists.... See one asap; in the meanwhile i would not avoid treatment. ...Read moreSee 1 more doctor answer
I hv neurosarcoidosis & on remicade (infliximab) every 4 weeks for last 7 mths. Just noticed on wk 3 my hands, feet & knees swell. Will inform my doc. Is this norm?
Check it out : Good idea to inform your doc. Could be the medicine but other issues may need to be ruled out. ...Read more
Neurosarcoidosis. Having bad joint pain for few days. First time with this symptom. On 20mg prednisone. Is it the sarcoid or the steroids? Ty
Impossible to say: It is impossible to say with knowing your complete history and doing a thorough evaluation. Ask the doctors who care for you or see a rheumatologist. ...Read more
I was diagnosed with neurosarcoidosis after a CT scan. Also bronchioscope, no confirm. I believe cauda equina. How to test for this? 2 yrs with this.
2nd opinion time: Neurosarcoidosis is a complication of sarcoidosis. Sarcoidosis almost always begins with lung involvement. You said you had bronchoscopy. Did you have a chest ct scan to rule-out lung involvement? You should. For diagnosis of neurosarcoidosis a ct scan showing a lesion of the cauda equina is inadequate. You should at least have a spinal tap & probably a brain & spine MRI scans. Good luck. ...Read moreSee 1 more doctor answer
L am on steroid ihave gain 12kg in 3months what can I do to control on it now my body weight is121kg.Lam having sarcodasisin lungs &nurasarcodosis
Alternative drug?: May use a "steroid sparing drug" to decrease the need of steroid, in sarcoidosis of the nervous system Hydroxychloroquine (plaquenil) works best. Steroids make you gain mostly by increasing appetite and making you lazy and slugish, both can be helped , to a certain extent, by will power and vanity! ...Read more
Am I dying?
We all are: A 3-word question with no details... well, life is short on Earth, regardless of whether a person lives 3 days, 3000 days, or 30,000 days. It is not length of one's life that matters, but the quality of the life lived. The goal is not to live a long life, but to live a good life. Even if a person makes it all the way to age 82, that's only 30,000 days. ...Read more
I have cold?
I have cold?
Cold: Tips: sore throat – gargle with warm salt water (1/2 tsp salt in 8 oz of water). Get strep test/culture if very sore. Congestion – saline nose drops or netti pot. For anti-inflammatory effect & mobilizing mucus- homemade chicken noodle soup. Hydrate- lots of water/clear broth/ add honey & a small amt. Of lemon juice to chamomile tea.. Fever/ pain – Acetaminophen / nsaid’s rest! ...Read moreSee 1 more doctor answer
What is asp?
Am i dying ?
I don't know: I don't know, john. Technically, every person who is alive will die someday, yes. But unless you have been diagnosed with some untreatable illness, then no, you are not actively dying. If this is something you worry about a lot, mention it to one of your parents, a close adult friend, or a school counselor. A lot of people have these kinds of worries and you can get help to not worry so much. ...Read more