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Doctor insights on: Neurosarcoidosis

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What are the chances of surviving a bout with neurosarcoidosis?

What are the chances of surviving a bout with neurosarcoidosis?

Stats are limited: In one study: "Twenty-seven patients with neurosarcoidosis followed for at least 5 years" nobody died. http://www.neurology.org/content/57/5/927.short Another article: "Long-term clinical outcome of neurosarcoidosis has not been thoroughly evaluated. The low prevalence of the disease makes large, long-term follow-up studies difficult." ...Read more

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How serious is neurosarcoidosis? And how am i to be treated for having it?

How serious is neurosarcoidosis? And how am i to be treated for having it?

Yes.: I don't think we are here to alarm anyone of their condition but rather to advise. Neurosarcoidosis is not be taken lightly and has to be treated with good understanding of outcome, side effects and what to expect. It is best you discuss it with your neurologist or your pmd. You have better rapport with them. ...Read more

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Does a history of neurosarcoidosis cause a person to develope mental illness ?

Does a history of neurosarcoidosis cause a person to develope mental illness ?

Any illness that: Causes damage to the brain may involve what you would call "mental illness". And in some patients, just trying to deal with sarcoidosis can precipitate a major depressive episode. But the form of the "mental illness" would depend on where the brain is being damaged. ...Read more

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Wife has neurosarcoidosis and now her left arm and hand are swollen to 3 times their normal size and she has extreme pain. What to do for relief?

Wife has neurosarcoidosis and now her left arm and hand are swollen to 3 times their normal size and she has extreme pain.  What to do for relief?

Be seen: Certainly would need specific diagnosis concerning the severe arm swelling. Both venous occlusion and infection would be two primary concerns. It is only after making the diagnosis that the condition can be correctly treated. ...Read more

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I was diagnosed with neurosarcoidosis. I need a second opinion. One leg lost most sensation and the is weak. Bulging disk as well. Cauda equina?

I was diagnosed with neurosarcoidosis. I need a second opinion. One leg lost most sensation and the is weak. Bulging disk as well. Cauda equina?

Possible - but: I am presuming that there is biopsy evidence for the disease; if you have seen a pulmonologist, a neurologist, and/or a rheumatologist i would seek immediate treatment. Ucla and usc are both nearby hospitals replete with sub specialists.... See one asap; in the meanwhile i would not avoid treatment. ...Read more

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Neurosarcoidosis. Having bad joint pain for few days. First time with this symptom. On 20mg prednisone. Is it the sarcoid or the steroids? Ty

Neurosarcoidosis. Having bad joint pain for few days. First time with this symptom. On 20mg prednisone. Is it the sarcoid or the steroids? Ty

Impossible to say: It is impossible to say with knowing your complete history and doing a thorough evaluation. Ask the doctors who care for you or see a rheumatologist. ...Read more

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I was diagnosed with neurosarcoidosis after a CT scan. Also bronchioscope, no confirm. I believe cauda equina. How to test for this? 2 yrs with this.

I was diagnosed with neurosarcoidosis after a CT scan. Also bronchioscope, no confirm. I believe cauda equina. How to test for this? 2 yrs with this.

2nd opinion time: Neurosarcoidosis is a complication of sarcoidosis. Sarcoidosis almost always begins with lung involvement. You said you had bronchoscopy. Did you have a chest ct scan to rule-out lung involvement? You should. For diagnosis of neurosarcoidosis a ct scan showing a lesion of the cauda equina is inadequate. You should at least have a spinal tap & probably a brain & spine MRI scans. Good luck. ...Read more

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L am on steroid ihave gain 12kg in 3months what can I do to control on it now my body weight is121kg.Lam having sarcodasisin lungs &nurasarcodosis

L am on steroid ihave gain 12kg in 3months what can I do to control on it now my body weight is121kg.Lam having sarcodasisin lungs &nurasarcodosis

Alternative drug?: May use a "steroid sparing drug" to decrease the need of steroid, in sarcoidosis of the nervous system Hydroxychloroquine (plaquenil) works best. Steroids make you gain mostly by increasing appetite and making you lazy and slugish, both can be helped , to a certain extent, by will power and vanity! ...Read more

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Am I dying?

Am I dying?

We all are: A 3-word question with no details... well, life is short on Earth, regardless of whether a person lives 3 days, 3000 days, or 30,000 days. It is not length of one's life that matters, but the quality of the life lived. The goal is not to live a long life, but to live a good life. Even if a person makes it all the way to age 82, that's only 30,000 days. ...Read more

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I have cold?

I have cold?

Symptoms?: The most common symptoms of a cold are sneezing, running nose, congestion and scratchy throat. Additional symptoms can be coughing, headaches, mucus dripping down the back of the throat, loss of appetite and fever (in children). ...Read more

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I have cold?

I have cold?

Cold: Tips: sore throat – gargle with warm salt water (1/2 tsp salt in 8 oz of water). Get strep test/culture if very sore. Congestion – saline nose drops or netti pot. For anti-inflammatory effect & mobilizing mucus- homemade chicken noodle soup. Hydrate- lots of water/clear broth/ add honey & a small amt. Of lemon juice to chamomile tea.. Fever/ pain – Acetaminophen / nsaid’s rest! ...Read more

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What is asp?

What is asp?

In acupuncture an: Asp is an acupuncture semi-permanent needle. They are made in germany & come in stainless steel, gold, silver & titanium. They are used for auricular (ear) acupuncture. They are usually referred to as "asp's". ...Read more

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Pls help me?

Help: In order to assist you - you need to provide us with more information. Please re-ask and clarify the question that you need help with. Take care. ...Read more

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Am i dying ?

I don't know: I don't know, john. Technically, every person who is alive will die someday, yes. But unless you have been diagnosed with some untreatable illness, then no, you are not actively dying. If this is something you worry about a lot, mention it to one of your parents, a close adult friend, or a school counselor. A lot of people have these kinds of worries and you can get help to not worry so much. ...Read more