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Doctor insights on: Neuroendocrine Tumor In Children

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How long do people live after a neuroendocrine tumor has spread postop?

How long do people live after a neuroendocrine tumor has spread postop?

Too vague: Neuroendocrine tumors can be fatal in a short time span
depends on grade of cancer ...Read more

Neoplasms (Definition)

"tumor" literally translates as "mass", so even a fresh bruise could be called a "tumor". Doctors use the term "neoplasm" (tranlates literally as new growth) to describe tumors that are abnormal growths of cells. These may be benign or malignant; "malignant" = cancer. In everyday usage, we use "tumor" ...Read more


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If you've had one neuroendocrine tumor is it likely you will get another one somewhere else?

If you've had one neuroendocrine tumor is it likely you will get another one somewhere else?

Possible: Neuronendocrine tumors an occur as a part of some familial tumor syndromes.
multiple endocrine neoplasia type 1 and 2 (MEN1 and MEN 2), von Hippel-Lindau (VHL) disease, neurofibromatosis type 1
tuberous sclerosis etc. ...Read more

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I had a malignant pancreatc neuroendocrine tumor removed ten months ago, how likely is it that I will get another tumor and what are the signs?

I had a malignant pancreatc neuroendocrine tumor removed ten months ago, how likely is it that I will get another tumor and what are the signs?

May have no symptoms: If it was caught early and removed completely, you have a good chance of it never coming back. Nets can cause symptoms, or they can be silent, non-functional tumors. So the best way to improve your odds is to get a ct or MRI every 6 months to check for recurrence - which occurs most commonly in the liver. If it does come back, repeat surgery may be possible. ...Read more

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I have primary hyperparathyroidism. My lipase and amylasec ranges from borderline high to x 6 u.L. Since 2006. The pancreatic polypeptide was x 3 u.L. In 2013. The CT wasnormal. Could I have neuroendocrine tumor or men-1?

I have primary hyperparathyroidism. My lipase and amylasec ranges from borderline high to x 6 u.L. Since 2006. The pancreatic polypeptide was x 3 u.L. In 2013. The CT wasnormal. Could I have neuroendocrine tumor or men-1?

Not unlikely: Neuroendocrine tumors can be difficult to detect. If the symptoms persist or worsen, there are more sophisticated imaging modalities available to look for occult tumors, including gallium 68. If you have other family members who have been diagnosed with pancreatic or adrenal tumors and/or hyperparathyroidism, men1 would be possible. ...Read more

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What about neuroendocrine (islet cell tumors)?

What about neuroendocrine (islet cell tumors)?

Interesting tumor: Overally, neuroendocrine tumors are often capable of over-producing hormones that your body naturally makes. Islet cells are cells that are naturally present in the pancreas and produce a number of hormones, most notably insulin. Insulin helps you break down and digest sugars. Patients with an islet cell tumor can produce too much Insulin resulting in weight & gain and low blood sugars. ...Read more

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Are all pituitary tumors considered to be neuroendocrine in nature, and are craniopharyngiomas?

Are all pituitary tumors considered to be neuroendocrine in nature, and are craniopharyngiomas?

I would say not: Hi. No, I would say pituitary tumors aren't neuroendocrine (NE) tumors (nor are craniopharyngeomas). Generally the term "neuroendocrine" refers to nerve cells that secrete hormones. Examples would be hypothalamic neurons regulating the anterior pituitary, cells of the posterior pituitary, the adrenal medulla. A classic NE tumor is a carcinoid tumor; there are many examples, but not pit. Adenomas. ...Read more

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I was just told I had a neuroendocrine neoplasm tumor in my gallbladder. What can I do?

I was just told I had a neuroendocrine neoplasm tumor in my gallbladder. What can I do?

Referral: You should be seen by an oncologist, as well as an experienced hepatic surgeon. Multiple treatment options are available. ...Read more

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What to do if I'm a 27 years old and was just told I had a neuroendocrine neoplasm tumor in my gallbladder?

What to do if I'm a 27 years old and was just told I had a neuroendocrine neoplasm tumor in my gallbladder?

Resect widely: The neuroendocrine tumor in the GB is the same as in small bowel or in pancreas--the carcinoid tumor. It must be widely resected and chemo given as with the same tumor, small cell of the lung. ...Read more

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What to do if I'm a 27 years old and was just told I had a neuroendocrine neoplasm tumor in my gallbladder.?

What to do if I'm a 27 years old and was just told I had a neuroendocrine neoplasm tumor in my gallbladder.?

Total removal: Usually the neuroendocrine tumors like carcinoid of the small bowel are diagnosied after resection. If you had a GB removal and the tumor with liver margins have been removed, fine. If not an attempt at total resection is required. Chemo may be offered prophylactically if the disease was extensive enough. Well known individual had pancreatic neuroendocrine, which then spread to liver. ...Read more

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Can neuroendocrine tumors occur outside of the colon in setting of CT & Octreotide scan showing in cecum but colonoscopy shows nothing in this area?

Can neuroendocrine tumors occur outside of the colon in setting of CT & Octreotide scan showing in cecum but colonoscopy shows nothing in this area?

Tumors and HTN: 40 F asks: Can neuroendocrine tumors occur outside of the colon in setting of CT & Octreotide scan showing in cecum but colonoscopy shows nothing in this area? ANS: Yes but these diseases are very rare and variable recommend you see a team that specializes it in your area one of the best is in Houston at the big cancer center. ...Read more

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What can cause brain tumors in children?

What can cause brain tumors in children?

Brain tumors: In most cases of pediatric brain tumors the cause is not known. There are genetic studies being done that are starting to locate markers and mutations that can cause tumors of this type. There are also some rare inherited syndromes that have a higher incidence of brain tumors but these are rare. ...Read more

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What are the common symptoms of brain tumors in children?

What are the common symptoms of brain tumors in children?

Several: Vidual disturbance, headache, gait abnormslity, clumsiness, failure to meet milestones or regressio, alot depending on type and location. ...Read more

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Where can Wilms tumor be located in children?

Where can Wilms tumor be located in children?

Kidney: Wilms tumor is a tumor of the kidney. See this site for more info on this topic:
http://www.cancer.org/cancer/wilmstumor/detailedguide/wilms-tumor-what-is-wilms-tumor ...Read more

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If I have wilms tumor than will my children have this condition?

If I have wilms tumor than will my children have this condition?

Occasionally: Wilms tumor is a very uncommon, childhood tumor of the kidney. There are known cancer syndromes (such as beckwith-weidermann, denys-drash syndrome, pearlman syndrome), in which there are specific genetic alterations. However, if your children do not have these syndromes, it is most unlikely. ...Read more

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If I am caught with wilms tumor than how does it effects my chances be able to have children?

If I am caught with wilms tumor than how does it effects my chances be able to have children?

Unlikely to affect I: Although you will be getting chemo, it is unlikely that it will affect your ability to have children based on your age. ...Read more

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What is atypical teratoid rhabdoid tumor and what is the survival rate for children 3 and older?

What is atypical teratoid rhabdoid tumor and what is the survival rate for children 3 and older?

Malignantbrain tumor: Malignant brain tumor more commonly diagnosed in the childhood
usually localized in cerebellum so commonly children will have walking unsteadiness, headaches irritabilty
survival rate varies with age of child, amount of tumor left behind and metastases. Although survival is less than 15 % at 2 years for children less than 3. ...Read more

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My daughter was diagnosed with tuberous sclerosis complex. Will all such children get tumors?

My daughter was diagnosed with tuberous sclerosis complex. Will all such children get tumors?

Variable process: These kids get tubors, fleshy benign growths that can show up in a lot of places like the brain, heart, kidney etc. Thought they do not spread like cancer, they can interfere with normal organ function & trigger seizures. Ts can be very mild, I knew one mom who found out after college & chose to adopt rather than risk passing it on. Regular tests, ultrasound or ct can help avoid surprise complications. ...Read more

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Any ideas why most children have primary brain tumors and why do most adults have secondary brain tumors?

Any ideas why most children have primary brain tumors and why do most adults have secondary brain tumors?

Simply age: Cancer is very rare in children, and relatively common in adults. So children rarely have a "chance" to have a cancer elsewhere in the body which can spread to the brain, whereas adults have plenty of chances to acquire secondary brain tumors. ...Read more

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What are some types of brain tumor/cancer that's common in children-teens?

What are some types of brain tumor/cancer that's common in children-teens?

Brain tumor: Most common brain tumors in this age group are tumors of the posterior fossa which are medulloblastoma and cerebellar astrocytomas, also not uncommon are ependymomas. ...Read more

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What children are more likely to have childhood cancers/ brain tumor (brain cancer)?

What children are more likely to have childhood cancers/ brain tumor (brain cancer)?

Unlucky children: With very rare exceptions where a child has inherited a cancer predisposition gene, we do not understand what makes a child susceptible to developing a brain tumor. ...Read more