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Doctor insights on: Neuroblastoma Support Groups And Foundations

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How common is neuroblastoma?

How common is neuroblastoma?

Relatively common: Childhood cancer is rare. That being said, neuroblastoma makes up 8-10% of childhood cancer, and is the most common cancer in infants. About 700 children are diagnosed with neuroblastoma in the us each year. ...Read more

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Dr. Jeffrey Roth
311 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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How can we cure neuroblastoma?

How can we cure neuroblastoma?

Support new research: Depending on the risk group, we cure the majority of children with neuroblastoma using a combination of surgery, chemotherapy, radiation and stem cell transplant. However, there are a significant number of children with high-risk neuroblastoma that ultimately succumb to their disease. Immunotherapy, alk inhibitors, mibg therapy and others are being tested now. More targeted therapy is needed... ...Read more

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Can an adult have neuroblastoma?

Can an adult have neuroblastoma?

Rare; but yes...: Neuroblastoma is usually in children; and the most common cancer in infants...But unfortunately(and rarely) it can occur in adults, too. ...Read more

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What does occult neuroblastoma mean?

What does occult neuroblastoma mean?

Neuroblastoma: I have not heard of the term "occult" neuroblastoma - a patient either has a neuroblastoma or does not, the use of the term "occult" is not typically used here. ...Read more

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How do I know exactly what is neuroblastoma?

How do I know exactly what is neuroblastoma?

Neuroblastoma is ...: A malignant tumor of childhood that arises from cells of the neural crest (an embryologic precursor of the structures that make up the autonomic nervous system). Staging of neuroblastoma is complex. Age, stage and molecular features determine treatment, which varies widely from observation to tandem autologous stem cell transplant. Your pediatric oncologist can guide you more specifically. ...Read more

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What is the definition or description of: Neuroblastoma?

What is the definition or description of: Neuroblastoma?

Neuroblastoma: Neuroblastoma originate from neural crest cells that normally give rise to the adrenal medulla and sympathetic ganglia ,,they are believed to be congenital in origin ,and most common malignant tumors in infancy. ...Read more

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Can teens get neuroblastoma?

Can teens get neuroblastoma?

Unfortunately: It is typically seen in young children, but it can occur in teenagers & adults. ...Read more

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What's stage 4 neuroblastoma?

Childhood cancer: Neuroblastoma is a cancer that occurs in children typically. Stage 4 means that it has spread from its point of origination to other areas. The spread is typically to bones and bone marrow. Stage 4 requires very different treatments than does lesser stages. ...Read more

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What is the survival rate of neuroblastoma?

58: Overall survival rate is 58%; but it varies with stage of disease. Stage 1 about 100%; stage 2- 75%; stage 3- 43%; stage 4-15%; stage 4s 70-80%. ...Read more

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What are the various stages of neuroblastoma?

4 stages: Stage 1: there is only one tumor, stage 2a: the tumor is not easily removed, but the disease is confined to one side of the body, all lymph nodes still remain free from the disease. 2b: the lymph nodes on the opposite side of the body are not found to show signs of the disease, but same side is affected, stage 3: the tumor has spread so that it can be found on both sides of the body. Stage 4:advac. ...Read more

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Do you have to have a biopsy to diagnose neuroblastoma?

Do you have to have a biopsy to diagnose neuroblastoma?

Usually: The diagnosis is usually suspected by age of patient, symptoms and imaging results. However it is generally confirmed by a pathologist who looks at the biopsied tissues under a microscope. Neuroblastoma tumors have a specific look under the microscope and are often described as small, blue and round cells. ...Read more

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My daughter has neuroblastoma. What is it in a nutshell?

My daughter has neuroblastoma. What is it in a nutshell?

Nervous system tumor: Neuroblastoma is a tumor that starts in nervous system cells, usually from the sympathetic nervous system. The most common site is in the abdomen often starting in the adrenal gland. It is a cancer of children. Its prognosis is variable with some resolving spontaneously and others very aggressive. It is treated with surgery and/or chemotherapy. Younger children do better. ...Read more

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What is the surgical process for removing neuroblastoma ?

It depends: On the location of the tumor. Most neuroblastoma cases occur in the abdomen. This surgery is often technically challenging because you have to "peel" the tumor off of the normal structures that it's next to. Tumors located in other parts of the body may be easier to remove. Often, people will receive some chemotherapy for weeks before surgery to help shrink the tumor and make the surgery easier. ...Read more

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What exactly is the surgical process to remove neuroblastoma?

Depends on status: Neuroblastoma is usually malignant and matastizes. Sujrgeryh depends on what is found by studying the patient. ...Read more

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What is the surgical process like for removing neuroblastoma ?

What is the surgical process like for removing neuroblastoma ?

Depends: A lot depends on the location. Neuroblastoma can occur in the neck, thorax, and/or abdomen. Surgery is necessary to remove or biopsy the mass depending upon its size and involvement of other structures. Once confirmed, then chemotherapy may be required even if completely removed. Prognosis depends upon age of patient and histology. ...Read more

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Is it bad luck or bad genes that made me develop neuroblastoma?

Is it bad luck or bad genes that made me develop neuroblastoma?

Bad luck: Neuroblastoma is sporadic and not genetic or hereditary. There are genes associated with it, but is usually a chance miss combination of the chromosomes as the fetus is formed. There are only about 450-500 cases a year in the U.S. ...Read more

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In the diagnosis for neuroblastoma, why should a tissue sample be taken?

Staging: Beyond confirming the diagnosis, tissue is needed for neuroblastoma staging which then determines the therapy that will be recommended. You need to know if the tumor has "favorable" or " not favorable" appearance under the microscope as well as if certain genetic changes are present in the tumor tissue (myc amplification and others) to fully stage the tumor and recommend appropriate therapy. ...Read more

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Is i-131 mibg approved by fda for neuroblastoma?

No.: It seems to have proven efficacy. Fda approval is difficult to obtain, and is not necessary for access to this treatment. There will likely be more progress toward fda approval when there is more consistency in the timing, dosing and other treatments. But this treatment is readily available in several large pediatric centers, regardless of the lack of fda approval. ...Read more

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What are the treatments for recurrent neuroblastoma?

Depends: Depending on the patient and extent of disease, treatment options may include surgery, chemo, radiation, immunotherapy, and stem cell transplant. ...Read more

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Neuroblastoma vs neuroectodermal tumour, what is the difference?

See below: Neuroblastoma is a tumor of the adrenal gland that occurs in children. It has a high cure rate. Neuroectodermal tumors are a group of different tumors affecting the nervous system. See this site for more info. http://en.wikipedia.org/wiki/neuroectodermal_tumor. ...Read more

Dr. Troy Reyna
554 doctors shared insights

Neuroblastoma (Definition)

A type of cancer that forms in certain types of nerve tissue. It most frequently starts from one ...Read more