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Doctor insights on: Narcolepsy Support Groups

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Dr. Michelle Zetoony
274 doctors shared insights

Narcolepsy (Definition)

Narcolepsy is a condition characterized by extreme sleepiness every few hours during the day and frequent, unexpected sleep attacks. This sleep disorder is believed to be caused by a decrease in a protein in the brain. There is no cure for narcolepsy, but its ...Read more


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When I don't get enough sleep I have symptoms. Could it be narcolepsy?

When I don't get enough sleep I have symptoms. Could it be narcolepsy?

Probably not: Inadequate sleep can cause lots of symptoms: fatigue, irritability, headaches, memory and attention problems, increased accidents, etc. The symptoms resolve with adequate sleep. Narcolepsy is a chronic medical condition which is associated with excessive daytime sleepiness, sleep paralysis, vivid dreams, and sudden drop attacks associated with strong emotion. The epworth sleepiness scale can help. ...Read more

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I fall down fully conscious when I am excited. It looks like cataplexy, but i don't have other narcolepsy symptoms. Can it be cataplexy without n.?

Maybe, but: This needs further evaluation, as you may have cataplexy, but you may possess, an atonic seizure disorder, provoked by emotional events, or you could instead have paroxysmal kinesiogenic choreoathetosis, which is quite rare. Lastly, unlikely, but maybe basilar migraine. This would benefit from careful neurological evaluation. ...Read more

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Have narcolepsy & take provigil 1ce @730am for last 3 weeks. I didn't take over weekend. Took Mon am & haven't slept since. Prob w/ med or condition?

Trouble sleeping: Perhaps the medicine is too strong if you have narcolepsy and you have not slept in three days. What does 1ce mean? Normally provigil is a weak-acting medicine for narcolepsy. Be certain that a special day-time sleep study was used to make the diagnosis. You may find the medicine is too strong because the diagnosis is incorrect. Just a thought. ...Read more

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Since I don't have narcolepsy and I my friends don't have it either, I don't understand their struggle. If that means NEVER insomnia, I would LIKE it!

Since I don't have narcolepsy and I my friends don't have it either, I don't understand their struggle. If that means NEVER insomnia, I would LIKE it!

Can have insomnia &: People with narcolepsy often have insomnia with trouble sleeping at nite while being excessively sleepy during the day with trouble focusing, poor memory and depression. They can suddenly uncontrollably fall asleep during the day, esp. when experiencing strong emotions.Trust me, you would not like having narcolepsy! See http://www.nhlbi.nih.gov/health/health-topics/topics/nar/signs.html for more. ...Read more

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Funny how a diagnosis doesn't mean much till you have it. What is narcolepsy?

Funny how a diagnosis doesn't mean much till you have it. What is narcolepsy?

Chronic condition: Narcolepsy is a chronic medical condition caused by the loss of a chemical in the brain (orexin/hypocretin). The symptoms include excessive daytime sleepiness, vivid dreams, sleep paralysis, and sometimes the brief loss of muscle tone (cataplexy). A sleep study can make the diagnosis. See your doctor if concerned as there are treatments. www.wakeupnarcolepsy.org is a good source of information. ...Read more

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I have narcolepsy and sometimes i answer questions while im in some type of sleep and don't remember it or vaguely remember also wake up hot. Cause?

I have narcolepsy and sometimes i answer questions while im in some type of sleep and don't remember it or vaguely remember also wake up hot. Cause?

These are normal: Symptoms in narcolepsy.Nighttime wakefulness – if you suffer from narcolepsy, you may have periods of wakefulness at night with hot flashes, elevated heart rate, and sometimes intense alertness. Automatic behavior means that you continues to function (talking, putting things away, etc.) during sleep episodes, but awakens with no memory of performing such activities. Wikipedia and helpguide.Org. Best wishes. ...Read more

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What can I use for narcolepsy if I don't have a doctor?

What can I use for narcolepsy if I don't have a doctor?

Behavior: Avoid slep deprivation. This can bring on sleep attacks. Short properly timed naps, generally 5-15 minutes but no longer throughout the day. Appropriate use of caffeine. Avoid sedatives even alcohol. Do not drive. ...Read more

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What can be done for narcolepsy?

What can be done for narcolepsy?

A lot: There are powerful medications available to make to symptoms of narcolepsy tolerable. A sleep specialist can help you. We hope in the near future to have hypocretin modifying medications available. Trials are currently underway. Ultimately, stem cell therapy may be the cure for the disease. ...Read more

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What do you recommend for narcolepsy?

See your doctor: Narcolepsy is a chronic disorder which results in excessive daytime sleepiness, vivid dreams, sleep paralysis, and poor sleep. It occurs in 1 in 2, 000 people. If you think you have narcolepsy, see your doctor. You may need a referral to a sleep center to have tests performed. These tests would distinguish between narcolepsy and other sleep problems. ...Read more

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Dr. Jeffrey Roth
310 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more