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I have myelofibrosis and complication of hardening of connective tissues. Is there a treatment for this complication ?
Maybe.: Myelofibrosis is a unusual disease of blood and bone marrow where the marrow is replaced by what looks like scar tissue. This results in bone marrow cells moving to the liver and spleen, those organs enlarge and become hard. There is one drug, jakafi, (ruxolitinib) fda approved to shrink the spleen. There are other drugs like it in trial. Only cure is bone marrow transplant, but there are significant risks. ...Read more
Unknown: The known forms of bone marrow cancer do not cause myelofibrosis Rather Myelofibrosis is a rare form of cancer of the bone marrow itself where the marrow is replaced by scar tissue and is not able to make healthy blood cells. It is considered to be a form of chronic leukemia and represent a group of blood disorders called myeloproliferative disorders . ...Read more
I've been diagnosed with myelofibrosis after many years looking for a cause to my poor health. Will i ever be cured? Is it a cancer, i've read both.
My haemotologist told me I have around 5 years before I die from myelofibrosis. What can I expect? Am already in wheelchair as I fafaint when walking.
None of us truly: knows when we will die but you have some information from your doc. Many will die before you so please make the very best to the time you have. Try to use your suffering to help others somehow, perhaps on line. Peace and good health. ...Read more
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