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My Child Has Neurofibromatosis What Is The Best Way To Explain It To The Other Kids
Nervecell overgrowth: Neurofibromatosis is inherited problem with varying degrees of involvement from mild to severe. Neurofibroma is benign tumor that originates from the nerve cells. This tumor usually arise from nerves in the skin or jut under the skin.Type 1 usually appears in children with brown flat skin spots, freckling in armpits, and soft tumors under the skin. Other rarer types involve more brain tumors. ...Read moreSee 2 more doctor answers
Doctors think my child has neurofibromatosis. Right now...It looks like a mild form, but what can I expect in the future?
Variable: I do not know age of child. Nf is very variable in expression and progression. Nf1 can affect the skin(neurofibromas, cafe au lait spots) , eyes( gliomas), bones( scoliosis and pseudarthrosis)nerves with neurofibromas, and a person's general constitution (adhd and mental retardation). The more severe cases are usually detected earlier in life. Nf2 includes ependymomas, meningiomas, acoustic neuromas. ...Read moreSee 1 more doctor answer
Unfortunately, many.: Neurofibromatosis (nf) is a progressive, lifelong condition that is associated with growths in the brain, spine, eye area, heart, skin, &/or bone, as well as lung & hearing problems. A child with nf requires regular follow up with a pediatrician and multiple subspecialists to address any complications from these growths. Medication and even surgery can be required, as can educational support. ...Read moreSee 1 more doctor answer
Medical followup +: Regular medical checkups should be done. If you have neurologic abnormalities, get periodic examinations. Keep a positive attitude. Stay as active as you can. Think about contacting others with your problem, such as a neurofibromatosis support group (check online). ...Read moreSee 1 more doctor answer
Number and size: Symptoms of nf1 may be seen at birth and may include light brown sports, six or more measuring 5 mm in greatest diameter in prepubertal individuals and over 15 mm in greatest diameter in postpubertal individuals.Two or more growths on the iris of the eye, a tumor of optic nerve, , development of two or more subcut. Nodules, neurofibromas and bone abnormalities of tibia, skull, and spine. ...Read moreSee 1 more doctor answer
Okay but what if i'm the only one in my family and family's background to have it mines a mild case of neurofibermitosis would my child's be worse?
Cannot predict: Scientists don't know exactly why symptoms vary so much, even among people from the same family. Genetics has a lot to do with it and likely that each patient's unique genetic makeup influences the severity of his or her symptoms. Even in family with known nf1 can not predict severity of symptoms in family members. In about half of all cases, a person inherits the mutated gene from a parent. ...Read moreSee 1 more doctor answer
Nerve ; brain tumors: Neurofibromatosis, inherited problem, with varying degrees of involvement from mild to severe. Neurofibroma is benign tumor that originates from the nerve cells.Tumors usually arise from nerves in the skin or jut under the skin.Type 1 usually appears in children with brown flat skin spots, freckling in armpits, and soft tumors under the skin and sometimes bone deformity.Type 2 usually brain tumors. ...Read more
Congenital condition: Neurofibromatosis is an autosomal dominant genetic disease, meaning if one of your parents has the disease you have a 50% chance of inheriting the disease. There are also instances of spontaneous mutation in about half of cases where an individual has the disease but it is not seen in family members. Either way, you are born with the condition, but may not see symptoms until later. ...Read moreSee 1 more doctor answer
Long history: von Recklinghausen's (NF1) has pictorial history, dating back to thirteenth century.In 1768, Akenside published a scientifically-based description of NF1, recognizing that scholars such as Parè and Aldrovandi, in fact suffered from a disorder of the nerves.Neuromas of NF1 were first detailed by Smith in 1849, but Frederick von Recklinghausen is credited with its discovery and coined the name. ...Read more
Neurofibromatosis: Neurofibromatosis or nf is an inherited disorder or one that occur spontaneously in a patient. It is a disorder that involves the nerves, structures that carry information from the brain to outlying parts of our bodies. In nf there are tumors, which in most cases are benign that arise from these nerves. The disease is extremely variable in how it affects a patient. ...Read moreSee 1 more doctor answer
Many signs: Physician with physical exam can detect many signs of nf.Symptoms of nf1, most common form may be seen at birth and may include light brown spots on the skin ("cafe-au-lait" spots), two or more growths on the iris of the eye, a tumor of optic nerve, a larger than normal head circumference, development of subcutaneous nodules or neurofibromas, abnormal spine, tibia, or other bone. ...Read moreSee 1 more doctor answer
Many manifestations: Commonly nf gradually appears with development of brown flat spots and soft nodules under the skin. The brown (café-au-lai) spots are the main symptom of neurofibromatosis. Freckling of armpits, neurofibromas orsubcutaneous bumps , which increase in number with age.. Lisch nodules (hamartomas of iris), gliomas of the optic nerve, skeletal dysplasias with limb abnormalities and scoliosis. ...Read moreSee 1 more doctor answer
There are 2 froms.: Nf-1 is characterized by tumors on small nerves under the skin. The worst form of this was depicted in a movie called the "elephant man". Tumors on spinal nerves can cause numness and weakness of certain arm or leg muscles. Nf-2 is characterized by brain tumors. The most common form is a tumor on both hearing nerves. Hearing loss, dizzyness, and ringing in the ear are common symptoms of nf-2. ...Read moreSee 1 more doctor answer
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