Doctor insights on:
Ms Alternative Therapies
Everyone different: No ms pt is similar to another. One drug does not fit all. That said, it is now felt, based on current knowledge, that in the first 1-5 yrs, it is best to start on the most potent meds available if it is safe. The older meds, such as avonex, betaseron, copaxone, are starting to be used less, and newer agents such as Gilenya and tysabri, (natalizumab) and perhaps bg-12 will be used more often. ...Read moreSee 1 more doctor answer
No therapy for MS is helping me. Currently in Tecfidera for 5 months and each day is worse. Should I stop it or it may become better in future? Thanks
Talk with Dr. but...: I'm not comfortable telling you to stop but suggest you ask the prescribing Dr. Most people have a 50% reduction in relapses but no drug works well for everyone and your feeling worse each day is concerning- see https://www.mstrust.org.uk/a-z/tecfidera However, please know that a high percentage of those diagnosed with MS have Lyme disease and treating Lyme may help more than MS drugs.See comment: ...Read more
What percentage of ppl diagnosed with mono eventually develop lymphoma and MS. Anything to prevent it? Interferon therapy ? Help! Worried!
MS not active.Doing physical therapy 5x a week.Still muscles tight.Muscle relaxers I've taken not working. What or where or who should I see? test neg
Neurology : Even if the MS is not active you may have residual musculoskeletal changes that can effect your status. You can ask your physician, see a neurologist and even a rheumatologist as there are a lot of things that need to be considered in your evaluation. ...Read more
When Stem Cell Transplant Therapy will be used to cure or Improve MS patients? Why every cure took so long to use for patients? Please find the cure.
Be careful: This is being promoted to desperate people. It is very expensive and if it has any benefit, it's not obvious. The theoretical considerations these folks have offered don't square that well with what I know about the disease. More generally, progress in therapy would proceed faster if the public accepted more risks in trials of new treatments -- but that's for the lawyers and ethicists. ...Read more
Stay tuned: Stay tuned! this field is changing rapidly. Whereas injectable medications are the first tier of therapy, we are entering an era of oral medications and infrequent infusion therapies. Choosing the right therapy from this more and more crowded field of contenders will only get more complex. An MS specialist can help guide the discussion so that individuals can make the best informed choice. ...Read moreSee 3 more doctor answers
Numerous: The treatments are numerous! they all have side effects to consider, but at the end of the day, the goal is to slow down the disease process. Some are daily injections, every other day injections, once per week injections, etc. About three years ago, the fda approved the first "pill", now there are three, probably more to come. A neurologist should have all informational material in office. ...Read moreSee 2 more doctor answers
Suggestions: Most MS drugs do have potential for fetal malformations, and are thus "teratogenic" risks. Copaxone seems safest, and Aubagio and Gilenya (fingolimod) may be riskiest. But I would tend to stop any of the MS drugs prior to pregnancy and would NOT restart until after birth, unless breast feeding desired, which would delay restarting med. ...Read moreSee 2 more doctor answers
Can people over 70 get ms? I seem to have many symptoms but wonder if testing is futile if there is no treatment for my age.
Interesting question: You see, the incidence of MS is increasing in Colorado and other states, and am starting to see patients presenting with MS in their 50's and 60's. However, at your age, more likely you have vascular, or peripheral nerve issues causing your problems. Although research in MS excludes patients who are senior citizens, if you were to have established MS, could still be treated. Neurology helpful. ...Read moreSee 1 more doctor answer
About ms. I've heard that that patients using pill treatment didn't have good results and got worse in compare with injection treatment. Your opinion.
WHAT??: Where did you hear this?? Two of the oral meds, Gilenya (fingolimod) and Tecfidera, are both far more potent than any of the interferons, and you would do far better over a period of time by taking the most potent medication fitting your needs. Suggest you discuss these issues with your neurologist, and assess whether your current medication is best for you. ...Read moreSee 2 more doctor answers
As all the medicines used in the treatment of MS are too expensive. is there any support for the patients not covered under insurance, living outside?
Yes: This is a monoclonal antibody, infused once monthly, and is the currently most potent medication on the market for MS. In several cases, a deadly infection called PML has occurred with pts taking this medication, but blood tests can predict risk, and if positive can prompt the discontinuation of Tysabri (natalizumab).. Drug can be used early or late, but is approved for first line. ...Read moreSee 2 more doctor answers
Worthless: Every few mos., a new miraculous cure is promised by entrepreneurial "quick buck promoters". Have included an antihistamine/caffeine mix, bee stings, a variety of surgeries, specially formulated vitamins and designer diets, amongst many. Unfortunately, only vitamin d and low fat low salt diets have any potential, and dolphin oil is of no value. Best you take a potent med (gilenya, tysabri). ...Read more
Not necessarily: We have three oral agents, each as potent, or more potent, than the injectables, but each has it's own risk and adverse effect profiles. The two most potent meds on the market are tysabri, (natalizumab) followed by gilenya. Tysabri (natalizumab) is a once monthly infusion, and gilenya, oral once daily. ...Read more
Not necessarily: Although historically self injections were employed, now we have three oral agents and one monthly infusion. Various pts require different approaches, but the injectables are rapidly being phased out due to convenience, and efficacy of newer oral agents. ...Read more
Depends on the place: One limitation is customs. If you mean can they get MS drugs sent to them- that would depend on the country's regulations. Some people leave their country for reasons like this. Some people have MS treatment once a day every month, people in this situation could travel perhaps Another limitation of treatment is cost, and whether the cost would be borne by the host country or not. ...Read moreSee 1 more doctor answer
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