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Doctor insights on: Mother Carcinoid Syndrome

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My mother has been diagnosed with carcinoid syndrome, is it a type of cancer.?

My mother has been diagnosed with carcinoid syndrome, is it a type of cancer.?

Carcinoid syndrome: Carcinoid syndrome is cluster of symptoms that can include-chronic flushing and/or diarrhea/wheezings which is the result of secretion of serotonin and other vasoactive substances into the systemic circulation. The carcinoid syndrome is primarily associated with metastatic carcinoid tumors usually from the midgut - to the liver. Carcinoid is a type of cancer- neuroendocrine tumor. ...Read more

Dr. Murthy Andavolu
131 Doctors shared insights

Carcinoid (Definition)

Carcinoid refers to neuroendocrine tumors originating in gastrointestinal (GI) tract, lungs and appendix. They are usually indolent developing over many years. Aggressive, fast-growing forms such SCLC known as Oat Cell Ca of lung represents neuroendocrine carcinoma that exhibits rapid growth and early spread to distant sites. They are sensitive ...Read more


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My mother has been diagnosed with carcinoid syndrome. Is that a type of cancer?

My mother has been diagnosed with carcinoid syndrome. Is that a type of cancer?

Yes: Carcinoid syndrome is a series of complaints noted by patients with carcinoid of the GI tract secondary to the production of serotonin. It is characterized by diarrhea. Flushing of the skin or face, shortness of breath and wheezing. When the hormone reaches the liver it is detoxified so that to appear, liver mets secreting the hormone is necessary. Treatment requires resecting the primary tumor ...Read more

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What do you suggest if my mother has been diagnosed with carcinoid syndrome, a type of cancer.?

What do you suggest if my mother has been diagnosed with carcinoid syndrome, a type of cancer.?

Depends on the stage: She needs a comprehensive examination to understand the extent of the carcinoid, and where it originates from. In most situations, the carcinoid tumor is surgically removed. Sometimes the carcinoid is too advanced to be able to successfully remove. In these situations other therapies such as chemotherapy or ablation techniques are considered. Hormone symptoms can be controlled with medications. ...Read more

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What is the rate of survival for carcinoid syndrome?

Years: It is almost always in years, depending on the extent of disease. It is a wide range, anywhere from a year and a half to 12-15 years. ...Read more

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Any cure for carcinoid syndrome?

Yes, sometimes: Carcinoid syndrome is a symptom of a carcinoid tumor. If found early, carcinoid tumors can be removed surgically, and sometimes cured by surgery. If it cannot be cured, other treatments are given, both to slow the growth and to control the symptoms. ...Read more

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Could this carcinoid syndrome if any type of tumors?

Restate question: Hello huzefafn8. Can you restate your question? In the current form it is not understandable. ...Read more

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What is the treatment for carcinoid syndrome?

What is the treatment for carcinoid syndrome?

Multidisciplinary: Tratment is multidisciplinary between surgeons, medical oncologists and intervention radiologists often. The goal is symptom control with medications or surgery or tumor ablation. Medications such as octreotide control diarrhea, flushing, rash, etc. Tumor control is achieved by surgery or tumor ablation or regional chemothearpy. ...Read more

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What is carcinoid syndrome? Can a 24 hour urine test diagnosis it?

It is well known med: A well known medical condition, it is caused by carcinoid tumors, mostly found in the abdomen. It consists of repeated flushing of the skin which can turn you into red beet like skin especially on your face. Most people also have frequent diarrhea along with the episodes of flushing. These are slow growing tumors and can go on for many years. ...Read more

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How soon after eating blue cheese would you start to flush with carcinoid syndrome?

Hours: Carcinoid syndrome is symptoms associated with carcinoid tumors -- tumors of the small intestine, colon, appendix, and lungs. These tumors release too much serotonin, and other chemicals that cause the blood vessels to open (dilate) leading to flushing of the face, neck or chest.. Sometimes symptoms are brought on by exercise, red wine, blue cheese that contains tyramine. Symptoms occur in hours. ...Read more

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I get night time facial flushing and palpitations last few minutes to hour 61yrs thru menopause is it carcinoid syndrome?

I get night time facial flushing and palpitations last few minutes to hour 61yrs thru menopause is it carcinoid syndrome?

Very rare: Carcinoid syndrome is very rare. Flushing from perimenopausal state s is very common. Common things happen commonly. But if you want to rule out carcinoid, ask your doctor to collect a 24 hour urine for 5h-iaa. Then you can put your mind at ease. ...Read more

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What is carcinoid syndrome?

Episodes of Flushing: It is a complex of symptoms caused by carcinoid tumors once they have spread into the liver. Most patients experience hot flashes and diarrhea because the tumor produced excess of chemicals like serotonin. ...Read more

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I am being tested for carcinoid syndrome. How?

I am being tested for carcinoid syndrome. How?

Imaging too: If the blood and urine tests suggest carcinoid, a pet scan is the next best test to try to localize the tumor. Octreotide scanning does not have great resolution. There are newer imaging studies available at select centers. These scans use a higher resolution marker to better see small volume disease. This can help us understand extent of disease and symptoms better. ...Read more

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What to do if you possible have carcinoid syndrome?

What to do if you possible have carcinoid syndrome?

Confirm: First you have to confirm the diagnosis. If diagnosis made, then the extent of disease needs to be evaluated. If limited and no symptoms, there is nothing to do. If there is extensive disease, then either systemic therapy alone or along with surgical intervention. Hope this helps. ...Read more

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What is the definition or description of: carcinoid syndrome?

See below: Carcinoid sydrome includes flushing and diarrhea. It usually occurs due to the secretion of serotonin by a carcinoid tumor. ...Read more

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What is the survival rate for carcinoid syndrome?

What is the survival rate for carcinoid syndrome?

Depends on stage: Carcinoid syndrome is different than having a carcinoid tumor. The syndrome is caused by the tumor secreting a hormone (serotonin) which can cause flushing, heart palptitations, and diarrhea. Can get carcinoid tumors in the tracheobronchial tree and gastrointestinal ttact. Survival depends on whether the tumor can be removed, and whether it has read to other organs. ...Read more

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Can two 24 hr 5 hiaa urine tests elevated at 50 be a false positive for carcinoid syndrome if all diet?

Can two 24 hr 5 hiaa urine tests elevated at 50 be a false positive for carcinoid syndrome if all diet?

Could be: If you have symptoms suggestive of carcinoid repeat 24 hour urine collection and also serum chromogranin-a level. Make sure you are not on nexoum or similar for few days. ...Read more

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I am a carcinoid syndrome patient and I will be having surgery soon. I have heard that anesthetics can be a problem. Is this true?

Somatostatin: Patients with carcinoid syndrome from a tumor are at an increased risk of having carcinoid crisis during induction of anesthesia or manipulation of the tumor intraoperatively. Preoperative treatment with a somatostatin analog (e.g. Octreotide) should decrease this risk. This medication should also be readily available during surgery. ...Read more

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How much metastasis does there need to be to cause carcinoid syndrome from midgut carcinoid tumors?

How is the liver?: Typically patients do not develop carcinoid syndrome without having tumor metastases in the liver. So tell us about the results of your X-rays and scans of the chest, abdomen and your liver imaging studies. Then we can help you further. ...Read more

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Flushing, lightheadedness, abd pain, & tachycardia for over a month. If 5-hiaa is normal should further testing be done for carcinoid syndrome?

Flushing, lightheadedness, abd pain, & tachycardia for over a month. If 5-hiaa is normal should further testing be done for carcinoid syndrome?

Yest: I think one of the most important diagnostic consideration will be excluding pheochromocytoma another tumor responsible for a neuro endocrine response. The other thing that we need not to forget, we need to focus on the horses not on the zebras. We need to check thyroid function, drug use or abuse, medication review etc. ...Read more

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In its genealogy, how long does it usually take for carcinoid tumor to metastize to the liver and subsequent progression into carcinoid syndrome? Ty

Slow/unpredictable: Carcinoid tumors are commonly very slow growing tumors. It takes them 10 to 20 years (or longer) to run their course. We can not be exact in predicting when, or if, the carcinoid will spread to the liver. So relax and try not to make any predictions. Most of my patients have no problems for decades of relatively good life despite a tumor nodule or two siting some place in the belly. ...Read more

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What's the survival rate for someone with carcinoid syndrome?

Quite long usually: Of all the variants of neuroendocrine cancer, carcinoid is usually very slow growing and we measure life expectancy in years to decades of life. This does not however mean that they do not produce quality of life limiting symptoms for patients with carcinoid syndrome. The syndrome can lead to malabsorption and its associated nutritional consequences as well as valvular disease of the heart. ...Read more

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Possible carcinoid syndrome? I have some lumps in my skin.

Possible carcinoid syndrome? I have some lumps in my skin.

Highly doubtful.: There are so many causes of "lumps" -- carcinoid would be way down on the list, and you would have other symptoms, such as severe flushing. ...Read more

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Do doctors recommend that an octreoscan be done for carcinoid syndrome?

Yes: An octreotide scan or octreoscan is a type of scintigraphy used to define metastatic carcinoid lesions. Octreotide, is a drug similar to somatostatin. It is radiolabeled with indium-111 to seek out the carcinoid lesions and is then delivered intravenously. Radioactive octreotide attaches to tumor cells that have receptors for somatostatin and releases a radioactive signal that can be detected ...Read more

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I would like to speak to someone about getting tested for carcinoid syndrome.

I can help you!: Send us your medical history indicating where your Carcinoid tumor/s is located and if it is producing symptoms of Carcinoid syndrome which included Facial flashing and Diarrhea. The results of an imaging test such as a CT scan of the chest /Abdomen can help us decide if and when you may need active treatment. ...Read more

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How is mast cell activation syndrome diagnostically differentiated from carcinoid syndrome?

Totally different: The chemical mediators for these two conditions are totally different even though both can cause flushing. MCAS can be diagnosed by a blood test, carcinoid usually a urine test. ...Read more

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Does carcinoid syndrome/ carcinoid tumors always present with frequent diarrhea and constipation?

Does carcinoid syndrome/ carcinoid tumors always present with frequent diarrhea and constipation?

No: Sometimes the only symptom is flushing with exercise or sudden increases in blood pressure. Depends on the location of the tumor, how much serotonin it secretes and whether there is any spread into the liver. Constipation is actually unusual. ...Read more

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With carcinoid syndrome is flushing constant and is diarrhea and pain present. I have facial flushing +palpitations menopause 9 yrs ago?

It's episodic: Carcinoid syndrome causes episodic flushing, diarrhea, and palpitations. Other things can cause these symptoms and you mention one of them-- menopause. I notice you have asthma, and if you use albuterol inhalers they can definitely cause those symptoms. Steroids like Prednisone can also cause this, as can anxiety, dumping syndrome, and a host of other things. See a doc to get this sorted out! ...Read more

Dr. Jerome Zacks
95 Doctors shared insights

Carcinoid Syndrome (Definition)

Carcinoid sydrome includes flushing and diarrhea. It usually occurs due to the secretion of serotonin ...Read more


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