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Doctor insights on: Misdiagnosis Of Von Willebrand Disease

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What is von willebrand disease?

What is von willebrand disease?

Bleeding disorder: Vwd is the most common inherited bleeding disorder. Von wiilebrand factor is a clotting protein that helps stabilize clots by helping to bind platelets together and also helps carry factor viii in the blood. In vwd, vw factor is either decreased or does not function appropriately. Clots will form but they are not stable, can easily fall apart/ dissolve, and bleeding will then occur. ...Read more

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Dr. Joseph Torkildson
47 doctors shared insights

Von Willebrand (Definition)

Von Willebrand disease is caused by a deficiency of von Willebrand factor. Von Willebrand factor helps blood platelets clump together and stick to the blood vessel wall, which is necessary for normal blood clotting. There are several types ...Read more


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What are the symptoms of von willebrand disease?

What are the symptoms of von willebrand disease?

Bleeding: Von willebrand disease is a bleeding disorder. There are several types, but the most common type involves nosebleeds or heavy periods. It can also cause significant bleeding after a tooth extraction or tonsillectomy or other surgical procedure. ...Read more

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How do you get tested for von willebrand disease?

Blood tests: There are a few blood tests that help diagnose von willebrand disease. It is not always easy to diagnose. The levels that are measured can change with stress or illness, making it tough to know if you have the disease. Repeat testing is essential. ...Read more

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Is von willebrand disease considered risky for women?

Is von willebrand disease considered risky for women?

Not necessarily: "risky" is hard to define. Because menstrual bleeding is one of the more common problems women with VWD have, it is considered "riskier" for women than men. It is very possible to manage menstrual bleeding, as well as bleeding with childbirth very effectively, however. Once that happens, VWD is no riskier for women than it is for men. ...Read more

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What happens if my girlfriend has von willebrand disease and I don't what's the chances of our children getting it?

50% in most cases: an overwhelming majority of von Willebrand Disease (VWD) is dominant, meaning that if you carry one gene, you have VWD. Supposing that your girl friend has one VWD on one chromosone, and the other is normal, the chance of her passing that VWD gene to your offspring would be 50%. Most patients with VWD have type 1 disease which is fully compatible with normal life span. ...Read more

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Can you tell me if my girlfriend has von willebrand disease and i don't what's the chances of our children getting it?

More info needed: Some von Willebrand is transmitted genetically and some is acquired by a medication or other factor. What type does your girlfriend have? Her doctor can tell her and then a discussion of potential transmission to offspring can occur. ...Read more

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Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.

Why?: I agree that there are probably others out there with the same combination of problems. And this should not preclude any necessary therapy. If you have bleeding due to your vwd, treatment can be provided without greatly increasing your risk for developing a clot. Conversely, many patients with fv leiden (what i think you mean) don't need to take blood thinners, so VWD shouldn't be a problem. ...Read more

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As a child, doctors thought I might have von willebrand disease.

As a child, doctors thought I might have von willebrand disease.

Interesting.: Von willebrand disease is a difficult disease to diagnose. The most typical form is type 1, generating low levels of protein. However, your body can make this protein, and usually the treatment is a medication that "stresses" the body, causing release of von willebrand protein. I have known of several people who have low levels during childhood and the levels normalize later in life. ...Read more

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Is it safe for someone with von willebrand disease donate their organs when they die?

Is it safe for  someone with von willebrand disease donate their organs when they die?

Yes! : Von willebrand disease is a blood disorder; it has no adverse effect on your organs. Persons with von willebrand disease can certainly donate their organs if they so desire. ...Read more

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My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?

My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?

Von Willebrand's: Sorry, but there's no way for a forum doctor to help very much. Diagnosing von Willebrand's disease is quite complex, usually including family history, personal history of abnormal bleeding, and several lab tests. This is something to address with his current doctor, or a hematologist, who in turn may need to see the results of the tests 11 years ago, if possible. Good luck! ...Read more

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Is there a genetic basis for von willebrand disease?

Is there a genetic basis for von willebrand disease?

Yes: Vwd is an inherited condition. It affects both males and females. If one parent has the most common type, type 1, then each child has a 50% chance of inheriting the disease. ...Read more

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Could you donate blood if you have von willebrand disease?

Could you donate blood if you have von willebrand disease?

No: Most blood centers say no, mostly because the risk for you donating (venipuncture) is not trivial and impossible for the blood center to assess at the time of donation. You could always donate your time as a volunteer at a blood drive, however! ...Read more

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Could people with von willebrand disease get tattoos?

Could people with von willebrand disease get tattoos?

Yes: Most people with von Willebrand's don't know they have it. If you have a severe form and are followed regularly by a hematologist, ask him/her first. Otherewise, go ahead. Be sure it's something you really and truly want. Best wishes. ...Read more

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Can people with von willebrand disease get tattoos done?

It is possible, but: Depending on the severity of your disease, it is possible, but only in consultation with your hematologist. The severity of VWD is quite variable from patient to patient. If you really wanted to get a tattoo, you could pre-treat yourself with the appropriate medicine as if you were having an elective surgery, but you would have to pay for it out of pocket (i doubt insurance would cover it). ...Read more

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Is it possible for people with von willebrand disease to get tattoos?

Yes: About 1% of humankind has at least mild vWF. If you're presently being managed on medication by a hematologist, get his/her thoughts. If it's not been a huge problem for you, and your physician has released you, then go ahead. vWF involves the blood itself and its platelets, while the tattoo involves the deep skin. ...Read more

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Can you get a tummy tuck if you have von willebrand disease?

Can you get a tummy tuck if you have von willebrand disease?

Yes: Depending on the severity of the disorder will dictate if it is safe to proceed. How your coagulation profile responds to administration of dictates the effectiveness of treatment and safety of surgery. The costs of preventative treatment is very highland has risks as well, asking the decision to proceed with elective, cosmetic surgery more complex! ...Read more

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Why does von willebrand disease cause skin rashes?

Why does von willebrand disease cause skin rashes?

Bleeding problem: Von willebrand is a bleeding disorder that can cause bruising or a petechiael rash. This rash has small red dots. ...Read more

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Can a person with von willebrand disease get a tattoo?

Can a person with von willebrand disease get a tattoo?

TATTOOS: Von willebrand disease (VWD) is a bleeding disorder. It affects your blood's ability to clot. If your blood doesn't clot, you can have heavy, hard-to-stop bleeding after an injury. I believe it might be dangerous to stop any of the bleeding that might occur during the tattooing pricess. I hope you are not disappointed. ...Read more

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Is a C-section dangerous for someone with von willebrand disease?

Is a C-section dangerous for someone with von willebrand disease?

Possibly: With vwb, you may be at extra bleeding risk. It depends on the platelet count and the function of your blood clotting. So often your doctors will take special precautions. But anything can happen in surgery and with childbirth so being prepared is the most important thing. That being said, in most patients everything is fine. ...Read more

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