Doctor insights on:
Misdiagnosis Of Von Willebrand Disease
Bleeding disorder: Vwd is the most common inherited bleeding disorder. Von wiilebrand factor is a clotting protein that helps stabilize clots by helping to bind platelets together and also helps carry factor viii in the blood. In vwd, vw factor is either decreased or does not function appropriately. Clots will form but they are not stable, can easily fall apart/ dissolve, and bleeding will then occur. ...Read moreSee 1 more doctor answer
VWD testing: Primary care doctors can relatively easily obtain screening blood tests for von willebrand's disease (vwd). These include testing for levels of the von willebrand's disease protein, its activity, and a factor viii level. If these tests come back normal and VWD is still a concern, more specialized tests can be performed. ...Read moreSee 1 more doctor answer
Not necessarily: "risky" is hard to define. Because menstrual bleeding is one of the more common problems women with VWD have, it is considered "riskier" for women than men. It is very possible to manage menstrual bleeding, as well as bleeding with childbirth very effectively, however. Once that happens, VWD is no riskier for women than it is for men. ...Read more
What happens if my girlfriend has von willebrand disease and I don't what's the chances of our children getting it?
50% in most cases: an overwhelming majority of von Willebrand Disease (VWD) is dominant, meaning that if you carry one gene, you have VWD. Supposing that your girl friend has one VWD on one chromosone, and the other is normal, the chance of her passing that VWD gene to your offspring would be 50%. Most patients with VWD have type 1 disease which is fully compatible with normal life span. ...Read more
Can you tell me if my girlfriend has von willebrand disease and i don't what's the chances of our children getting it?
Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.
Unique, certainly: These are both fairly commonly inherited disorders. Factor v leiden occurs in about 1/100 people. Von willebrand is also about 1/100 or so. So it is conceivable that this could occur in the same person. There are probably a few like you around. ...Read moreSee 1 more doctor answer
Interesting.: Von willebrand disease is a difficult disease to diagnose. The most typical form is type 1, generating low levels of protein. However, your body can make this protein, and usually the treatment is a medication that "stresses" the body, causing release of von willebrand protein. I have known of several people who have low levels during childhood and the levels normalize later in life. ...Read moreSee 1 more doctor answer
My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?
Von Willebrand's: Sorry, but there's no way for a forum doctor to help very much. Diagnosing von Willebrand's disease is quite complex, usually including family history, personal history of abnormal bleeding, and several lab tests. This is something to address with his current doctor, or a hematologist, who in turn may need to see the results of the tests 11 years ago, if possible. Good luck! ...Read more
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