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Doctor insights on: Mild Spina Bifida In Adults

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Mild spina bifida getting worse. Could it be a circulation problem?

Mild spina bifida getting worse. Could it be a circulation problem?

Please be specific: Spina bifida & circulation problems r not related. Problems associated with spina bifida are neurosurgical (back pain, nerve compression etc) orthopedic (gait, leg & foot broblems) or urologic (urinary incontince) & taken care of by specialists in those areas. Circulation problems r related to reduced blood flow to certain areas from spasm (raynaud's) kinked or compressed blood vessels & cause pain. ...Read more

Dr. Edward Smith
219 doctors shared insights

Spina Bifida (Definition)

A birth defect involving incomplete development of the spinal cord or its coverings. The exact cause of the condition is unknown, but a risk factor appears to be low levels of folic acid in a woman's body before ...Read more


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Can somebody with spina bifida who has never needed a shunt need one as an adult?

Can somebody with spina bifida who has never needed a shunt need one as an adult?

Maybe.: Yes, it is possible. Consult with a neurosurgeon if you would like more information. ...Read more

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Question for adults with spina bifida. Can they have loss of motor function or inability for orgasm if low?

Question for adults with spina bifida. Can they have loss of motor function or inability for orgasm if low?

Yes: Spina bifida oculta usually has no neurological deficit, norma, . 10% of population. Open & close spinal bifida usually will have motor and sensory deficit like para/quadriplegia, decrease sensation/orgasm, respiratory problem (due to chiari malformation . Intelligence usually not affected. ...Read more

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Who takes care of adult spina bifida after you leave the children's hospital team?

Who takes care of adult spina bifida after you leave the children's hospital team?

Neuro/Ortho Spine: Some pediatric neurosurgeons will follow their patients as adults so check with them. You may need a team to help with bladder, orthopedic, and neurologic problems. For patients with chiari or vp shunts, they will need to see a neurosurgeon to be assessed for concerns for headache, numbness, or weakness. Get referrals from your pediatric providers if possible. ...Read more

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I have mild spina bifida and a colostomy bag. How often should the bag be cleaned?

I have mild spina bifida and a colostomy bag. How often should the bag be cleaned?

Stomal appliance fit: Priority is a good fit of your appliance. Prevent any excess baggage to carry around, by burping gas from you bag, and dumping contents so as not to burden your appliance and to raise your risk for leak. Empty your bag at least daily or twice daily as needed. Replace the bag as you change appliances, don't bother cleaning it, but maintain the cleanliness of the connections and the outside. ...Read more

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Can spina bifida occulta lead to tailbone pain problems in adults?

No: Spina bifida occulta by itself is an asymptomatic condition. However co-existence of other spinal anomalies can lead to back pain. ...Read more

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My wife was just diagnosed with spina bifida occulata (age 23). They said it's mild. Her tailbone hurts. What's the treatment for something like this?

Usually nerve block: Condition occurs in 10% of population and is not serious, should be treated conservatively, usually nerve block injections. ...Read more

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8 year old with mild spina bifida. We just found she has 2 cysts on the sacral region of her spine. Can cysts be malignant? We are worried

8 year old with mild spina bifida.  We just found she has 2 cysts on the sacral region of her spine.  Can cysts be malignant? We are worried

Rare if ever: These are uncommon and usually represent surface cells incorporated in the formation of the cord called a dermoid. These are often just watched over time to see if they behave in a benign way. Removal is often problematic if located within delicate nerve pathways. ...Read more

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I got this feedback from an X-ray. There is Lumberization of S1 with spina bifida occulata there is anterior wedging of the T12 body mild ddd at L5S1. Should I be concerned?

Lumbarization: of S1 is an anatomic variation, usually of no concern. Likewise, spina bifida occulta is a minor variant, usually an incidental finding of no concern. Mild "ddd" is mild degenerative arthritic changes at that level. T12 anterior wedging could also be an anatomic variation, or indicate prior compression fracture, would need to evaluate the xrays to try to determine which. ...Read more