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Doctor insights on: Metopic Craniosynostosis

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My child has craniosynostosis (metopic), are there any options other than surgery?

My child has craniosynostosis (metopic), are there any options other than surgery?

Metopic synostosis: Surgery is really the only option at present. Surgery for metopics is really based on how severe the synostosis is on examination. A mild ridge most do nothing. Severe ridge with dimpling lateral to the eyes and close set ears are the more concerning types. ...Read more

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Could craniosynostosis be missed until 15 months? Child has a ridge along metopic suture, but pediatrician says too late for diagnosis.

Could craniosynostosis be missed until 15 months? Child has a ridge along metopic suture, but pediatrician says too late for diagnosis.

Craniosynostosis: Ridging along a metopic suture does not necessarily mean craniosynostosis. There are other findings associated with it that fit into the diagnosis of trigonocephaly. It is not too late for a diagnosis and a work up by a craniofacial surgeon might be helpful here for you. ...Read more

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Can craniosynostosis be treated in adults?

Can craniosynostosis be treated in adults?

Yes: The surgical restructuring of the bony skull can be done in adults but is more often done in infancy. If interested, i would contact a regional craniofacial center for advise.These are generally found in large metropolitan areas like dallas, and may be associated with a medical school or research facility. ...Read more

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What are the symptoms of craniosynostosis?

What are the symptoms of craniosynostosis?

Craniosynostosis: Symptoms is not the correct word here, rather if its the signs or physical findings seen at birth typically from mis-shapened skull and orbit bones. Symptoms really do not occur till later in life when left untreated and the most common would be headaches. ...Read more

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What is a metopic suture?

What is a metopic suture?

Frontal Suture: It is a misnomer because it disappears by the age of 5 or 6 and due to the presence of dense connective tissue at the frontal suture on skull. ...Read more

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How do they do the surgery to fix craniosynostosis?

How do they do the surgery to fix craniosynostosis?

Craniosynostosis: It really depends on the type of synostosis and what areas of the head and orbits are affected. Also the age of the child at the time of surgery can be a factor. A consultation with a craniofacial center can answer many of the questions as to surgery. ...Read more

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Does anyone have a child with lambdoid craniosynostosis?

Does anyone  have a child with lambdoid craniosynostosis?

Rare: True lambdoid synostosis is rare. Vast majority of cases are positional plagiocephaly and are treated well without surgery, often using helmet therapy. ...Read more

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Can you tell me more about craniosynostosis, scaphocephaly?

Can you tell me more about craniosynostosis, scaphocephaly?

Craniosynostosis: Scaphocephaly is a type of craniosynostosis and occurs when a suture, a region where two large bones come together and fuse or close prematurely. This typically leads to a prominent forehead and a very narrowed backside of the head, often with a prominent "knob" at the very back of the head. Depending on the severity of the clinical findings surgery can be recommended for correction ...Read more

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Does an early fusion or closure of a soft spot always indicate craniosynostosis?

Two separate issues: Fusion is a word that implies final attachment and the end to growth at the site. Perceived closure of the soft spot does not mean it has reached the final fusion.The skull grows with the suture lines pushing away from each other until they fuse at the end of growth.Skulls reach 90% of their final size by age nine, but true fusion takes place in adulthood. ...Read more

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Does a premature closing of the soft spot necessarily mean a baby has craniosynostosis?

Does a premature closing of the soft spot necessarily mean a baby has craniosynostosis?

No: The skull bones are already fused in craniosynostosis and the head shape should be different in appearance. In addition to examining the fontanelles, your doctor should be following the head circumference. If your baby's head is growing as expected that is a good measure of growth. Often the fontanelle feels closed but is still there. I am not sure of the age of your child and advise may change. ...Read more