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Doctor insights on: Medicine For Von Hippel Lindau Disease

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How common is von hippel-lindau disease?

How common is von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

Dr. Kamran Ahrar
104 Doctors shared insights

Von Hippel Lindau Disease (Definition)

Von Hippel Lindau disease is angiomatosis of retina and cerebellum, it is associated with an increased incidence of ...Read more


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What are the tests for von hippel-lindau disease?

What are the tests for von hippel-lindau disease?

Diagnosis: Clinical diagnosis of vhl is based on the presence of two characteristic tumors or, in the presence of a family history of vhl, occurrence of one characteristic tumor. However, a family history is often difficult to recognize due to the variability in clinical presentation of vhl both between and within affected families. ...Read more

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I would like more information on von hippel lindau disease?

RENAL CYSTIC D.: It is one of the malformation syndromes with congenital renal cysts. There are angioma proliferation in the retina, brain, spinal cord and adrenal glands. Disorders include oral, facial, digital sysdrome. ...Read more

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What can I do to find out if I have von hippel lindau disease?

What can I do to find out if I have von hippel lindau disease?

Do I have VHLD?: Best to make an appointment to speak with your physician. In advance try to gather as much of your family medical history as possible. I suspect you have your own reasons for worrying about this rare genetic disease. Good luck. ...Read more

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What is the definition or description of: Von Hippel Lindau disease?

Angiomatosis: Von Hippel Lindau disease is angiomatosis of retina and cerebellum, it is associated with an increased incidence of hypernephroma, pheochromocytoma, and epandymoma. ...Read more

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What are the common presenting symptoms of von hippel-lindau disease?

What are the common presenting symptoms of von hippel-lindau disease?

Autosomal dom: Hereditary disorder associated with presence of hemangioblastomas, and secondary headaches, incoordination and imbalance, with loss of vision. Big problem is association with retinal lesions, kidney cancer, and pheochromocytomas. ...Read more

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I have just been told I have von hippel-lindau disease. What? Why? How did I get it?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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What is the treatment for von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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What are von hippel - lindau disease and lennox/gastaut syndrome.?

What are von hippel - lindau disease and lennox/gastaut syndrome.?

Syndromes: Von Hippel-Lindau syndrome is a genetic disorder that leads to the developement of many different types of tumors. Lennox Gastaut syndrome is a disorder in which the victim has many seizures. Both are severe, and a person with either one should have a doctor familiar with its treatment ...Read more

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Help docs! I'm trying to find out what causes von hippel lindau disease?

Help docs! I'm trying to find out what causes von hippel lindau disease?

See doctor: Von hippel lindau disease involve s genetic mutation of VHL gene, involves multiple organs as tumors of brain kidneys eyes and glands affecting blood vessels ---called hemangiomas. One may get headache, problem in balancing, walking, dizziness and blindness depending upon the size of hemangioma. Better discuss with your doctor if you have any symptoms. ...Read more

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I have just been told I have von hippel-lindau disease. Where can I learn more?

I have just been told I have von hippel-lindau disease. Where can I learn more?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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Is there a genetics connection von hippel-lindau disease?

Is there a genetics connection von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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I have a genetics question about von hippel-lindau disease?

I have a genetics question about von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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I have a genetics question about cause of von hippel-lindau disease?

I have a genetics question about cause of von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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What's the most destructive disease you know? Von hippel–lindau, hughes stovin and such.

What's the most destructive disease you know? Von hippel–lindau, hughes stovin and such.

Clarify: I enjoy idle, unanswerable questions as much as you do -- it's part of learning. My own choice would be meth addiction. Ruins mind, body, family, and community -- all grotesquely. ...Read more

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What causes von hippel lindau?

Genetic: Von hippel–lindau disease is a genetic condition caused by a mutation of the “von hippel-lindau tumor suppressor” gene on chromosome 3. It is autosomal dominant. ...Read more

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Just been told I have von hippel lindau, MRI shows 3 lesions on the liver, already had kidney ca, should I be worried?

Just been told I have von hippel lindau, MRI shows 3 lesions on the liver, already had kidney ca, should I be worried?

Need continued f/u: Patients with von hippel-lindau are at risk for a variety of tumors, including kidney, pancreatic, brain and eye. Liver lesions in this disease can represent metastasis, but also can represent liver cysts or vascular tumors. The MRI should be able to characterize whether these are cysts or solid. Depending on the size and characteristic, the liver lesion be followed or may need to be biopsied. ...Read more

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Ayurvedic treatment for von hippel lindau disease?

Ayurvedic treatment for von hippel lindau disease?

Questionable: Others might disagree, and certainly ayurvedic treatment can be used along with other things if it makes you feel better, but I would concentrate on traditional treatments and diagnoses for this very serious syndrome ...Read more

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What medicine I have to take for chrones disease?

Depends: You need to see a gastroenterologist for history & exam and guidance as to which of the options available is best for your situation. ...Read more

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What is the safest medicine name for peyronies disease?

What is the safest medicine name for peyronies disease?

Some injections: Non-surgical treatments for peyronie's include: waiting (as some penises improve without treatment), or injections of medications such as verapamil or interferon (medications that can decrease the collagen fibrous material in the plaque). An experienced urologist can evaluate to be sure peyronie's is cause of the curvature, and then he may recommend non-surgical treatments as a first step. ...Read more

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What medicines help with degenerative disc disease?

What medicines help with degenerative disc disease?

A variety: Of non steroidal anti inflammatory medication as long as there are no contraindications like allergies, use of blood thinners, kidney or liver disease or ulcer/reflux issues. Tylenol (acetaminophen) is an option. Other types of drugs like cymbalta, Elavil and neurontin/lyrica may also help. Ideally, not smoking, regular exercise and weight control are also helpful. Good levels of vitamin d also are important. ...Read more

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Can coeliac disease prevent me from studying medicine?

Can coeliac disease prevent me from studying medicine?

No!!!!!: Many people live with celiac disease and are highly functioning professionals. Strict adherence to a gluten-free diet is crucial. That also means reading labels very carefully. You should shop at the gluten-free section, available in most groceries, be under competent medical supervision. Also see www. Celiac. Nih. Gov/materials. Aspx; www. Celiac. Org/ ...Read more

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What drug is used to treat hodgkin's disease lymphoma?

What drug is used to treat hodgkin's disease lymphoma?

ABVD: Adriamycin (doxorubicin)
Bleomycin
Vinbastine
Dacarbazine

The combination of the 4, all given every 2 weeks for 8 or 12 times depending on the stage of the cancer is the gold standard ...Read more

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I want the best medicine for removal of this disease ie milia?

I want the best medicine for removal of this disease ie milia?

Extraction: Milia are inclusion cysts. The best way to get rid of them is to have them extracted by an aesthetician or dermatology practice ...Read more

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Could you tell me what are some diseases brought by drug abuse?

Could you tell me what are some diseases brought by drug abuse?

Many: Drug or substance abuse can be at the helm of many disease states which can affect your mental, psychological, and physiological systems in your body. The list is long and includes every organ system causing accelerated or preventable damage to your body. ...Read more