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Doctor insights on: Medicine For Retroperitoneal Fibrosis

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I'm diagnoised with retroperitoneal fibrosis. Is there a medicine for it and if so what?

I'm diagnoised with retroperitoneal fibrosis. Is there a medicine for it and if so what?

Difficult to treat: Unfortunately, there is little mediation to treat this disorder. Mostly we treat the problems that arise from the fibrosis. Occasionally the fibrosis responds to steroid pulses. Ask your local doc for hematology referral. Be well. ...Read more

Dr. Bradford Patt
9 Doctors shared insights

Retroperitoneal Fibrosis (Definition)

Retroperitoneal fibrosis is a rare disorder in which the ureters (tubes that bring urine from the kidneys to the bladder) are blocked by a fibrous mass in the area behind the stomach and intestines. It is ...Read more


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What to do if I have been diagnoised with retroperitoneal fibrosis. Is there a medicen for it if so what?

What to do if I have been diagnoised with retroperitoneal fibrosis. Is there a medicen for it if so what?

Medications: Idiopathic retroperitoneal fibrosis is a chronic non-specific inflammation of the retroperitoneum, which can entrap and obstruct important structures, notably the ureters. Treatment with corticosteroids, alternative treatment strategies for steroid-resistant cases (i.e. intensive immunosuppression) and hormonal treatment, particularly tamoxifen, have been utilized. Surgery may also be indicated ...Read more

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What is retroperitoneal fibrosis?

What is retroperitoneal fibrosis?

Chronic scarring: Idiopathic retroperitoneal fibrosis is a chronic non-specific inflammation of the retroperitoneum, which can entrap and obstruct important structures, notably the ureters. The average age of diagnosis is about 55 years and the male:female ratio was 3:1. Options for treatment include corticosteroids, other immunosuppressive and hormonal treatment (such as tamoxifen), as well as surgery. ...Read more

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Could you treat retroperitoneal fibrosis?

Could you treat retroperitoneal fibrosis?

Difficult: Difficult to treat. Options include surgery, trial of certain medications like Prednisone need multidisciplinary team- surgeons, nephrologists, rheumatlogist. ...Read more

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How do docs treat retroperitoneal fibrosis?

How do docs treat retroperitoneal fibrosis?

Manage symptoms: Retroperitoneal fibrosis is one of those chronic disorders without a cure. It causes scarring behind the abdominal organs. Can narrow veins, arteries, urine conduits, ureters. Docs use stents, vacualr bypasses, filters and monitoring to manage the consequences. Long term anticoagulation is often required, as are compression devices for the legs. ...Read more

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What is a renal autotransplant involving retroperitoneal fibrosis & what would be the reason for having this?

What is a renal autotransplant involving retroperitoneal fibrosis & what would be the reason for having this?

Bench Surgery: In retro-pertonial fibrosis, the scar tissue choks the Kidny and ureter results in renal failure, in order to prevent this complication, kidney and ureter is removed and re-implanted in the peritoneal cavity (auto implantation) ...Read more

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Per my medical records for an Ileostomy Reversal surgery I underwent, it states the surgeon did a Renal Autotransplant involving retroperitoneal fibrosis. Normal procedure? Explain, please.

Per my medical records for an Ileostomy Reversal surgery I underwent, it states the surgeon did a Renal Autotransplant involving retroperitoneal fibrosis. Normal procedure? Explain, please.

My take is. ..: This question should be directed to the then surgical team. No one should make a "smart" comment or suggestion now after years from the surgery because how, when, and what should be done in individual procedures for medical calamities have changed and evolved over time. That is life. Let life and medicine evolve and move; it's unfair / un-smart to be a hind-sighted smart one. ...Read more

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What medicine to be apply for the lingular discoid fibrosis that found during x-ray. They told left and right upper lobe. Please advise soon.

What medicine to be apply for the lingular discoid fibrosis that found during x-ray. They told left and right upper lobe. Please advise soon.

It depends: On the extent of the fibrosis, the cause of the fibrosis, and your symptoms. Fibrosis is essentially scarring and cannot be reversed. Fibrosed lung does not exchange oxygen. If mild, it may be due to an old inflammation/infection and require no treatment. If ongoing or progressive, it could lead to breathing difficulties, so you need to talk to your doc about what it means in your situation. ...Read more

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What types of medicines are used to treat pulmonary fibrosis?

What types of medicines are used to treat pulmonary fibrosis?

No effective Rx: There are no effective treatments for pulmonary fibrosis although Prednisone (steroids) are often used. Multiple other medications have been used, but none has been proven to affect this condition. ...Read more

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What are the alternative medicine treatments for pulmonary fibrosis?

What are the alternative medicine treatments for pulmonary fibrosis?

Nothing: So far everything is voodoo. New medications are being developed as we speak. ...Read more

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Can the new drug for cystic fibrosis, kalydeco, (ivacaftor) be taken by someone with copd. Would it help?

Can the new drug for cystic fibrosis, kalydeco, (ivacaftor) be taken by someone with copd. Would it help?

Unlikely: CF is a disease where the mucous your lungs make is very thick. COPD is caused by smoking (usually) and results in loss of lung tissue. Chronic bronchitis is one form of copd, but the mucous produced is normal. Talk to your doctor. ...Read more

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Is respiratory failure a side effect of the medicines given for pulmonary fibrosis?

Is respiratory failure a side effect of the medicines given for pulmonary fibrosis?

No: The drugs given for the most common type of pulmonary fibrosis, would include anti-inflammatory medicine and an immune suppressant called azathioprine. These drugs do not cause respiratory failure per se, although suppressing the immune system may increase the risk of pneumonia, which itself can cause respirator failure, especially in the setting of lung disease. ...Read more

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Person (65 years old) suffers from sever cough and difficult in breath. Doctors said its pulmonary fibrosis? Please what's drug or treatment to him?

Person (65 years old) suffers from sever cough and difficult in breath. Doctors said its pulmonary fibrosis? Please what's drug or treatment to him?

Very little: There is no therapy for pulmonary fibrosis. Symptomatic relief may be helped with oxygen, Imuran (azathioprine) and possible steroids, progressive dis may be treated with lung transplant. ...Read more

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Area of fibrosis in breast. Biopsy proven. How to get rid of it (medicines massage?) feels firm and scares me all the time with a breast self exam.

Area of fibrosis in breast. Biopsy proven. How to get rid of it (medicines massage?) feels firm and scares me all the time with a breast self exam.

Breast exam: Anytime one notices a new mass, lump, bump or skin change in the breast it is very important to have this evaluated by a doctor who can help determine if any work up or testing is needed. A mammogram and/ or breast sonogram need to be done first. If a biopsy proved that it is benign then your doctor may suggest monitoring. If it is causing pain then surgical removal can be considered ...Read more

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How can cystic fibrosis affect p.I.E.S development?

How can cystic fibrosis affect p.I.E.S development?

Certainly: Cystic Fibrosis (CF) most common life-limiting genetic disorder of Caucasians, affecting approximately 30K people in the US. A, impacting mainly respiratory function. In recent years patients symptoms better controlled by genetic findings and better medications. Emotional & phys. Development depend on severity, time in hospital, complications. Morb. & mort. Factors afect emotional, cognitive behavior. ...Read more

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Can someone be diagnose with cystic fibrosis in their 40's?

Can someone be diagnose with cystic fibrosis in their 40's?

As a carrier: Genetic carrier testing:
more than 10 million americans are symptomless carriers of the defective CF gene. This blood test can help detect carriers, who could pass CF onto their children. To have cystic fibrosis, a child must inherit one copy of the defective CF gene from each parent. ...Read more

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I have symptoms of cystic fibrosis. Is it possible to start show the symptoms in my 30's?

Yes: Yes it is possible. Presentation of cystic fibrosis varies greatly, and it is possible, depending on your specific mutation (and other factors) to present at a later age. In order to prevent late diagnoses, all states now have a newborn screen in place for cystic fibrosis. ...Read more

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I have family members with cystic fibrosis. Is it possible to start show the symptoms in my 20's?

I have family members with cystic fibrosis. Is it possible to start show the symptoms in my 20's?

Yes: However, usually an adult who is diagnosed so late has usually had chronic problems with cough and "pneumonias". That said I've diagnosed a new case in a 38 year old woman. ...Read more

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What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700. It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read more

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What is residual fibrosis? Is it a severe case?

What is residual fibrosis? Is it a severe case?

Fancy name...: A description for a little bit of scarring following an illness from which you've recovered. I'm sorry the lingo threw you for a loop. Chat with your physician about this if it popped up on a report, and good luck. ...Read more

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I have a minimal right aprical fibrosis. What does that mean?

I have a minimal right aprical fibrosis. What does that mean?

It means: There is an area of scarring in the upper part of your right lung. It could be due to many causes, such as prior infection, but if it is an incidental finding and you are otherwise asymptomatic it may be of no concern. Talk to your doc about the results. ...Read more

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What is vaginal fibrosis and how do you cure it?

What is vaginal fibrosis and how do you cure it?

Vaginal fibrosis: You can think of vaginal fibrosis as bad scar tissue in the vagina. It typically is the side effect of radiation therapy for gynecologic cancers. The vagina looses its elasticity and can shrink. ...Read more

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Hi doctors, can you tell me what is retropertineal fibrosis?

Hi doctors, can you tell me what is retropertineal fibrosis?

Retroperitoneal Fibr: Retroperitoneal fibrosis is a rare disease, often idiopathic, but drugs, infections malignancies, prior surgeries, radiation therapy, smoking, and asbestos exposure have been implicated.. It is characterized by the presence of inflammatory and fibrous retroperitoneal tissue that often encases the ureters & other abdominal organs. Symptoms include back or flank pain, and decreased kidney function ...Read more

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What is cystic fibrosis?

Genetic disorder: It is a genetic disorder characterized by abnormal sodium channels, which affect a great deal of problems including the respiratory and digestive systems. It is most commonly diagnosed in infants failing to gain appropriate weight, and in children who have multiple chronic infections. ...Read more

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What is apical fibrosis?

What is apical fibrosis?

Scarred lung apices: Causes include:

- Sarcoidosis
- eosinophilic pneumonia
- tuberculosis
- cystic fibrosis
- ankylosing spondylitis
- radiation pneumonitis
- pneumoconiosis


...Read more