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Doctor insights on: Medical Exams To Avoid In Eds

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Are there drugs that vascular eds patients should avoid? What is the best pain reliever for kids?

Are there drugs that vascular eds patients should avoid? What is the best pain reliever for kids?

Nitrates/tylenol: Eds pts should avoid nitrates when using eds drugs such as viagra. Children are usually given tylenol (acetaminophen) based on safety over many years. However all forms of analgesics can be use in children depending on the circumstance. All doses will need adjustment. ...Read more

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Dr. Lois Freisleben-Cook
344 doctors shared insights

Ehlers Danlos Syndrome (Definition)

Ehlers-Danlos Syndrome is a medical condition characterized by hypermobile joints, very elastic or stretchy skin that bruises easily, and other abnormalities. It is caused by defects in collagen, an important structural protein that is responsible for the strength of many different types of tissue including skin, ...Read more


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I know that aspirin should be avoided by people with vascular eds. Are there other drugs t avoid?

I know that aspirin should be avoided by people with vascular eds. Are there other drugs t avoid?

Anticoagulants: Vascular ehlers-danlos is a difficult disease to manage. Any of the medications that suppress platelet function, and the anticoagulants generally, need to be avoided. However, of the common over-the-counter medicines, aspirin's by far the most powerful anti-clotting agent; before you receive any other medicine that could make you bleed, your physician would discuss risk-benefit with you. ...Read more

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I have EDS and bleeding issues associated with the faulty collagen would surgical or medical abortion be a safer approach?

I have EDS and bleeding issues associated with the faulty collagen would surgical or medical abortion be a safer approach?

Medical abortion: With EDS you should work closely with the physician managing the EDS. If you have bleeding disorder - i.e.bleed more easily - then medical abortion is somewhat safer. Avoiding the need for the collagen function, in order to repair tissue after surgery would be wise in your case. However, medical abortions have risk of bleeding as well. Please work with an EDS experienced physician. ...Read more

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I've had a long history of medical probs. My dr. is bringing up possibility of a connective tissue disorder, possibly EDS. What can I expect w this?

I've had a long history of medical probs. My dr. is bringing up possibility of a connective tissue disorder, possibly EDS. What can I expect w this?

Testing: First your symptoms should be compatible with certain autoimmune diseases. Blood tests may be obtained to confirm the suspicion. If the blood tests are positive or suggestive, a rheumatology consult may be in order On the other hand, what do you mean by having multiple medical problems at your age? Sometimes these may just represent depression. Are you old enough to post questions here? ...Read more

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How do you get eds?

How do you get eds?

Genetic!: You are born with it. It (several variants) are genetically acquired and in the patient's dna. It not acquired! treatments are symptomatic. There are no cures. ...Read more

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What are the types of eds?

What are the types of eds?

EDS types : Ehler danlos syndrome is a disorder of elastic fibers -----genetically based and many sub types have been identified. ...Read more

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What are the signs of eds?

Loose-jointedness: There are several variations of eds but they all have loose-jointedness as a primary symptoms. Increased elasticity of the skin may also be present. ...Read more

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What's transmission of eds?

What's transmission of eds?

Genetic: The only common form of eds is type iii. This is because afflicted individuals rarely reach childhood; and, certainly not adulthood. Eds iii is an autosomally dominant gene which means that 50% of children of the affected person will have the disease; or each child has a 50% risk of developing the disease. ...Read more

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What is inheritance and pentrance of eds?

Depends: Ehlers danlos is a family of disorders, which has 6 major and several minor types. Given the multiple genes involved, it can be inherited in both autosomal dominant and autosomal recessive patterns, and can even spring from a de novo mutation. Penetrance depends on the type of mutation, and can therefore not be reliably calculated without more information. ...Read more

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What are the manifestations associated with eds?

What are the manifestations associated with eds?

EDS: Excessive daytime sleepiness is exactly that. People typically will be tired during the day, fall asleep easily during activities that they should not falls asleep and may have a hard time staying awake while driving. It is also the diagnosis we typically use for patients so that they can qualify for a sleep study when we have concerns about sleep apnea. Sleep studies can be $2-4k tests. ...Read more

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