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Yes: Marfan's syndrome patients die from complications of aortic valve widening. If this is treated with inderal, (propranolol) progression is slower and patients live longer. In addition, if heart valve surgey is performed electivelly patients live longer. Untrated patients have a life span of 32 years. ...Read moreSee 1 more doctor answer
Normal: In the bad old days, these people would live normal life spans but remain tiny and simple-minded, like children. Read about "cretins". To allow this to happen to a child today is a disaster, but a few million children in our world suffer from this just from iodine deficiency because of misplaced priorities. ...Read more
Variable: It is important to understand that the brain may dictate bodily function. If lisencephaly is part of miller-dieker syndrome death may occur before age 2, but sometimes infants may live longer. Remember if the patient cannot feed themselves and is bed-ridden-they are prone to pneumonia, infection-which may lead to an earlier death.Also important are other associated congenital abnormalities. ...Read more
Haven't seen numbers: Haven't seen any numbers on life expectancy of lennox-gastaut patients. Maybe nobody has collected and published that information. One website reported a 3%-7% mortality in patients over a 9 year period (that sounds like 1/2 % per year). The deaths were often due to accidents. In such disorders, if a person is watched and cared for closely, he can outlive parents, and die of other natural causes. ...Read more
Varies by severity: People with mild marfan syndrome symptoms probably live a pretty normal lifespan. Those with severe symptoms can die from heart valve problems, rupture of the aorta, tension pneumothorax, etc..., before they reach old age. Of course, those with moderate symptoms will have a lifespan in between. ...Read moreSee 1 more doctor answer
Yes and no: If you a have a true familial form (generally this means multiple 1 st degree relatives have it. Usually happens at an earlier age) then yes the course of disease is similiar. If by familial you mean 1 relative had it, then no it is variable and progress differently. ...Read more
Genetic disorders: It would help if you would be specific about what your genetic disorder is. ...Read more
Impossible to say: The life span depends on the severity of the diseases. Most patients with these diseases have a normal life expectancy. ...Read more
Can be...: COPD is a slowly progressive disease and, over many years, the damage in the lungs increases and eventually can be life-threatening. The progression can be slowed further via smoking cessation and supplemental oxygen, if your oxygen level is low enough to qualify. ...Read moreSee 2 more doctor answers
Depends: On the course of the disease, organ involvement, baseline health status, the aggressiveness of the condition, and many other factors (response to treatment, etc.). ...Read more
Chronic Illness: Progress in management has improved the quality of life for CF patients but it doesn't take away the basic vulnerabilities of the illness. In its worst forms, the illness shuts down production of enzymes that permit digestion of food & creates excessive mucous in the lungs that sets them up for deadly pneumonia & lung scaring. At some point, one of the complications will end their life. ...Read moreSee 1 more doctor answer
Not Known: This disease has been diagnosed in about 300-500 people and is known as a disease entity only since 2005. Life expectancy is expected to increase like in marfans syndrome with improved awareness and medical progress. Due to the high risk of death from aortic aneurysm rupture, patients should be followed closely. A valuable resource for this is http://www.Loeysdietz.Org/index.Ph. ...Read more
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