Doctor insights on:
Map Dot Dystrophy Treatment
Yes and no: Depending on the type there are some treatments to slow the progression, but htere are currently no cures. If you are passionate about this issue please consider supporting the mda who are instrumental in funding a lot of promising research! ...Read more
It depends: There are many different forms of muscular dystrophy. Treatment depends on the type. For some forms there are treatments to slow progression of the disease. There are currently no cures, but a lot of active research and promise on the horizon. ...Read more
Supportive: Mostly supportive and treating complications. There are some results with gene therapy, stem cell etc. ...Read more
See this site: Http://www. Parentprojectmd. Org/site/pageserver? Pagename=care_stage_adult.Get a more detailed answer ›
The same everywhere: Ophthalmolgists throughout the world are in constant communication by journals, meetings and the internet. The treatment for macular disease in major cities is the same everywhere. The best plan is to find a good local retinal specialist who can evaluate and treat your condition. ...Read more
Treatment, no cure: If you are referring to duchenne muscular dystrophy, there is no cure at this point. It is progressive disease where muscle is replaced by fibrotic tissue. Steroids have been shown to increase the length of time a child can walk, decrease respiratory issues and even decrease the need for scoliosis surgery. It is not a panacea and should be discussed between doctor and family. ...Read more
Yes and no: They're are medical treatments to help slow down the progression of duchenne muscular dystrophy (steroid treatment) but nothing (yet) that will cure the disease. Make sure that you discuss the risks and benefits of steroid treatment with your physician. ...Read more
Depends upon type: Macular dystrophies are of many different types ranging from congenital dystrophies to specific macular diseases. A retinal exam by a retinal specialist can determine what you have. ...Read more
My self is rajneesh kumar suffering from calpainopathy muscular dystrophy. I've never been getting any treatment or therapy. Wt should I do n how?
How diagnosed?: First, you need a proper diagnosis. Next you need a competent doctor to evaluate you in a thorough manner. Muscle disease can affect breathing, swallowing, back, hips, knees, ankles, as well as heart function. There is risk for anesthesia as well as risk for toxic effects from certain medications and antibiotics. You may benefit from therapy and need special equipment. Discuss with your md. ...Read more
Fuchs: It depends on a multitude of factors such as your best corrected vision, your corneal thickness, your endothelial cell count (health of the inner layer of cells). Anyone with Fuchs should be evaluated by an eye care provider and optimally by a corneal specialist who can review the condition and go over treatments and options and measure the disease course. ...Read more
Dystrophy: Best treatment depends on how extensive it is and your vision. What is your vision? Have you ever had PRK? Any other medical issues? There is good treatment. DALK using the big-bubble technique can be useful in treating corneal stromal dystrophies and may help prevent need for Corneal transplants. Consult with us to help solve this issue. ...Read more
Macular corneal dys.: Macular corneal dystrophy is a rare and progressive corneal problem that starts at an early age. It can lead to painful corneal erosions, light sensitivity, and vision loss. It is hereditary (autosomal recessive), and relatively common in Iceland and Saudi Arabia. Treatment is supportive until corneal transplantation is required. Laser procedures and DSEK are not effective unfortunately. ...Read more
There is no cure.:
While there is no cure, a number of medications have been tried to lessen the symptoms, including:
albuteral--a drug used for people with asthma, amino acids, carnitine, coenzyme q10, creatine, fish oil, green tea extracts, vitamin e, steroids. A neurologist who specializes in muscle disorders would be most helpful to you. ...Read more
Muscular dystrophy: Treatment for this disorder is most commonly done by neurologists that specialize in muscular disorders which is not all neurologist. So I would work with your local primary care doctor and see if one can be identified in your area that can help out. ...Read more
Is there any treatment for a person with twenty nail dystrophy? I've had it for 5-6 years now. It was worst at first now it is better than before
Time and DermaNail:
Twenty nail dystrophy is characterized by excessive ridging, with longitudinal streaks, and discoloration. The nails very slowly return to normal. It is most often seen in young people. Summers labs makes a product called dermnail nail conditioner which may help improve the appearance of your nails.
Probably wise to visit a dermatologist to make sure the diagnosis is correct. ...Read more
What is the best treatment or a place where I can treat my cousins macular gramular dystrophy 4 eyes?
Stem cells: Scientists are investigating whether introducing stem cells which have the potential to turn into many different types of cells into dystrophic muscle could repopulate deteriorating muscle with normal muscle cells and slow the breakdown of abnormal muscle cells. ...Read more
Are there doctors who do not suggest steroids in duchnne muscular dystrophy& is steroid proven as treatment?
There's currently no cure for any form of muscular dystrophy. Current treatment is designed to help prevent or reduce deformities in the joints and the spine and to allow people with muscular dystrophy to remain mobile as long as possible.
Corticosteroids, such as Prednisone may help improve strength but too much too long may have detrimental effects to the bones and muscles. ...Read more
I am disabled by a genetic codition called "proximal myotonic myopathy" or "myotonic dystrophy type 2". Any advice for treatment or help?
Unsure: Can you be more specific as to what is being adjusted. What kind of spring device and how is it applied and where? ...Read more
What to do if I have macular dystrophy, photo-phobia and color blindness. Where I'll get best treatment within asia?
Lots of geography: Asia is big territory. I would start with an academic ophthalmology center in the country in which you live or are relocating. Most have specialists in your type of problem. ...Read more
There are 9 major: Types of inherited Muscular Dystrophies & > 100 similar inherited neuromuscular disorders. Treatment depends on specific diagnosis confirmed by molecular genetic testing &, sometimes, muscle biopsy, as most involve organ systems other than skeletal muscle. They differ in ages of onset & rapidity of progression of muscular weakness & atrophy. Please ask again when the diagnosis is established. ...Read more
I have muscular dystrophy my edge is 39 it seems non progressive. What treatments or new developments are concerning muscular dystrophy?
Neurologist: Best to check with your neurologist. The prognosis varies greatly with different types of muscular dystrophy. ...Read more
EARLY DIAGNOSIS!: The most important treatment is early diagnosis, which can make a difference in success. Aggressive home passive and active range-of-motion excercises, heat soaks (avoiding ice), along with medication management, is key to early success. Often sympathetic nerve blocks are useful. Seek a pain specialist soon for the best chance for success. ...Read more