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Doctor insights on: Lymphedema Capillary Leak

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A family member was diagnosed with "capillary leak syndrome" thru mayo clinic- what is that? How does one get it ? Can they do much to help?

A family member was diagnosed with "capillary leak syndrome" thru mayo clinic- what is that? How does one get it ? Can they do much to help?

Genetic, very rare.: Clarkson's disease is what it is called. It is a very rare genetic mutation. It causes episodes of fluid leaking out of the blood vessels into the tissue. This can lead to low blood pressure, passing out or damage to organs from the low bp, even death. Need to see a specialist in this! https://en.Wikipedia.Org/wiki/capillary_leak_syndrome http://www.Ncbi.Nlm.Nih.Gov/pmc/articles/pmc2947962/. ...Read more

Dr. Ted King
415 doctors shared insights

Lymphedema (Definition)

Lymphedema is a medical condition in which the tiny amount fluid and protein that normally seeps out of blood vessels as it flows by cells cannot be returned to the blood vessels due to abnormalities in the lymph system, or the collecting ducts ...Read more


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How common is lymphedema?

How common is  lymphedema?

Surprisingly common: According to lymphnotes.Com (http://www.Lymphnotes.Com/article.Php/id/401/), in the U.S., just within the medicare age population, the number of persons afflicted with lymphedema, or at risk of developing it, exceeds 6.8 million individuals. That would include all causes of lyphedema both primary (don't know the cause) and secondary ( due to cancer, radiation, surgery, etc.). ...Read more

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Who is at risk for lymphedema?

Who is at risk for lymphedema?

Surgery+/-Radiation: Anything that disrupts the lymphatic microcirculation of an extremity can cause lymphedema. The most common cause is the surgical removal of lymph nodes (ln) to stage certain cancers (breast and melanoma, most commonly). Breast cancer treatment often includes radiation therapy; if the lns are included in the radiation field, the risks increase. Thankfully, rates are down due to new techniques. ...Read more

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Lymphedema bandages alternative?

Lymphedema bandages alternative?

Compression Pump: There are a couple of compression pump systems that are in use today approved by the fda for lymphedema. All you need is an rx from your doctor to have a pump prescribed for you and the inflation bags fitted appropriately. ...Read more

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What can I do if I have lymphedema?

What can I do if I have lymphedema?

Therapy: There is physical therapy directed to improve this and also sleeves you can wear find a lymphedem clinic in your area. www.drlugo.com. ...Read more

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How is lymphedema diagnosed in women?

How is lymphedema diagnosed in women?

Usually clinically: Most diagnoses are made clinically with signs of swelling. Unfortunately, by that time, there is already fibrosis and changes are controllable but not reversible. Phys ther often use tape measurements which can be very variable (location, tightness of tape, dominant vs non-dom arm). Water displacement works well but cumbesome. Bioimpedance is simple and reproducible but insurance won't pay. ...Read more

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Can lymphedema be fatal?

Rarely: It is impossible to give a specific answer. It would depend on what other conditions coexist with the lymphedema. Severe lymphedema could coexist with cardiovascular disease, diabetes etc. In severe caeses, ulceration , infection can occur and lymphedema can become permanent. ...Read more

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How can I prevent lymphedema?

Most: Most lymphedem a is due to surgery that scars or eliminates lymphatic. Sometimes this is necessary as part of cancer surgery. Other lymphedem a can be from a parasite and it can be contracted by barefoot walking or insect bytes. ...Read more

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What exactly is primary lymphedema?

Not an identifiable: Cause. As dr. Rosen said, most lymphedema is secondary, meaning it is due to something like surgery and/or radiation. Primary lymphedema is divided into three categories: congenital lymphedema, lymphedema praecox, and lymphedema tarda. Congenital means you are born with it and a small group of these are hereditary. Praecox develops before age 35 (most have this) and tarda develops after 35. ...Read more

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Will underarmour be using for lymphedema stage 1?

Not quite effective: Underarmour are nice athletic garment that provide some compression. They dont quite provide enough compression to control even early lymphedema . They would be of some help but they would not be of sufficient compression to be completely effective. Good thinking though. ...Read more