Doctor insights on:
Lymphedema Capillary Leak
A family member was diagnosed with "capillary leak syndrome" thru mayo clinic- what is that? How does one get it ? Can they do much to help?
Genetic, very rare.: Clarkson's disease is what it is called. It is a very rare genetic mutation. It causes episodes of fluid leaking out of the blood vessels into the tissue. This can lead to low blood pressure, passing out or damage to organs from the low bp, even death. Need to see a specialist in this! https://en.Wikipedia.Org/wiki/capillary_leak_syndrome http://www.Ncbi.Nlm.Nih.Gov/pmc/articles/pmc2947962/. ...Read more
It can: Early lymphedema can pit, which is one of the reasons why it can be hard to diagnose in its early stages. This is especially true if there is also some component of venous insufficiency associated with the lymphedema. Later stages of lymphedema are associated with tissue fibrosis which has lost its ability to be able to pit. ...Read moreSee 2 more doctor answers
Depends: The answer to this question depends on the cause of the lymphedema. Many forms of lymphedema are secondary to some other problem. Once the primary problem is resolved then the lymphedema is resolved. It is best to seek the opinion of a physician with special interest in lymphedema. ...Read moreSee 1 more doctor answer
Lymphedema : Where is your lymphedema ? Without knowing this i can only speculate but there is increased fluid volume in the body when you are pregnant. If you use compression garment for your arm for instance this may need to be changed to a different size to accommodate if there is an increase. ...Read moreSee 2 more doctor answers
Clinically usually: Lymphedema occurs when a clear fluid known as lymphatic fluid builds up in the soft tissues of your body, usually in an arm or leg. Diagnois is best made clinically in at risk patients. For example, swelling on the legs and esp. The top of the feet is a classic sign. Tests that may be ordered include ultrasound, ct scans, and MRI but they are done to rule other other diagnosis's. ...Read moreSee 2 more doctor answers
The same for all: Whether male or female, treatment is the same. The mainstay is decongestive therapy as dr. Brown said. This includes elastic compression stockings, non-elastic circ-aids garments, sequential compression devices, lymphatic drainage/massage, diet and exercise. A great source of info is lymphnet.Org, as dr. Wagner said. ...Read moreSee 2 more doctor answers
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