Doctor insights on:
Lupus Pernio Treatment
Skin sarcoidosis!: Lupus perneo is a manifestation of sarcoidosis, usually seen in chronic disease. Intra-lesional steroid injections can help, as can systemic therapy. Sarcoidosis is an autoimmune disease that can affect many organs, but more common and serious, the lungs. This disease needs rheumatologic management. The new tnf-alpha inhibotrs seem to work quite well, although this is off-label use! ...Read more
Many!: Many options, depending on severity and your current treatment. Pulsing IV steroids at high dose, cellcept, (mycophenolate mofetil) benlysta, azothioprine, cyclophosphamide, azothioprine, Methotrexate are all options, alone or in combination. Your treatment should be coordinated by someone in rheumatology and/or nephrology! ...Read more
Please be specific: Which part of the body is swelling? Your legs? Your joints? The treatment will depend on location and cause of it. ...Read more
See below: Posterior reversible encephalopathy syndrome is characterized by headache, confusion, seizures, visual loss and M.R.I. showing characteristic lesions. It is seen in lupus and treatment is treatment of lupus, treatment of coexisting hypertension, and treatment of kidney failure or eclapsia if it exists. You should be and probably are in the good hands of a Rheumatologist, Neurologist and others. ...Read more
I'm just wondering, if you have lupus and sarcoidosis and you refuse treatment. How long could you live for?
It depends: It depends on the organ involvement. Talk to your rheumatologist who knows your case best and he or she could give you a better estimate. ...Read more
Is it normal w/lupus that even if treatment is working, most days are good, &labs look good to still get occasional bad days related to condition? Why?
Not enough info: What do you mean by bad days and what specific issues do you mean? But yes, there can be occasional days with increased symptoms even if the control is otherwise good. ...Read more
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