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Doctor insights on: Lupus Melaleuca Vitamins

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Ok turmeric and ala don't work - what are alternative OTC vitamin/herbs good for lupus to go with my medications :)?

Ok turmeric and ala don't work - what are alternative OTC vitamin/herbs good for lupus to go with my medications :)?

None, but...: There aren't any otc herbs, vitamins, or supplements that treat lupus, but that may be a good thing. Once a person has lupus, she has an autoimmune disease. Her immune system is no longer working right. However, it would be quite frightening if companies were selling over-the-counter herbs, vitamins, or supplements that were strong enough to alter the function of people's immune systems. ...Read more

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Is it ok to take vitamins with lupus if so what kind is good for a 36 year old woman?

Is it ok to take vitamins with lupus if so what kind is good for a 36 year old woman?

Yes but: Unless you have a vitamin deficiency I am uncertain they will change things musch. Since you may be styaing out of the sun you may be gettign a vitamin d insufficiency and this needs to be corrected. Ask your physician if you are low in vitamin d. I general vitamin can also be helpful. ...Read more

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I have lupus. Should I take vitamin D, since I can't be in the sun?

I have lupus. Should I take vitamin D, since I can't be in the sun?

You can.: It is genrallly not needed if you are eating a normal diet and using vitamin supplements as you have noted. If you feel you must have your doctor order a vit d level first. ...Read more

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I stop taking all medications for lupus I am now only on vitamins an supplements what vitamins would be best?

I stop taking all medications for lupus I am now only on vitamins an supplements what vitamins would be best?

Lupus: Sle is a very serious condition that can cause organ failure and death. Understand possible aversion to medication but serious repercussions to stoping tx. Multivitamin ok but discuss treatment with physician. ...Read more

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Lupus is making my hair fine... Is there any vitamin I can take to help with my hair n my skin. .. I was taken plaqunil for yrs & are of them now?

Lupus is making my hair fine... Is there any vitamin I can take to help with my hair n my skin. .. I was taken plaqunil for yrs & are of them now?

See below: Plaquenil (hydroxychloroquine) is probably the best treatment. You may want to seek assistance from a dermatologist to see if there are other options. ...Read more

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I have lupus Is there any vitamin/pills I should take when trying to conceive & make sure my baby is healthy & safe from the meds I take for my lupus?

I have lupus Is there any vitamin/pills I should take when trying to conceive & make sure my baby is healthy & safe from the meds I take for my lupus?

Pregnancy with lupus: If you conceive, you need to follow up closely with your obstetrician and your rheumatologist throughout pregnancy, some lupus medicines would be modified, you will be taking regular vitamins and folic acid like all others, and the pediatrician should know / attend delivery, examine and observe baby in first 24-48 hours, wish you wellness and a healthy baby ...Read more

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New lifestyle-supporting my body with non-gmo food/exercise and suppliments. Are newchapter vitamins good? Wanted a non-gmo brand. *battling lupus/pots

New lifestyle-supporting my body with non-gmo food/exercise and suppliments. Are newchapter vitamins good? Wanted a non-gmo brand. *battling lupus/pots

Yes! Also...: Congratulations! I believe anyone wanting optimal health should avoid gmo's but as you are learning, it's not easy! Even most supps contain gmo's; new chapter is gmo-free ; makes quality products- for a list of others see http://www. Nongmoproject. Org/find-non-gmo/search-participating-products/? Catid=25
i also like the synergy company, not on that list.
Also see http://bit. Ly/19xax7e re: gmo's. ...Read more

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Can a vitamin d deficiency be mistaken for lupus?

Can a vitamin d deficiency be mistaken for lupus?

Not likely: Lupus has very specific symptoms such as rash, , fever, arthritis, hair loss, mouth sores, fatigue, and raynauds. There are some blood tests that may help with the diagnosis of lupus. Vitamin d deficiency is generally caused by inadequate sunlight exposure and is diagnosed by a blood test. ...Read more

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My ANA was positive and my vitamin D count is 14, do those results always mean Lupus?

My ANA was positive and my vitamin D count is 14, do those results always mean Lupus?

Need more info: ANA (anti-nuclear antibody) may suggest sLE if high titer, usually a dilution of 1:320 or higher plus appropriate symptoms and other tests such as an elevated erythrocyte sedimentation rate (ESR). Low titers of ANA occur in 10% of normal females, even higher over age 60 without any disease. The lowest normal level of vitamin D is 30 and is not a test involved in the diagnosis of sLE. ...Read more

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Have lupus and have to avoid the sun due to photosensitivity. My vitamin D level was 21. Is that low enough to cause any noticable symptoms?

Have lupus and have to avoid the sun due to photosensitivity. My vitamin D level was 21. Is that low enough to cause any noticable symptoms?

You are just 39: You will develop osteoporosis as you age. You need to see your doctor and get on vit d and calcium to get that level up and protect your bones. You also need a healthy diet and exercise. Daily. ...Read more

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Can an ANA test be negative and an Dsdna test be undetermined and I still have lupus? Also my vitamin d was low. I have all other symptoms of lupus.

Possible yes: Still you should be evaluated by a rheumatologist to make that decision. ANA testing if negative most of the time (even more than 90 %) means that you will not have lupus, but they are many other autoimmune disorders that may mimic lupus which further testing and evaluation is needed. Again getting to see a rheumatologist would be the best answer to all of these questions. ...Read more

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Can you have vasculitis even if your urinaysis, all lupus and sjogren's blood test came back normal? Only C3 and vitamin B12 is low. I have patechiae

Can you have vasculitis even if your urinaysis, all lupus and sjogren's blood test came back normal? Only C3 and vitamin B12 is low. I have patechiae

Yes: There are numerous types of vasculitis and some only involve the skin. See a dermatologist. A diagnosis of vasculitis can be confined or ruled out by a simple skin biopsy. ...Read more

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Having lupus, taking vitamin C makes me sick. I am 6 weeks pregnant, and cannot take a regular prenatal vitamin. What do you recommend?

Having lupus, taking vitamin C makes me sick. I am 6 weeks pregnant, and cannot take a regular prenatal vitamin. What do you recommend?

How?: Just wonder what kind of reaction you had with vitamin c. Have you actually tried prenatal vitamin to see if it also bothers you? I agree that a healthy diet would be the answer but I also wonder why vitamin c made you sick (acidic)? ...Read more

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Can a low vitamin D of 21 cause symptoms? I hear conflicting things on this. I also have controlled lupus &autonomic dysfunction. I fatigue easily.

Can a low vitamin D of 21 cause symptoms? I hear conflicting things on this. I also have controlled lupus &autonomic dysfunction. I fatigue easily.

Unlikely: While vitamin D level of 21 is lower than the optimum, it is not likely to be the cause of your symptoms. You may take 2000 units of vitamin D3 daily,
For good health - Have a diet rich in fresh vegetables, fruits, whole grains, milk and milk products, nuts, beans, legumes, lentils and small amounts of lean meats. Avoid saturated fats. Drink enough water daily, so that your urine is mostly colorless. Exercise at least 150 minutes/week and increase the intensity of exercise gradually. Do not use tobacco, alcohol, weed or street drugs in any form.
Practice safe sex. ...Read more

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I have fibromyalgia and two heart conditions, plus I am B12 and vitamin d and iron deficient, can this be connected with lupus?

I have fibromyalgia and two heart conditions, plus I am B12 and vitamin d and iron deficient, can this be connected with lupus?

No: People with fibromyalgia can have lupus as well, but the conditions are separate and distinct. The heart issue and vitamin deficiencies are also not related. ...Read more

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Is it safe to take b complex vitamin and a hair skin And nail vitamins with lupus and irregular heart beat?

Is it safe to take b complex vitamin and a hair skin And nail vitamins with lupus and irregular heart beat?

Yes, perfectly safe: The only vitamins that can be toxic are Vitamins A, D, E and B6. One has to take massive doses of A, D & E to become toxic. One should avoid more than 250 mg a day of B6 but the combined amount in your vits is likely well below that.
I advise those with irregular heartbeats to take at 250-400 mg/day of Magnesium Taurate; your vits probably have little magnesium. Hawthorne extract may also help. ...Read more

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Why would a rheumatologist prescribe Fosamax, plaquenil, calcium with vitamin d for systemic lupus? Is this the right treatment for moderate lupus

Why would a rheumatologist prescribe Fosamax, plaquenil, calcium with vitamin d for systemic lupus? Is this the right treatment for moderate lupus

Not unusual but...: Placquenil is a standard treatment ; vit d is helpful in autoimmune disease ; can prevent osteoporosis (as can calcium). Those with lupus are at increased risk of osteoporosis (esp. If put on steroids) but it is questionable if Fosamax (alendronate) is helpful for preventing rather than treating it. I personally question Fosamax (alendronate) but would add vit. K- see http://bit. Ly/1a48ofs
see my comments for other ideas:. ...Read more

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Can a vitamin D level of 21 cause depression? My doctor suspects I'm depressed. I say I'm just exhausted. I can't be in the sun because of lupus.

Can a vitamin D level of 21 cause depression? My doctor suspects I'm depressed. I say I'm just exhausted. I can't be in the sun because of lupus.

Yes; easy to take D3: Low D can cause depression and fatigue and is associated with aggravation of SLE! Take 5-8000 iu of D3/day to get your levels in the 50-80 range. See http://doctormurray. Com/vitamin-d3-is-important-in-autoimmune-disorders/ and http://tinyurl. Com/zstm5u3 and http://tinyurl. Com/2chkcer
Many with lupus may have undiagnosed Lyme disease. See http://tinyurl. Com/m2eld3v and http://tinyurl. Com/zsx7eaq ...Read more

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Wbc 2.0, absolute neutrophil 0.6. Lymph are high. Negative for hiv, hep, autoimmune, lupus, vitamin b. Bone marrow biopsy yesterday. What could it be?

Wbc 2.0, absolute neutrophil 0.6. Lymph are high. Negative for hiv, hep, autoimmune, lupus, vitamin b. Bone marrow biopsy yesterday. What could it be?

Wait for bone marrow: Bone marrow biopsy was done because the cause for the symptoms and other laboratory findings was not clear. Please wait for the bone marrow biopsy results and do not be surprised, if more tests are needed even after that. ...Read more

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Urine smells like viatmins and has particles in it. I'm not on any medication at all. I do have lupus. Upper quadarants on left and right hurt.

Urine smells like viatmins and has particles in it. I'm not on any medication at all. I do have lupus. Upper quadarants on left and right hurt.

Warrants a visit: To your doctor, for evaluation of your kidneys, Urinalysis and other blood tests may be needed, meanwhile please push oral fluids to flush your urinary tract, and painkillers, but see your doctor ASAP, best wishes ...Read more

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What;s the best pain medicine for lupus patients?

What;s the best pain medicine for lupus patients?

Acetaminophen NSAIDS: For symptom relief of pain you can use Acetaminophen or NSAIDs like Ibuprofen or o Naprooxen or Cox 2 Celebrex
Along wih Antimalarials (Hydroxychlroquin) and low dose steroids ...Read more

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Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Not sure, I don't: Think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out. ...Read more

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My hemoglobin is always slightly low (in the 10's all the time) my RDW is always high, every other lab normal- is this related to lupus?

My hemoglobin is always slightly low (in the 10's all the time) my RDW is always high, every other lab normal- is this related to lupus?

May be: Lupus is reaponsible for several types of anemia. Chronic disease, iron deficiencymhemolysisn. Your dr needsnto study the type of anemia you have and givebthe proper therapynor find out what isbthe reason fornthe anemiantomunderstand what is going on. ...Read more

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Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Inflammation: Lupus and the pre-menstrual phase of the cycle are both known for being states of increased inflammation, so it makes sense that you might have this and notice it during your menstrual cycle. I would speak with your rheumatologist regarding medications that are safe to take to diminish the flare symptoms, as some anti-inflammatories are harmful for kidneys. Best of luck. ...Read more

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Iam an S.l.e Lupus patient, & I want to try suppliments, With my workouts such as, Karbolyn xr3, stance bcaa, gluamatic. Will it cause harm to my body?

Not worth it: There is no scientific proof that these supplements are beneficial for your SLE but there are unknown risks which may be harmful. I'd advise against taking this step. ...Read more