Top
20
Doctor insights on: Living With Lupus

Share
1

1
Living with lupus can be hard. How can I cope?

Living with lupus can be hard. How can I cope?

Support group: The lupus foundation with local groups can be very helpful. If necessary a psychologist or even a good friend or spouse can be a sounding board just as with any potentially chronic disease. ...Read more

See 1 more doctor answer
2

2
Living with someone with lupus can be hard. How can I cope?

Living with someone with lupus can be hard. How can I cope?

Difficult world....: When someone close is sick, communication between the healthy person and the sick person becomes strained, because the well-person feels the sick person is overburdened. The best answer is to sit down and have a straight discussion over feelings. Do not the sick person take you on a guilt trip, for which you are not responsible. ...Read more

See 1 more doctor answer
3

3
How difficult is it living with lupus?

How difficult is it living with lupus?

Not easy;can do well: There is no cure for lupus currently so the goal of treatment is to put it into remission (quiet with no active symptoms or abnormal labs) and control flares of disease when they happen as quickly as possible. Most important is to see a board certified rheumatologist on a regular basis (every few weeks at first, then every few months if doing well), and take medications as prescribed by their doc ...Read more

4

4
Help please? How hard is it to live with lupus?

Under: Good guidance and care, now a days treatments are quite effective. Stick to treatments, precautions and labs. Good luck! ...Read more

5

5
What do you suggest if i had come up positive. I share some of the symptoms of lupus. How hard will my life be if I have lupus?

Not enough info: What came up positive? What symptoms do you have? Have you seen a rheumatologist? It is impossible to answer a question such as this when no specifics are given. ...Read more

See 1 more doctor answer
6

6
I was diagnosed with lupus while living in Egypt. I tried to get a diagnosis here in US but it was negative. However im sure im having a bad flare.

See a Rheumatologist: You Don, t say how they arrived at the diagnosis in Egypt or what your symptoms are or what a flare consists of. It is worth noting that the diagnosis is not made by blood test alone, but by a set of tests, symptoms and physical findings. A Rheumatogist can figure this out. A positive or negative lupus test alone is not the way to diagnose. ...Read more

8

8
What to do if I have lupus and i was wondering if nursing would be hard?

Talk to your dr: If you are planning on nursing, talk to doctor beforehand to make sure that you are not any medications that may affect your baby. ...Read more

9

9
I have lupus .. When im in horrible pain and its hard to walk .. Is that a luous flare?

I have lupus .. When im in horrible pain and its hard to walk .. Is that a luous flare?

Possibly: It certainly could be...Would definitely discuss with your doctor. Especially if the pain involves joint stiffness as well as pain. ...Read more

See 1 more doctor answer
10

10
How can I cope with lupus if i also have gad? Is it possible that i had lupus and that was the root cause for my to get gad? Or gad caused lupus?

Lupus and GAD: Gad doesn't cause lupus. Lupus doesn't cause gad. Lupus can worse the gad, though, mostly through a lot of insecurities that it brings on with it. ...Read more

11

11
I have lupus and POTs. When one is doing going, I struggle with the other. It's hard to keep up with friends. How to explain? I can't make every event

I have lupus and POTs. When one is doing going, I struggle with the other. It's hard to keep up with friends. How to explain? I can't make every event

I would be candid.: I would explain how much these people mean to you but advise them that your health some times limits what you can do with them and the time that you spend together. ...Read more

12

12
I'm from the state of Wyoming & have Lupus. My tests while living there were very high. Now live in Michigan & all come back Negative is this normal?

Unusual: However it is theoretically possible if you had far more sun exposure in Wyoming than in Michigan given that sunlight can induce LE. On the other hand, your problem may be from another autoimmune disease . If you are feeling well otherwise, no test is needed. But if you do have symptoms then I would suggest repeating the test in case there was a blood sample mix-up. ...Read more

14

14
I take medication because I have lupus. Will it be harder for me to get pregnant?

I take medication because I have lupus. Will it be harder for me to get pregnant?

No: There is no problem with fertility in women with lupus. They can conceive as easily as any woman except in about 5%, which is the infertility rate of the general population. Any problems with fertility should be investigated in both partners by an obstetrician-gynecologist who specializes in infertility. You do need to discuss the effects of your medicines on the pregnancy. ...Read more

15

15
Would you please cite some references of books etc on the subject of coping with chronic illness? I have lupus and it is hard to deal with.

Would you please cite some references of books etc on the subject of coping with chronic illness?  I have lupus and it is hard to deal with.

Books on Coping: There are many books on coping with chronic illness. I hope you have already found them! rather than simply coping, i also like to find books that give me perspective and insight. Dr. Remen's "kitchen table wisdom" is a classic, as is arthur frank's "at the will of the body." for couples, kivowitz and weisman's "in sickness as in health" is also packed with info and wisdom. ...Read more

See 2 more doctor answers
16

16
Lupus are the flu its hard to tell when yoy have lupus?

Lupus are the flu its hard to tell when yoy have lupus?

No no no: No lupous is not flu ( virus ) it is an autoimmune disease local or systemic , if kidney not invoved the 1st time and then they are not . Bad immune system is active its like wolf skin as connective tissue is involved . Immunologist and rheumatologist work hand in hand. ...Read more

17

17
I thought i had lupus, is it hard to find? I had a butterfly polkadotted rash on my inner thighs is it possible to have the rash there?

I thought i had lupus, is it hard to find? I had a butterfly polkadotted rash on my inner thighs is it possible to have the rash there?

Probably not.: "butterfly rash" refers to a rash shaped like a butterfly on the central face. A spotty rash on the inner thighs is most commonly a ringworm or yeast infection, but there are many other (less common) causes. Very unlikely to be lupus. Check with your doctor or a dermatologist and find out what it really is. ...Read more

20

20
Miss 1-2 days of work every month due to lupus.I'm an very hard worker but disease kicks me down.Have fmla but fear getting fired or angering boss.

Miss 1-2 days of work every month due to lupus.I'm an very hard worker but disease kicks me down.Have fmla but fear getting fired or angering boss.

You're not alone: I wish i had a more complete answer for you, but perhaps it will help you just a little but if i tell you that I have heard of this type of situation a hundred times. Perhaps the best thing is to have an honest talk with your boss. ...Read more

See 1 more doctor answer