Doctor insights on:
Living With Lupus
Not easy;can do well: There is no cure for lupus currently so the goal of treatment is to put it into remission (quiet with no active symptoms or abnormal labs) and control flares of disease when they happen as quickly as possible. Most important is to see a board certified rheumatologist on a regular basis (every few weeks at first, then every few months if doing well), and take medications as prescribed by their doc ...Read more
Difficult world....: When someone close is sick, communication between the healthy person and the sick person becomes strained, because the well-person feels the sick person is overburdened. The best answer is to sit down and have a straight discussion over feelings. Do not the sick person take you on a guilt trip, for which you are not responsible. ...Read moreSee 1 more doctor answer
I was diagnosed with lupus while living in Egypt. I tried to get a diagnosis here in US but it was negative. However im sure im having a bad flare.
See a Rheumatologist: You Don, t say how they arrived at the diagnosis in Egypt or what your symptoms are or what a flare consists of. It is worth noting that the diagnosis is not made by blood test alone, but by a set of tests, symptoms and physical findings. A Rheumatogist can figure this out. A positive or negative lupus test alone is not the way to diagnose. ...Read more
I'm from the state of Wyoming & have Lupus. My tests while living there were very high. Now live in Michigan & all come back Negative is this normal?
Unusual: However it is theoretically possible if you had far more sun exposure in Wyoming than in Michigan given that sunlight can induce LE. On the other hand, your problem may be from another autoimmune disease . If you are feeling well otherwise, no test is needed. But if you do have symptoms then I would suggest repeating the test in case there was a blood sample mix-up. ...Read more
My dsdna double strand reference was 3.45 and very symptomatic.. S this a positive for lupus how is it scored?
Possibly: this is one of the many blood tests used to diagnose lupus..you should consult your rheumatologist to have them run a full battery of tests ...Read more
This last 2 weeks feel so run down between p.O.T.S and lupus... Im 27 i want to feel normal. But i don't think ill ever be "normal" again. :/?
See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more