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Doctor insights on: Living With Lupus

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How difficult is it living with lupus?

How difficult is it living with lupus?

Not easy;can do well: There is no cure for lupus currently so the goal of treatment is to put it into remission (quiet with no active symptoms or abnormal labs) and control flares of disease when they happen as quickly as possible. Most important is to see a board certified rheumatologist on a regular basis (every few weeks at first, then every few months if doing well), and take medications as prescribed by their doc ...Read more

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Living with lupus can be hard. How can I cope?

Living with lupus can be hard. How can I cope?

Support group: The lupus foundation with local groups can be very helpful. If necessary a psychologist or even a good friend or spouse can be a sounding board just as with any potentially chronic disease. ...Read more

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Living with someone with lupus can be hard. How can I cope?

Living with someone with lupus can be hard. How can I cope?

Difficult world....: When someone close is sick, communication between the healthy person and the sick person becomes strained, because the well-person feels the sick person is overburdened. The best answer is to sit down and have a straight discussion over feelings. Do not the sick person take you on a guilt trip, for which you are not responsible. ...Read more

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I was diagnosed with lupus while living in Egypt. I tried to get a diagnosis here in US but it was negative. However im sure im having a bad flare.

See a Rheumatologist: You Don, t say how they arrived at the diagnosis in Egypt or what your symptoms are or what a flare consists of. It is worth noting that the diagnosis is not made by blood test alone, but by a set of tests, symptoms and physical findings. A Rheumatogist can figure this out. A positive or negative lupus test alone is not the way to diagnose. ...Read more

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I'm from the state of Wyoming & have Lupus. My tests while living there were very high. Now live in Michigan & all come back Negative is this normal?

Unusual: However it is theoretically possible if you had far more sun exposure in Wyoming than in Michigan given that sunlight can induce LE. On the other hand, your problem may be from another autoimmune disease . If you are feeling well otherwise, no test is needed. But if you do have symptoms then I would suggest repeating the test in case there was a blood sample mix-up. ...Read more

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My dsdna double strand reference was 3.45 and very symptomatic.. S this a positive for lupus how is it scored?

Possibly: this is one of the many blood tests used to diagnose lupus..you should consult your rheumatologist to have them run a full battery of tests ...Read more

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This last 2 weeks feel so run down between p.O.T.S and lupus... Im 27 i want to feel normal. But i don't think ill ever be "normal" again. :/?

See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more

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What;s the best pain medicine for lupus patients?

What;s the best pain medicine for lupus patients?

Acetaminophen NSAIDS: For symptom relief of pain you can use Acetaminophen or NSAIDs like Ibuprofen or o Naprooxen or Cox 2 Celebrex Along wih Antimalarials (Hydroxychlroquin) and low dose steroids ...Read more

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Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Not sure, I don't : think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out. ...Read more

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What is lupus?

Autoimmune disease: Lupus (or sle or systemic lupus erythematosus) is an autoimmune disease that can cause many symptoms including joint pains, kidney disease, rashes, blood count disturbances and more. Your doctor can evaluate if you need to be tested. ...Read more

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