Doctor insights on:
Leg Exercises For Inclusion Body Myositis
Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS?
No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo. ...Read more
A wide spectrum Pts.: This is an inflammatory muscle disease, with slowly progressive weakness and wasting of both distal and proximal muscles, most notably of the arms and legs. Because this randomly affects different people in different ways and at different rates, there is no "textbook case." there are two kinds, sporadic and hereditary. The hereditary case does not have inflammation and is thus not myositis. ...Read more
With a stick maybe?: No definitive treatment has proved effective for the sporadic form of the disease. A militaristic tough-as-nails let's-hard-nose-this-one-out how-to-beat-it when-the-going-gets-tough-the-tough-get-going attitude toward this disease will only cause greater feelings of failure and frustration down the line. Most proactive thing is to try to get into a clinical trial, see clinicaltrials. Gov. ...Read more
Ck emyograph biopsy: Ten fold increase creatine kinase enzyme, electromyography, muscle biopsy sent to neuropathologists, or human leucocyte gene assays using gene sequencing or similar tests will Narrow this down to sporadic type but this is a disease that begs more discoveries. Of course your doc needs to determine if your symptoms are those of IBM. ...Read more
Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and I wish you good luck and courage. ...Read more
What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?
Yes, see list below: First need to have the proper diagnosis. So far no single treament have been found to produce cure. They are several new drugs on trial such as etanercep9tumor necrosis factor)alemtuzumab (t-celldepleting monoclonal antibody)follistatin (antagonist of myostatin pathway)arimoclomol (heat shock protein conducer)lithium (inhibitor of the glycogen synthase kinase enzyme)needless to say you need a physician. ...Read more
Myopathy type: Ibm is atype of inflammatory myositis. It tends to affect people older than 50. People with ibm often have weakness of their upper and lower arms and legs. Sometimes the muscles look smaller known as atrophy. Unfortunately there are no treatments that are proven to help. However, patients are sometimes tried on a short course of steroids, ivig, etc. Phys therapy is extremely important. ...Read more
Have human growth hormone (hgh) or anabolic steroids ever been used to treat the symptoms of inclusion body myositis (ibm)? Why not?
Unlikely: I cannot find any reason why they would have any benefit. ...Read more
I have lupus, ra, as, inclusion body myosytis. I live in western ny. Is there a better place to live?
It depends...: Initially, rest, ice, immobilization and anti-inflammatory medications are indicated to minimize the extent of bleeding and damage in the muscle. After the initial inflammatory phase resolves, early passive and active range of motion exercises may help minimize the stiffness associated with myositis ossificans. Formal medical evaluation and a guided physical therapy program will optimize recovery. ...Read more
How can steroids cause myositis but also treat myositis? And can it cause muscle aches after two days of 10 mg predinsone? My legs are really hurting.
Steroid effects: Steroids treat myositis with their anti-inflammatory effect. They can cause muscle pain due to their effect on electrolytes—sodium, potassium, magnesium. The leg pain may be due to electrolyte imbalance. See prescribing doc; you may need temporary potassium &/or magnesium supplement to calm leg muscles. ...Read more
Have pain in my shin its myositis it was severe some months ago then there wasn't pain at all but sometimes it hurts again. Can this be treated or no?
I had myositis few months ago in my shin. Severe pains. Then it got okay. But now as the weather gets cold it is hurting again. Why do this happen?
Get eval: You need an orthopoedic eval to truly answer your question. This could range from benign problem to something systemic, but hands on eval with x ray and possibly blood work up will reveal the correct diagnosis and then treatment can prevent the next problem ...Read more
Rest: Rest, stretching and fluids.Get a more detailed answer ›
If someone has myositis does it stay in one muscle or spreads throughout the entire body? If it does spread how long would that take?
Which doctor helps with Autoimmune crossover Myositis/that affects all the body...How is a DX made and can Dystrophys, Scleroderma MCTD fall into it?
Rheumatologist: This is one you need to consult. ...Read more
Muscle inflammation: Muscle inflammation can be caused by non- infectious reasons (trauma, medications) or infectious agents such as viruses. Though many viruses can cause a myositis, better known viruses include Coxsackie. The condition affects young males (eg congestive heart failure) more than other populations, and will mostly resolve itself. Ibuprofen/NSAIDS is uses'd for pain control. Hope this helps! ...Read more
Muscle inflammation: Myosotis is an inflammatory muscle disease. There are several possible causes and the treatment depends on defining the cause. ...Read more
See below: There are 3 major approaches. One is medication which can retard further bone growth, the second is radiation of the affected area to stop bone growth and finally there is surgery to remove it often followed by radiation. Not all myositis ossificans causes problems particularly if it is not impinging on joint movement. ...Read more
Pain vs inflammation: Myalgia means pain in muscles. It may be anything from overuse or excess exercise to a viral infection. Myositis means inflammation in the muscles. This can potentially be a much more serious condition with long term health consequences. You need to be seen by a physician to determine which is present. Myositis is characterized by elevation of muscle enzymes in the blood due to the inflammation. ...Read more
See below: This is a problem that requires a face-to-face meeting with your doctor. In that meeting, your doctor will listen to you, perform a throrough examination and possibly order labs or other tests. Based on this information, he/she will be able to tell you what's wrong and what to do about it. ...Read more
I lived in a house w/ a water leak under it for 6 yrs. I have been diagnosed w/ chronic myositis. Could this b the cause?
Possible.: Chronic humidity and or allergies may cause muscle aches. But there are many other causes as well. If you can afford stay away from that environment for few weeks and see if you feel better, if not must see a doctor. ...Read more