Doctor insights on:
Joint Pain In Eds
I must have have Ehlers-Danlos syndrome (9/9 Beighton score, SEVERE IBS, joint pain, ortho intolerance, etc) but waiting lists for specialists are 1+ years long. Any advice on getting help sooner?
Natural therapies: Ehlers-danlos syndrome has no magical solution. Loose ligaments require well toned & strong-muscle compensations. The easiest form of physical exercise is aqua therapy, whereby water buoyancy negates weak muscles overwhelmed by gravity. Treatment w. non-toxic therapies of nutrition, herbs, massage, & yoga rounds out sphere of rational therapies. Prolotherapy might have place at therapeutic table. ...Read moreSee 2 more doctor answers
No: There's no such thing as a double joint. You can be extremely flexible, and folks with ehlers danlos often are incredibly flexible. This comes from laxity in the ligaments and connective tissues surrounding the joints. The joints themselves, where the bones meet, have the same number of connections as anyone else. ...Read more
Clinical diagnosis: The collagen diagnostic laboratory offers diagnostic testing for eds type IV (vascular eds), eds type vi (kyphoscoliotic eds) and eds vii (arthrochalasia). Testing for eds types i and ii (classical eds) is available elsewhere. There is presently no laboratory test available for individuals with the most common form of eds - eds type iii or hypermobility eds. It remains a clinical diagnosis.. ...Read more
Muscle strengthening: Muscle strengthening exercises are the long-term solution. Short term, recommend trying tylenol (acetaminophen) first up to 3000mg per day. If you fail that, consider an anti-inflammatory like motrin, advil, alleve. Make sure to follow instructions on bottle. Go bucks! ...Read more
Hard to tell: Neck pain and joint pain is just as common in eds as in many other non-eds causes. As far as joint surgeries go, I am not sure what kind of surgeries you had and for what reason. Definitely, eds patients have multiple joint problems (hypermobility, fractures, laxaty etc.) that makes them prone to trauma etc. ...Read moreSee 1 more doctor answer
Can a person have hypotonia and eds at the same time? I know I have hypotonia but i can also get joints out of place without trying, is that from it ?
Unlikely: It is possible but unlikely. Check with a rheumatologist or a genecist for a better answer. ...Read more
Not rare at all: Flexibility of the joints, both large and small, is common. Many normal folks have this, and so do folks with certain genetic conditions, like eds and marfan syndrome, two of hundreds of genetic conditions that feature joint hyperextensibility. Are you worried about these conditions? Bring your concerns up with your regular doctor at your next check up. ...Read more
Daughter may have ehlers-danlos syndrome and hey hypermobile joints seem to b getting worse. Could the possible diagnosis b wrong or is it normal for eds?
Keep active but safe: Hypermobility is usually best treated with an appropriately designed physical therapy program followed by dedication to low-impact aerobic activity. Hypermobility typically improves with age but depending on the patient can also present with a range of symptoms over time. Evaluation by a Rheumatologist can help although genetic testing is somewhat limited. ...Read moreSee 1 more doctor answer
Too general: Sorry, this is way too general a question...Even with specifics including your age, medical history, family history, work history, and additional answers the possible causes are many, many things...Please see your doctor to discuss your concerns! this would be like ordering pants for someone and not knowing the gender, age or size! ...Read moreSee 1 more doctor answer