Doctor insights on:
Ivig Dose For Cidp
IVIG & CIDP: IVIG is a special immune-modulatory treatment used for illnesses like myasthenia, AIDP (Guillain-Barre), and CIDP. CIDP is an illness that causes numbness and weakness by affected the nerves of the body. Trouble walking is a common problem with CIDP. It is a long-term, progressive condition that is sometimes mitigated by IVIG. ...Read more
Intravenous immunoglobulin (IVIG) is a way to provide antibodies to children with documented immune deficiencies and to treat other problems involving the immune system, such as Kawasaki disease. It has also been suggested as a treatment for children with autism spectrum disorders based on the idea that fetal brain development is related to the prenatal immune response, but there is little data ...Read more
Not necessary but:
It is not necessary to continue ivig treatment in patients withchronic inflammatory demyelenating polyneuropathy
there are other drugs like steroids, immunosuppressant drugs, plasmaphoresis and physiotherapy.
Ivig is the initial treatment. But every case is different and depends on the response to therapy. Discuss with your treating doctors what is best for you. ...Read more
I either have mmn or cidp. I get ivig 2 days a month My sensory nerves are getting better but my motor nerves aren't is there additional treatment?
YOU NEED TO KNOW: Points to emphasize: 70% respond to IVIG, it may take many months to stabilize strength, over time may be best to consider additions of Cell-cept or Imuran (azathioprine) to the IVIG, MMN is different from CIDP and needs to be specifically pinned down. If you are not improving, time for a second opinion at a nearby medical school. ...Read more
I have cidp in which ivig and steroids have failed. Is there any truth in cannabis being beneficial to my condition?
NOT TRUE: Forget marijuana or any cannabinoids, and I have NO clue where this recommendation originated. Would suggest you continue IVIG at 1 g/kg every 3 weeks and add either Imuran (azathioprine) or Cell-cept, and work closely with a neurologist who has experience in these approaches. ...Read more
My father age 70 diabitic has been diagonize with CIDP. Neuro suggest IVIG or plasmapheresis. I wanted to know which one is better for him.
This is a tough call because both options are appropriate management.
If you can, please go to a local Library and have them point you to a few books that can help you understand the options for your father's care.
All should go well. Please let me know how things go. ...Read more
See comments: Cidp is an autoimmune disorder predominantly affecting the myelin coverings of the peripheral nerves, and can readily be controlled in over 80% of people by monthly ivig (intravenous immune globulin) infusions. Life span would not be shortened if the disorder is appropriately managed. ...Read more
NOT USUALLY: Cidp differs from guillain-barre, and may well be less dangerous to life and limb. Does typically present with bilateral proximal and distal limb weakness, and some sensory problems, but cranial nerve involvement is inconstant, and respiratory compromise is unlikely, and best considered rare. ...Read more
Chronic inflammatory polyneuropathy
polyneuropathy - chronic inflammatory; cidp; chronic inflammatory demyelinating polyneuropathy
chronic inflammatory polyneuropathy involves nerve swelling and irritation (inflammation) that leads to a loss of strength or sensation.
http://www. Ncbi. Nlm. Nih. Gov/pubmedhealth/pmh0001781/. ...Read more
Not directly: Cidp affects motor nerve function, and typically does not disturb the autonomic nervous system directly. Secondary weakness or sensory issues do occur, which could interfere, and medication adverse events could influence sexual function, but most of this can be readily stabilized, allowing resumption of normal activity. ...Read more
Will address CIDP: Short for chronic inflammatory demyelinating poly-radiculo-neuritis, an immune condition of the peripheral nervous system. If you do have it, and we have seen it associated with diabetes, it should best be treated with intravenous immune globulin. Should do just fine and live a normal life if all of this is treated and controlled. ...Read more
No: Chronic inflammatory demyelinating polyneuropathy is not premalignant and I've never heard of it being a warning of hidden cancer. But it is very troublesome. Congratulations are in order for your physicians for making the call -- it is often missed. I hope that you are able to get proper care -- much is available but it is intense and costly. Good luck. ...Read more
Absolutely: You'll need to go to a4m.Com and use physician locator to find a local functional medicine doc who has training in doing this correctly by using a heavy metal challenge with captomer or similar testing. Regular blood work won't suffice. I would also suggest looking at other toxins and food allergens - anything that can lead to inflammation and/or autoimmune issues. Get going! ...Read more
To the best of my knowledge there is no research to help answer your
question, but that does not mean vitamins can't help. Cidp is an
autoimmune disease & vitamins help with similar illnesses. Autoimmune
disease is caused by a combination of genetic predisposition, environmental
toxins & infection. These must all be addressed. Please hit the tap button
below to see my comments-not enough space here! ...Read more
Nerve studies: Typically, if the history and symptoms are suspicious for CIDP, your doc will have you undergo electrodiagnostic studies like electromyography where there are specific findings that point toward confirming the diagnosis. Sometimes you will also have a lumbar puncture to study the cerebrospinal fluid and a nerve biopsy. These are all more diagnostic than blood tests. ...Read more
Can emotional trauma cause autoimmune response in your body? My son has CIDP could emotional trauma have disturbed his system?
I was declared cidp and has vit d deficiency. No heridetary. Took vit d for 7 days last year. Got relaxed. Again facing problem after a year.
What's the question?: If you meant that you took vit d3 for just 7 days for a deficiency, it would be far from sufficient. In fact it will likely take 2 months of daily 5000 u just to get you to the optimal level. Most people need about 2000 u daily as maintenance. You can buy vit d3 2000 u at about a nickel a day. ...Read more
He has been diagonized with CIDP. He cannot walk but now he. Is also getting hallucinations. Is Hallucination something to do with his CIDP problem?
A support forum: Reading this and perhaps using the forum to ask more may help. It seems this can happen to others too. I hope this helps. It must be difficult. Https://forum. Gbs-cidp. Org/topic/hallucinations/ ...Read more
How does one differentiate between MS and cidp? I have cognitive/emotional deficits, but my neuro says cidp is inconsistent with those symptoms. True?
MS or CIDP?:
Yes, that is true. CIDP would not cause cognitive or emotional deficits.
CIDP should cause diminished reflexes, numbness or weakness in a distribution affecting lower legs and hands, and can be found by nerve conduction testing.
MS may cause a variety of symptoms, and is often found by brain MRI testing and spinal tap. ...Read more
The dr. Is having to hard time with my sodium level being critically low and the vit. D level too low. I have cidp (nerve disease) and diagnosed 1984?
Relapsing Neuropathy: CIDP or chronic inflammatory demyelinating polyneuropathy is an autoimmune disease with antibody attack on peripheral nerve causing weakness and sensory problems. Relapses and attacks have been reported. Condition is treated with IVIG (intravenous gamma globulin). Usually pain is not a common symptom. ...Read more
It Can Yes: CIDP or chronic demyelinating polyneuropathy damages the bodies nerves and as the nerves heal it can hurt. ...Read more
There should be:
Cidp is fairly common.
But there must be some who specialize in treatment of this. ...Read more
My son has CIDP. He's now disabled. What is longterm prognosis? Steroids worked but it came back. Infusions didn't work. Now on mycophenelate. Worried
Prognosis in CIDP is: Variable; factors with some degree of predictive value include type of onset, symmetrical vs. Asymmetrical symptoms, distribution patterns of demyelination, axonal loss & loss of upper motor neurons. Best take him to a CIDP Center of Excellence in London or Birmingham. Access information, support, UK & local resources on www. Gbs-cidp. Org, the GBH-CIDP Foundation International's website. ...Read more
See below: Actually, look at it a little differently. Forget herpes, which has no known association with cidp, but if an anti-gm-1 test is done and there is elevation of igg, not igm, this would alter the diagnosis to multifocal motor neuropathy (mmn), which is a similar disorder to cidp, but may be handled differently in some cases. ...Read more
My son was diagnosed with cidp 5 years ago and now has a white blood cell count over 25. What does this mean?
This is not due to cidp. He probably has an occult infection superimposed.
This is most likely bacterial. ...Read more
My son was diagnosed with cidp 7 years ago and now has a white blood cell count over 25. Could these be related?
CIPD: CIPD is not associated with high WBC. High WBC could indication infection. You might want to check with your physician about this. ...Read more
What do you suggest if my son was diagnosed with cidp 7 years ago and now has a white blood cell count over 25 is this related?
Not Likely: CIDP is certainly a scary, painful, and difficult disease to get through, but it is caused by your body attacking the lining of the nerves with antibodies. Elevated WBC counts can be from anything like illness to leukemia. If the WBC count id 25, 000 persistently the more testing needs to be done, but if it went up to 25K during an illness and then was normal again don't worry. ...Read more
My son has CIDP and is on mycophenelate morvil and steroids. Have had immunisation appointments through for him. Is it safe? He's 15 years old.
No live vaccines: Avoid live vaccines while under treatment with immunosuppressants, ask his doctor about the vaccines whether they are live (e.g. MMR vaccine), other vaccines are safe to administer, might not fully benefit from them, but he won't be harmed. His treating doctors are aware, wish you both wellness ...Read more
1. What percentage of the time does cidp or gb present without significant associated muscle weakness. 2. How can cidp or gb effect smooth muscle.?
See below: Commonly gbs starts with numbness and tingling that is bilateral and starting at the toes (variants of the disease differ in symptoms). Weakness has to be present for it to be gbs. Cidp is less predictable: weakness may not be present for a couple years. In these diseases peripheral nerves are stripped of myelin (the coating that allows for nerve transmission). Smooth muscle is not affected. ...Read more
Diagnosed at 29 with severe osteoarthritis and fibromyalgia. Lyrica (pregabalin) 150 bid. Think I have autoimmune disorder, and possible cidp. Is this possible?
Absolutely: It would seem unusual to have a 29 yo with severe osteoarthritis and so you definitely could have more of an inflammatory arthritis, many of which fall in the category of autoimmune disorders. A more detailed history, exam, and appropriate test can usually establish the diagnosis. Thank you for you question. ...Read more
A friend had chronic demyelinating polyneuropathy (cidp), then got chronic lymphocytic leukemia 2 years later. Is cidp paraneoplastic syndrome sometimes?
Not likely: Chronic inflammatory demyelinating polyradiculopathy (cidp) is almost always an autoimmune condition incited by some antecedent infection--c. Jejuni, ebv, cmv, or another infection. Antibodies produced against the virus/ bacteria/ pathogen cross-react with the myelin sheath on the nerve roots, first causing guillain-barre (aidp), then later cidp. It's exceedingly rare that cancer could cause this. ...Read more
No reflexes anywhere but diagnosis MS 2001. Now severe neuropathy plus sjogrens etc. Docs think cidp plus ms. Important to differentiate the 2? How diagnosis cidp.
Pt with small fiber cidp in lvl 8-9 pain, bed bound, pain meds are maxed, neurologists have given up, pain mgtmt tried it all; is leg amputation opt?
Hang in there: Maybe you think you have been fully treated, but that may not be so. In many cases, infusions of intravenous Immune Globulin monthly, have turned the tide. Chronic steroids might also be an option. There are a limited number of causes for small fiber neuropathy, and treating the underlying cause might be useful. Might seek additional opinions from neurologists in scottsdale or at mayo, arizona. ...Read more
What is the genetic component to autoimmune disease? I know someone with 6 people in their family with them...& all are neurological. Ms. Cidp...Etc.
Multiple sclerosis: Good question. Many autoimmune disorders have a prominent genetic predisposition with variable degree of inheritance. We believe most of those conditions require a dual trigger: one being the genetic predisposition and the other some type of environmental trigger (viral infection) that starts the immunological reaction. ...Read more
My son has CIDP on cellcept and steroids. He has very loose stools sometimes with blood. Every few minutes sometimes. Stool was white and lumpy today?
CIPD: If you are referring to chronic inflammatory demyelinating polyneuropathy, this is felt to be an autoimmune disease and the use of immunosuppressive agents such as CellCept our standard. In addition to effects on the blood count, there may be some associated GI side effects. I recommend talking with your neurologist. ...Read more