Top
40
Doctor insights on: Is Idiopathic Hypersomnia A Disability

Share
1

1
I'm always tired. Should I get tested for hypersomnia to count as disability?

I'm always tired. Should I get tested for hypersomnia to count as disability?

Hypersomnia: May occur with or without long sleep time (> or < 10 hrs). Total
sleep may be over 12-14 hours.
• naps generally long and unrefreshing. Sleep inertia common. Need
help waking up.
• mslt shows average sleep latency < 8 min and < 2 sorems.
• prevalence ~1: 20, 000
• onset usually around age 10-30, develops over several weeks,
then stable, resolves in 25%
CSF hypocretin normal, but histamine may be. ...Read more

Idiopathic (Definition)

An idiopathic medical condition is one of unknown or obscure cause. In some conditions, there may be known causes as well. For example, themajority of glaucoma cases are idiopathic (unknown cause), but there are some cases related to eye ...Read more


2

2
I have been diagnosed with idiopathic hypersomnia. Adderal is not consistently effective. Why? Is there something else more effective?

I have been diagnosed with idiopathic hypersomnia. Adderal is not consistently effective. Why? Is there something else more effective?

Right for you: The most effectiveedicstion is the one that works for you. Every human is truly an individual. Talk with your doctor about how the Adderall (dextroamphetamine and racemic amphetamine) is working for you. We are here to help you. ...Read more

3

3
What is idiopathic hypersomnia?

What is idiopathic hypersomnia?

Sleeping too much: Idiopathic hypersomnia defines a condition in which a person may sleep too much without a known cause. ...Read more

4

4
What causes idiopathic hypersomnia?

IdiopathicHypersomni: May occur with or without long sleep time (> or < 10 hrs). Total
sleep may be over 12-14 hours.
• naps generally long and unrefreshing. Sleep inertia common. Need
help waking up.
• mslt shows average sleep latency < 8 min and < 2 sorems.
• prevalence ~1: 20, 000
• onset usually around age 10-30, develops over several weeks,
then stable, resolves in 25%
CSF hypocretin normal, but histamine may be. ...Read more

5

5
I live with my parent's because of medical expenses. Neither seems to understand Idiopathic Hypersomnia at all and will not research it. What to do?

I live with my parent's because of medical expenses. Neither seems to understand Idiopathic Hypersomnia at all and will not research it. What to do?

Ideopathic means: That the cause of your excessive sleeping has not been discovered yet, as you may know. Please seek a second opinion if you have not done so. Consider side effects of medication, depression, poor diet, as factors. Peace and good health. ...Read more

7

7
Is nuvigil effective for idiopathic hypersomnia?

Yes: Nuvigil is a central nervous system stimulant and can be effective for hypersomnia (sleepiness) of any origin including idiopathic hypersomnia. The response to Nuvigil is different in different individuals. ...Read more

9

9
Can you have "idiopathic insomnia with physiological hypersomnia"?

Can you have "idiopathic insomnia with physiological hypersomnia"?

Insomnia: Yes. Oftentimes insomnia can cause or be effect of hypersomnia conditions. Caution because idiopathic insomnia is very rare and may be the effect of another underlying sleep disorder specifically if hypersomnia is present. If concerned please contact your pcp or sleep specialist because formal testing can be very helpful to weed this out and is generally not done in people with only insomnia. ...Read more

10

10
If a sleep neroligist diagnoses idiopathic hypersomnia from sleep study, what would be the likely prognosis? Is there anything to make it better?

If a sleep neroligist diagnoses idiopathic hypersomnia from sleep study, what would be the likely prognosis? Is there anything to make it better?

Hypersomnia: There is criteria to classify different hypersomnia---
if narcolepsy and similar condition ruled out, you can be DX idiopathic hypersomnia, respond good to treatment, Ritalin (methylphenidate) better than provigil
j clin sleep med. 2009 dec 15;5 (6):562-8.
Idiopathic hypersomnia: clinical features and response to treatment. ...Read more

11

11
I had daytime sleep study. Diangosis idiopathic hypersomnia. I have cataplexy. How can I not have narcolepsy if it says you have it if you have cataplexy.

Narcolepsy: If someone strictly goes by textbook then you have to have two sorems on mslt. You can test for your orexin levels, and repeat sleep study with mslt and mwt in a university sleep lab. ...Read more

12

12
I have had idiopathic hypersomnia for years. OSA negative. Was prescribed Nuvigil, insurance denied it. Am on 20 mg Adderall, (dextroamphetamine and racemic amphetamine) but still fall asleep during the day for HOURS. Wake up feeling awful-HELP?

I have had idiopathic hypersomnia for years. OSA negative. Was prescribed Nuvigil, insurance denied it. Am on 20 mg Adderall, (dextroamphetamine and racemic amphetamine) but still fall asleep during the day for HOURS. Wake up feeling awful-HELP?

May be on wrong dose: If the adderall (dextroamphetamine and racemic amphetamine) that you take is a tablet, then it is only designed to last 4-6 hours. So if your mornings, are super and alert but the afternoons are sleep city then you should visit with your doctor about either an xr capsule that lasts 10-12 hours or adding a second tablet about lunchtime. Nuvigil is still the rx of choice, so if your dr submits a PA with a dx of narcolepsy and the sleep study, ...Read more

14

14
Does Adderall (dextroamphetamine and racemic amphetamine) work for idiopathic hypersomnia?

Does Adderall (dextroamphetamine and racemic amphetamine) work for idiopathic hypersomnia?

It might: Stimulants are often used to help treat disorders of excessive sleep. One potential difficulty is the possibility of becoming tolerant to the effects over time. I would recommend you seek out a sleep disorder clinic and let them guide in with respect to best treatment practices. ...Read more

16

16
Can idiopathic hypersomnia diagnosis by sleep study respond to anything besides stimulants & sleep hygiene? Anything off label? Foods? Research being done?

Can idiopathic hypersomnia diagnosis by sleep study respond to anything besides stimulants & sleep hygiene? Anything off label? Foods? Research being done?

Hyersomnia: In case of hypersomnia, the overnight sleep study is not enough alone, another study called mean sleep latency testing is needed to evaluate the severity of hypersomnia and to rule out narcolepsy.
If you were told that you have idiopathic hypersomnia, I presumed that you had already mslt and narcolepsy was ruled out, anyhow stimulants, sleep hygiene modulation and regular exercise are the best. ...Read more

17

17
Took sleep test, diagnosed w/ idiopathic hypersomnia. Take Adderall (dextroamphetamine and racemic amphetamine) & Nuvigil. Any suggestions for how to improve wakefulness w/o more meds?

Great question!: You may consider using vitamin B12, sublingually (under the tongue) Nuvigil is a stinulant used for excessive sleepiness. What is the cause of your sleepiness? Adressing the underlying problem is usually the best option.
Good luck! ...Read more

18

18
How do I know if I have hypersomnia?

How do I know if I have hypersomnia?

Sleeping too much: Hypersomnia... Too much sleep. An average night sleep can vary but will be between 6-8 hours/night. The best way to know if you have hypersomnia is to keep a sleep log. There can can be variations of normal. If you find that you are above the normal range, see a sleep specialist (usually a pulmonary doctor) in your area to discuss. ...Read more

19

19
Intermittent hypersomnia, what can I do?

See a sleep spec: Intermittent hypersomnia describes uncontrollable sleepiness (sleep attacks) for unclear reason. You would want to rule out any number of conditions that could contribute. ...Read more

20

20
What to do if I have the problem of hypersomnia?

See your physician: For evaluation. Sometimes a sleep medicine consultation ; sleep study may be indicated. ...Read more

21

21
I am suffering from hypersomnia..... What should I do?

I am suffering from hypersomnia..... What should I do?

Sleepiness: Please do a sleep study to rule sleep apnea or sleep related disorders
also rule out depresssion also
rule out medical causes as well. ...Read more

22

22
What else can I do to diagnose the cause of my hypersomnia?

It is imperative: That you get blood tests and maybe repeat your Sleep lab ...Read more

23

23
Do I suffer from hypersomnia if I can't get out of bed in the mornings?

Sleep inertia: No you do not suffer from hypersomnia if you have a difficult time getting out of bed in the morning. Hypersomnia is just the medical terminology for a state of excessive sleepiness and is not a diagnostic term. It is actually normal to have a difficult time getting out of bed in the am and to feel sluggish for the first 30-45 minutes. This is known as sleep inertia. ...Read more

24

24
What to do if I have hypersomnia in a 18 month old?

Why?: Why do you think your son/daughter has hypersomnia? He/she is very young and children have varying sleep needs at this age. ...Read more

25

25
Where do I go for a hypersomnia treatment?

Hypersomnia.: I would suggest you start with your family physician. You can get a sense if you are excessively sleepy, by completing an epworth sleepiness scale which you can get online. Take this with you to your doctor. He/she can determine if a referral to a sleep specialist would be indicated. ...Read more

26

26
What to do if I have hypersomnia, which doctor should I consult?

What to do if I have hypersomnia, which doctor should I consult?

You can start with: Your primary physician. That doctor will evaluate and determine if you need further referral (i.e., sleep specialist, ent, endocrinology, etc.). ...Read more

28

28
What to do if I have hypersomnia (eds) and lethargy?

What to do if I have hypersomnia (eds) and lethargy?

Work up: Sounds like you need to have a workup done for sleep apnea. See your Family Doctor about getting a sleep test. ...Read more

29

29
What could be a cause of hypersomnia?

Hypersomnia: Could be primary or cause unknown
could be secondary due to
sleep apnea
narcolepsy
plms
rls
etc. ...Read more

30

30
What are the symptoms of hypersomnia?

What are the symptoms of hypersomnia?

Hypersomnia: Is excess sleep beyond normal daily requirement. ...Read more

31

31
What medications are good for hypersomnia?

Stimulants: Primary or idiopathic hypersomnia is treated with stimulants such as the ones used for the treatment of ADD
as well as other meds like Nuvigil, ...Read more

32

32
What medications are good for hypersomnia?

Many: Any of the psychostimulants: Adderall, Methylphenadate, Dexedrene, Vyvanse, (lisdexamfetamine) Stratttera or Nuvigil or Provigil. ...Read more

33

33
What are the symptoms that accompany hypersomnia?

It Is a symptom: Hypersomnia (sleeping too much) is itself a symptom of many illnesses ranging from depression to under active thyroid, anemia, narcolepsy, sleep apnea, anemia, and many others. ...Read more

34

34
What is the definition or description of: Hypersomnia?

Sleeping too much.: Normal sleep is between six and ten hours in a 24 hour cycle. With age, the period of sleep typically lessens. Youth need more sleep, particularly babies and teenagers. Studies suggest that regularly sleeping less than six and more than ten hours correlates with shortened lifespans. If this is your case, see your MD, for starters (and do some research). ...Read more

35

35
What are the causes of recurrent hypersomnia and the detection methods for causes pls? Thanks

See sleep specialist: Hypersomnia can be caused by other sleep problems, such as sleep apnea or narcolepsy. It can also caused by dysfunction of the autonomic nervous system as well as drug or alcohol abuse, brain injuries, head trauma, brain tumors, or physical problems can also cause hypersomnia. Obesity, epilepsy, encephalitis, or multiple sclerosis can cause hypersomnia as well. Please see a sleep doctor for workup. ...Read more

36

36
Can OCD cause hypersomnia?

Resource hogs: Emotional and mental disorders are the gas guzzlers of the body's systems. OCD can be one of the worst - so you might be generally exhausted. Also, if you (fortunately) don't suffer nightmares, sleep might be a refuge from the bullying that OCD can do. I'd prefer to phrase it that your response to OCD symptoms cause it - not OCD (as if IT was more than a diagnostic term.) A specialist CBT may help ...Read more

37

37
Think I could be suffering from mild hypersomnia if I like to nap every afternoon?

Sleepiness: Depends on your age, in the mid fifties or so, an afternoon nap is a good recharger. Get your self screened with a good physical and depression screen availiable from your family doc. ...Read more

38

38
How much sleepiness is hypersomnia?

Tired all the time: Hypersomnia is marked by an increased need for sleep and feeling unusually tired all the time. Symptoms may include being tired all the time, the need for daytime naps, and feeling drowsy, despite sleeping and napping. If you consistently feel drowsy during the day, talk to your doctor. ...Read more

39

39
What symptoms are shared by both ADHD and hypersomnia?

Focus&concentration: For different reasons both have poor focus and concentration, the frontal lobe does not show much activity in each. In hypersomnia poor activity is due to general overall lethargy and in adhd poor focus and concentration is more of a specific and directly measured by pet scan frontal lobe inactivity, most likely due to an inherited genetic predisposition. ...Read more

40

40
Can anxiety alone cause hypersomnia?

Can anxiety alone cause hypersomnia?

See below: Anxiety tends to interfere with sleep. That said, an exhausted person would have hypersomnia after a while. ...Read more

Dr. David May
80 Doctors shared insights

Excessive Daytime Sleepiness (Definition)

Excessive daytime sleepiness can affect 20% of people with symptoms of feeling sleepy (& possibly experiencing low energy level) which can occur even when ...Read more


Dr. Parham Gharagozlou
183 Doctors shared insights

Hypersomnia Disorder (Definition)

The condition of excessive sleepiness. It can be due to a number of conditions, including depression, an underactive ...Read more