Top
20
Doctor insights on: Is Idiopathic Hypersomnia A Disability

Share
1

1
I'm always tired. Should I get tested for hypersomnia to count as disability?

I'm always tired. Should I get tested for hypersomnia to count as disability?

Hypersomnia: May occur with or without long sleep time (> or < 10 hrs). Total sleep may be over 12-14 hours. • naps generally long and unrefreshing. Sleep inertia common. Need help waking up. • mslt shows average sleep latency < 8 min and < 2 sorems. • prevalence ~1: 20, 000 • onset usually around age 10-30, develops over several weeks, then stable, resolves in 25% • CSF hypocretin normal, but histamine may be. Read more

Idiopathic (Definition)

An idiopathic medical condition is one of unknown or obscure cause. In some conditions, there may be known causes as well. For example, themajority of glaucoma cases are idiopathic (unknown cause), but there are some cases related to eye ...Read more


2

2
I have been diagnosed with idiopathic hypersomnia. Adderal is not consistently effective. Why? Is there something else more effective?

I have been diagnosed with idiopathic hypersomnia. Adderal is not consistently effective. Why? Is there something else more effective?

Right for you: The most effectiveedicstion is the one that works for you. Every human is truly an individual. Talk with your doctor about how the Adderall (dextroamphetamine and racemic amphetamine) is working for you. We are here to help you. Read more

See 3 more doctor answers
3

3
What is idiopathic hypersomnia?

What is idiopathic hypersomnia?

Sleeping too much: Idiopathic hypersomnia defines a condition in which a person may sleep too much without a known cause. Read more

See 2 more doctor answers
4

4
What causes idiopathic hypersomnia?

IdiopathicHypersomni: May occur with or without long sleep time (> or < 10 hrs). Total sleep may be over 12-14 hours. • naps generally long and unrefreshing. Sleep inertia common. Need help waking up. • mslt shows average sleep latency < 8 min and < 2 sorems. • prevalence ~1: 20, 000 • onset usually around age 10-30, develops over several weeks, then stable, resolves in 25% • CSF hypocretin normal, but histamine may be. Read more

5

5
I live with my parent's because of medical expenses. Neither seems to understand Idiopathic Hypersomnia at all and will not research it. What to do?

I live with my parent's because of medical expenses. Neither seems to understand Idiopathic Hypersomnia at all and will not research it. What to do?

Depression?: Have you yet been evaluated for depression? Hypersomnia can be one of the symptoms of depression, as well as blue mood, loss of interest in activities, etc. Also what are your feelings about being 27 years of age and still living at home? I would say find a reputable psychotherapist to discuss all of these issues with, and any others that come to mind. Read more

See 1 more doctor answer
7

7
Is nuvigil effective for idiopathic hypersomnia?

Yes: Nuvigil is a central nervous system stimulant and can be effective for hypersomnia (sleepiness) of any origin including idiopathic hypersomnia. The response to Nuvigil is different in different individuals. Read more

See 2 more doctor answers
9

9
Can you have "idiopathic insomnia with physiological hypersomnia"?

Can you have "idiopathic insomnia with physiological hypersomnia"?

Insomnia: Yes. Oftentimes insomnia can cause or be effect of hypersomnia conditions. Caution because idiopathic insomnia is very rare and may be the effect of another underlying sleep disorder specifically if hypersomnia is present. If concerned please contact your pcp or sleep specialist because formal testing can be very helpful to weed this out and is generally not done in people with only insomnia. Read more

See 1 more doctor answer
10

10
If a sleep neroligist diagnoses idiopathic hypersomnia from sleep study, what would be the likely prognosis? Is there anything to make it better?

If a sleep neroligist diagnoses idiopathic hypersomnia from sleep study, what would be the likely prognosis? Is there anything to make it better?

Hypersomnia: There is criteria to classify different hypersomnia--- if narcolepsy and similar condition ruled out, you can be DX idiopathic hypersomnia, respond good to treatment, Ritalin (methylphenidate) better than provigil j clin sleep med. 2009 dec 15;5 (6):562-8. Idiopathic hypersomnia: clinical features and response to treatment. Read more

See 2 more doctor answers
11

11
I had daytime sleep study. Diangosis idiopathic hypersomnia. I have cataplexy. How can I not have narcolepsy if it says you have it if you have cataplexy.

I had daytime sleep study. Diangosis idiopathic hypersomnia. I have cataplexy. How can I not have narcolepsy if it says you have it if you have cataplexy.

Four Components: Narcolepsy is a sleep disorder where each of the following symptoms are usually present: 1) excessive day-time sleepiness, 2) sleep paralysis, 3) cataplexy, and 4) hypnagogic hallucinations. Decreased rem latency (abnormally short time before entering rem sleep) is present. Diagnosis is usually made by sleep specialist after a polysomnogram (sleep study). Read more

See 3 more doctor answers
12

12
I have had idiopathic hypersomnia for years. OSA negative. Was prescribed Nuvigil, insurance denied it. Am on 20 mg Adderall, (dextroamphetamine and racemic amphetamine) but still fall asleep during the day for HOURS. Wake up feeling awful-HELP?

I have had idiopathic hypersomnia for years. OSA negative. Was prescribed Nuvigil, insurance denied it. Am on 20 mg Adderall, (dextroamphetamine and racemic amphetamine) but still fall asleep during the day for HOURS. Wake up feeling awful-HELP?

May be on wrong dose: If the adderall (dextroamphetamine and racemic amphetamine) that you take is a tablet, then it is only designed to last 4-6 hours. So if your mornings, are super and alert but the afternoons are sleep city then you should visit with your doctor about either an xr capsule that lasts 10-12 hours or adding a second tablet about lunchtime. Nuvigil is still the rx of choice, so if your dr submits a PA with a dx of narcolepsy and the sleep study, Read more

See 2 more doctor answers
14

14
Does Adderall (dextroamphetamine and racemic amphetamine) work for idiopathic hypersomnia?

Does Adderall (dextroamphetamine and racemic amphetamine) work for idiopathic hypersomnia?

It might: Stimulants are often used to help treat disorders of excessive sleep. One potential difficulty is the possibility of becoming tolerant to the effects over time. I would recommend you seek out a sleep disorder clinic and let them guide in with respect to best treatment practices. Read more

See 1 more doctor answer
16

16
Can idiopathic hypersomnia diagnosis by sleep study respond to anything besides stimulants & sleep hygiene? Anything off label? Foods? Research being done?

Can idiopathic hypersomnia diagnosis by sleep study respond to anything besides stimulants & sleep hygiene? Anything off label? Foods? Research being done?

Hyersomnia: In case of hypersomnia, the overnight sleep study is not enough alone, another study called mean sleep latency testing is needed to evaluate the severity of hypersomnia and to rule out narcolepsy. If you were told that you have idiopathic hypersomnia, I presumed that you had already mslt and narcolepsy was ruled out, anyhow stimulants, sleep hygiene modulation and regular exercise are the best. Read more

See 1 more doctor answer
17

17
Took sleep test, diagnosed w/ idiopathic hypersomnia. Take Adderall (dextroamphetamine and racemic amphetamine) & Nuvigil. Any suggestions for how to improve wakefulness w/o more meds?

Great question!: You may consider using vitamin B12, sublingually (under the tongue) Nuvigil is a stinulant used for excessive sleepiness. What is the cause of your sleepiness? Adressing the underlying problem is usually the best option. Good luck! Read more

18

18
How do I know if I have hypersomnia?

How do I know if I have hypersomnia?

Sleeping too much: Hypersomnia... Too much sleep. An average night sleep can vary but will be between 6-8 hours/night. The best way to know if you have hypersomnia is to keep a sleep log. There can can be variations of normal. If you find that you are above the normal range, see a sleep specialist (usually a pulmonary doctor) in your area to discuss. Read more

See 1 more doctor answer
19

19
Intermittent hypersomnia, what can I do?

See a sleep spec: Intermittent hypersomnia describes uncontrollable sleepiness (sleep attacks) for unclear reason. You would want to rule out any number of conditions that could contribute. Read more

20

20
What to do if I have the problem of hypersomnia?

See your physician: For evaluation. Sometimes a sleep medicine consultation ; sleep study may be indicated. Read more

Dr. David May
80 Doctors shared insights

Excessive Daytime Sleepiness (Definition)

Excessive daytime sleepiness can affect 20% of people with symptoms of feeling sleepy (& possibly experiencing low energy level) which can occur even when ...Read more


Dr. Parham Gharagozlou
180 Doctors shared insights

Hypersomnia Disorder (Definition)

The condition of excessive sleepiness. It can be due to a number of conditions, including depression, an underactive ...Read more