Doctor insights on:
Insomnia In Eds
I've found it impossible to find a dr. That is knowledgeable enough about eds III to help me properly manage it. How can find a dr. That is able to?
Difficult: In reality, there are very few doctors that deal with ehlers danlos. Geneticists are usually the experts in diagnosing this but there is no true treatment. Non-narcotic pain rx and physical therapy to try to strengthen joints are used. Other than that, learning coping skills to live with this bothersome but non-fatal condition is key. Good luck. ...Read more
Yes.: EDS has 11 types, all hereditary,all with gene mutations causing problems with collagen in skin,bone,blood vessels.Symptoms include stretchy easily bruised skin, double jointedness,back pain,flat feet,early arthritis,etc. Lupus, an autoimmune disease, requires 4 of 11criteria.MalarorDiscoidrash,Photosensitivity,OralUlcers,Arthritis,Serositis,KidneyDz,Neurologic Sx's,Blood abn,immunologic,ANA. ...Read more
Recently i was diagnosed with eds and stickler syndrome complicated with av block does this mean i won't be able to have kids?
Tough Question: It would be difficult to give that specific an answer in this forum. This condition has many variants and degrees of severity that must be evaluated & discussed with an expert. I would suggest that you see someone who specializes in ehlers danlos syndrome to get those kinds of answers. Good luck to you. ...Read more
Genetic: The only common form of eds is type iii. This is because afflicted individuals rarely reach childhood; and, certainly not adulthood. Eds iii is an autosomally dominant gene which means that 50% of children of the affected person will have the disease; or each child has a 50% risk of developing the disease. ...Read more
Depends: Ehlers danlos is a family of disorders, which has 6 major and several minor types. Given the multiple genes involved, it can be inherited in both autosomal dominant and autosomal recessive patterns, and can even spring from a de novo mutation. Penetrance depends on the type of mutation, and can therefore not be reliably calculated without more information. ...Read more
Not necessarily: Good teaching in joint protection will prevent disability. Fibromyalgia frequently accompanies people with hypermobility without apparent arthritis. I encourage your husband to take care of himself so that he does not become disabled. Living off of disability is a meager existence. ...Read moreSee 1 more doctor answer