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Doctor insights on: Insomnia In Eds

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I've found it impossible to find a dr. That is knowledgeable enough about eds III to help me properly manage it. How can find a dr. That is able to?

I've found it impossible to find a dr. That is knowledgeable enough about eds III to help me properly manage it. How can find a dr. That is able to?

Difficult: In reality, there are very few doctors that deal with ehlers danlos. Geneticists are usually the experts in diagnosing this but there is no true treatment. Non-narcotic pain rx and physical therapy to try to strengthen joints are used. Other than that, learning coping skills to live with this bothersome but non-fatal condition is key. Good luck. ...Read more

Dr. Heidi Fowler
1,637 doctors shared insights

Insomnia (Definition)

Insomnia is a sleep disorder in which you cannot fall or stay asleep. It usually accompanies another sleep, medical, or psychiatric disorder, and can lead to memory impairment, mood changes, and increased risk of ...Read more


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I just got diagnosed with eds and wonder if my kids have it?

I just got diagnosed with eds and wonder if my kids have it?

Heck with gentic: Consular, because we have many type of this diseae. Ehlers-danlos syndromes are a genetically, biochemically, and clinically diverse group of heritable connective tissue disorders. ...Read more

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Can i have eds and lupus at the same time?

Can i have eds and lupus at the same time?

Yes.: EDS has 11 types, all hereditary,all with gene mutations causing problems with collagen in skin,bone,blood vessels.Symptoms include stretchy easily bruised skin, double jointedness,back pain,flat feet,early arthritis,etc. Lupus, an autoimmune disease, requires 4 of 11criteria.MalarorDiscoidrash,Photosensitivity,OralUlcers,Arthritis,Serositis,KidneyDz,Neurologic Sx's,Blood abn,immunologic,ANA. ...Read more

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Recently i was diagnosed with eds and stickler syndrome complicated with av block does this mean i won't be able to have kids?

Tough Question: It would be difficult to give that specific an answer in this forum. This condition has many variants and degrees of severity that must be evaluated & discussed with an expert. I would suggest that you see someone who specializes in ehlers danlos syndrome to get those kinds of answers. Good luck to you. ...Read more

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What's transmission of eds?

What's transmission of eds?

Genetic: The only common form of eds is type iii. This is because afflicted individuals rarely reach childhood; and, certainly not adulthood. Eds iii is an autosomally dominant gene which means that 50% of children of the affected person will have the disease; or each child has a 50% risk of developing the disease. ...Read more

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What is inheritance and pentrance of eds?

Depends: Ehlers danlos is a family of disorders, which has 6 major and several minor types. Given the multiple genes involved, it can be inherited in both autosomal dominant and autosomal recessive patterns, and can even spring from a de novo mutation. Penetrance depends on the type of mutation, and can therefore not be reliably calculated without more information. ...Read more

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Difference between eds and marfans?

Difference between eds and marfans?

Complications: There are several forms of both. Ehlers-danlos syndrome is often associated with skin hypersensitivity and aortic dissection, dependent on type. Marfans is more associated with joint hyperextensibility, cataracts and sometime aortic dissection. ...Read more

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My husband has eds hypermobility can he get disabled?

My husband has eds hypermobility can he get disabled?

Not necessarily: Good teaching in joint protection will prevent disability. Fibromyalgia frequently accompanies people with hypermobility without apparent arthritis. I encourage your husband to take care of himself so that he does not become disabled. Living off of disability is a meager existence. ...Read more

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Are there any problem with hearing that occurs with eds?

Ehlers-Danlos?: I am assuming by "eds" you mean ehlers–danlos syndrome. If so, then no. There are no hearing problems that are associated with eds. Poor balance (which s an inner ear problem) is common. ...Read more

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