Doctor insights on:
I'm A Teen How Will Having Polycythemia Vera Mess Up My Health Later In Life
No: Generally speaking, pvera dose not imapct a persons long term survival, ie when comparing a group of patients with pv to a group without, survial rates are the same. However, pv and other myeloproliferative disorders are uncommon in your age group and I would be skeptical of the diagnosis. ...Read more
Possibly: Some forms of polycythemia are genetic and tend to run in families. Try to find out the cause of your Grandmother's polycythemia and that would help determine any need for concern. ...Read more
Yes there are!:
I am sure your doctor will tell you more about it., is you ask this question to him/her.
It is a condition which can lead to many complications, so you need to be monitored and probably receive preventive treatments to prevent complications such as Blood clots (Thrombosis) and also keep your hemoglobin under 15grams, which often requires use of medication and phlebotomy (blood drawn, periodically ...Read more
PV&life expectancy: Life expectancy of patients with polycythemia vera (especially if younger than 50 years) was reduced compared with the general population. It is very important to follow up with your hematologist and keep your hematocrit to less than 45% to reduce risk for thrombosis/clotting. Best of luck. ...Read more
I herd that polycythemia vera is just a type of blood and when excess blood is removed and life can be saved. Is it true?
Polycythemia vera (PV: PV is an overproduction of red blood cells by the body. White cells and platelets may be elevated as well. The treatment is to try to suppress the production of the cell line with hydroxylurea or agrylin (anagrelide). The goal is to prevent blood clots due to the thickness of blood due to the increase volume. Periodic phlebotomies to keep the hematocrit below 45. At least 10-20 year survival with treatment. ...Read more
Life expectancy in 18 year old male diagnosed with polycythemia vera being tested with phlebotomy?
Sometimes.: Most patients with polycythemia vera develop the condition in adulthood, most commonly from an acquired mutation in the jak2 gene, and are not born with it. However, there are families who pass on the tendency to have a high red blood cell count through a variety of genetic mutations. It is usually well known in the family when that is the case. ...Read more
Your Doctor is guide: P. Vera is a rare condition. It is not difficult to diagnose provided you have consulted a specialist...A hematologist is the right specialist to help you with this issue. It typically manifests with high hemoglobin (>17 grams) and often has high white blood cell count as well as high platelets associated with high hemoglobin levels. ...Read more
Polycythemia vera: Phlebotomy (blood removal) will be needed to maintain your blood at certain level to prevent stroke or blood clot. In addition, Aspirin is recommended if there is no risk of bleeding or other contraindication. For patients with high risk to develop stroke/clot (age>60 or prior history of clot)- medication called-hydroxy-urea- is also recommended. Discuss with your hematologist. ...Read more
Maybe blood draw: Depends on how high the blood count and whether or not symptoms are present. Also, if pcv is caused by something (secondary polycythemia), that cause needs to be addressed. Smoking, sleep apnea, hemochromatosis are common causes of secondary pcv. If primary and symptoms exist the main treatment is phlebotomy - drawing blood off regularly to decrease the hemoglobin. ...Read more
Polycythemia vera: Foods will not affect it.Get a more detailed answer ›
There are those: Who would encourage you to go forth with a strict organic raw food diet, like something along the lines of the Gerson diet (which also includes coffee enemas!) But I don't think there is any strong data to suggests a "curative" diet. But I will help to eat as healthy as you can, it may help limit further stress on your body. ...Read more
PCRV is a: Myeloproliferative disease associated with too many red blood cells. Polycythemia -- too many cells -- ruba -- red -- vera -- true. ...Read more
Depends on cause: The treatment really depends on the underlying cause. Unless that is known I can't help. Medications are available to treat this. ...Read more
Same as in Gout: About 10-15% of polycythemia vera patients develop gout, a painful inflammation of certain joints (esp. The big toe) caused by precipitation of high uric acid content in the blood. Polycythemics already have a higher level of uric acid (about 50% have hyperuricemia) in their blood due to rapid turnover of red cells. It would be prudent to avoid foods that could precipitate a gouty attack. ...Read more
Iron rich: Iron rich foods may help if avoided but if symptomatic treatment is advisable. ...Read more
No: There are two types of polycythemia. Primary Polycythemia (Polycythemia Vera) is an abnormal proliferation of blood cells, leading to too many red blood cells. It is not caused by any other factor. Secondary Polycythemia is a high red cell count caused by another factor, such as being at altitude, sleep apnea, administration of erythropoietin, or several others. Hope this helps! ...Read more
Polycythemia: Polycythemia rubra vera and polycythemia vera are the same thing - a myeloproliferative disorder which causes production of too many red cells (and usually white cells and platelets also). Polycythemia or erythrocytosis just means someone has too many red cells, whether due to prv, high altitude, sleep apnea, emphysema, certain cancers, or certain congenital abnormalities of red cell production. ...Read more
Polycythemia: Polycythemia is a terminology used for a condition where your hemoglobin is elevated above the normal range. It does not tell you what the cause of the condition- which could be caused by a primary bone marrow problem - (which is called polycythemia rubra vera -abbreviated as polycythemia vera) vs some other secondary conditions such as chronic lung problem, sleep apnea, liver mass/renal mass et. ...Read more
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