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Doctor insights on: Idiopathic Retroperitoneal Fibrosis

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I'm diagnoised with retroperitoneal fibrosis . Is there a medicine for it and if so what?

I'm diagnoised with retroperitoneal fibrosis . Is there a medicine for it and if so what?

Difficult to treat: Unfortunately, there is little mediation to treat this disorder. Mostly we treat the problems that arise from the fibrosis. Occasionally the fibrosis responds to steroid pulses. Ask your local doc for hematology referral. Be well. ...Read more

Idiopathic (Definition)

An idiopathic medical condition is one of unknown or obscure cause. In some conditions, there may be known causes as well. For example, themajority of glaucoma cases are idiopathic (unknown cause), but there are some cases related to eye ...Read more


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What to do if I have been diagnoised with retroperitoneal fibrosis . is there a medicen for it if so what?

What to do if I have been diagnoised with retroperitoneal fibrosis . is there a medicen for it if so what?

Medications: Idiopathic retroperitoneal fibrosis is a chronic non-specific inflammation of the retroperitoneum, which can entrap and obstruct important structures, notably the ureters. Treatment with corticosteroids, alternative treatment strategies for steroid-resistant cases (i.e. intensive immunosuppression) and hormonal treatment, particularly tamoxifen, have been utilized. Surgery may also be indicated ...Read more

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How do docs treat retroperitoneal fibrosis?

How do docs treat retroperitoneal fibrosis?

Manage symptoms: Retroperitoneal fibrosis is one of those chronic disorders without a cure. It causes scarring behind the abdominal organs. Can narrow veins, arteries, urine conduits, ureters. Docs use stents, vacualr bypasses, filters and monitoring to manage the consequences. Long term anticoagulation is often required, as are compression devices for the legs. ...Read more

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What is retroperitoneal fibrosis?

What is retroperitoneal fibrosis?

Chronic scarring: Idiopathic retroperitoneal fibrosis is a chronic non-specific inflammation of the retroperitoneum, which can entrap and obstruct important structures, notably the ureters. The average age of diagnosis is about 55 years and the male:female ratio was 3:1. Options for treatment include corticosteroids, other immunosuppressive and hormonal treatment (such as tamoxifen), as well as surgery. ...Read more

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Could you treat retroperitoneal fibrosis?

Could you treat retroperitoneal fibrosis?

Difficult: Difficult to treat. Options include surgery, trial of certain medications like Prednisone need multidisciplinary team- surgeons, nephrologists, rheumatlogist. ...Read more

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What is a renal autotransplant involving retroperitoneal fibrosis & what would be the reason for having this?

What is a renal autotransplant involving retroperitoneal fibrosis & what would be the reason for having this?

Bench Surgery: In retro-pertonial fibrosis , the scar tissue choks the Kidny and ureter results in renal failure, in order to prevent this complication , kidney and ureter is removed and re-implanted in the peritoneal cavity ( auto implantation ) ...Read more

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Per my medical records for an Ileostomy Reversal surgery I underwent, it states the surgeon did a Renal Autotransplant involving retroperitoneal fibrosis. Normal procedure? Explain, please.

Per my medical records for an Ileostomy Reversal surgery I underwent, it states the surgeon did a Renal Autotransplant involving retroperitoneal fibrosis. Normal procedure? Explain, please.

My take is ...: This question should be directed to the then surgical team. No one should make a "smart" comment or suggestion now after years from the surgery because how, when, and what should be done in individual procedures for medical calamities have changed and evolved over time. That is life. Let life and medicine evolve and move; it's unfair / un-smart to be a hind-sighted smart one. ...Read more

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What is idiopathic pulmonary fibrosis?

What is idiopathic pulmonary fibrosis?

Lung condition: Ipf is a dangerous condition where scar tissue replaces normal lung tissue choking off normal air units and causing breathlessness. It is a progressive disease with no effective treatment at present. ...Read more

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Dr. Adam Lewis
9 doctors shared insights

Retroperitoneal Fibrosis (Definition)

Retroperitoneal fibrosis is a rare disorder in which the ureters (tubes that bring urine from the kidneys to the bladder) are blocked by a fibrous mass in the area behind the stomach and intestines. It is ...Read more