Doctor insights on:
Idiopathic Pulmonary Fibrosis In Children
How will I know that my mum has only a few weeks/ days before she dies? She's 64yrs old and is in late stages of idiopathic pulmonary fibrosis .
Sorry: sorry to hear that. It is a very bad disease with loss of lung function. being what ultimately causes someone in that situation to die. (transplant ?). Not able to keep the oxygen up, or accumulation of fluid behind the lungs, or a cold/upper respiratory infection, or not being able to breathe out the bad air. With all but the last, not being able to breathe is the bad sign. ...Read moreSee 1 more doctor answer
CT or biopsy: The "gold standard" test for idiopathic pulmonary fibrosis is a lung biopsy, usually via lung surgery. But, nowadays, ct scan has gotten very good at diagnosing ipf, and sometimes this is enough. But, usually, lung biopsy is required to make a diagnosis. ...Read moreSee 1 more doctor answer
Scarring...: Idiopathic pulmonary fibrosis means that there is scarring of the lungs and the underlying reason for the scarring is not known. It is typically a slowly progressive disease, typically over years. At the final stages, consideration of a lung transplant can be made so avoid smoking to insure that you would be a candidate, if it progresses to that stage. ...Read more
Not yet: Unfortunately, no effective treatment for ipf is known. Currently, using n-acetyl- cysteine and possibly an experimental drug called perfenidone may be of benefit; they are not cures or even effective at reversing or arresting progression of disease. ...Read more
Idiopathic pulmonary: read this: http://www.nhlbi.nih.gov/health/health-topics/topics/ipf/Get a more detailed answer ›
Shortness of breath: Temperature extremes are harmful because pulmonary fibrosis prevents adapting to the increased metabolic needs that occur with either cold or hot temperatures. Increased dyspnea (shortness of breath) is the typical consequence. The heart can also be strained because it is under more strain in pulmonary fibrosis. ...Read more
What would being exposed to extreme temperaturesdo to someone with (idiopathic) pulmonary fibrosis?
Possible: Some people with ipf can get affected by the cold weather. It really depends on the individual. Usually, during the cold weather, the increase in respiratory viruses (especially flu) can cause trouble in patients with any sort of lung disease. But, it really depends on the individual. ...Read moreSee 1 more doctor answer
No good treatemtns: Unfortunately, there are no good, effective treatments for idiopathic pulmonary fibrosis. Many have been tried, such as steroids, anti-inflammatory drugs, and a drug called mucomyst, (acetylcysteine) but the studies done have not shown significant efficacy. Treatment is mainly supportive. ...Read moreSee 2 more doctor answers
Depends on level: If your oxygen level, on room air, is over 90% at rest and with walking, you won't need oxygen. In fact, you won't even qualify for oxygen therapy at home until your level goes down to 88%. Thus, simply having that diagnosis of ipf doesn't necessarily mean you will need oxygen. Now, many people with ipf do need oxygen, but it doesn't necessarily need so. ...Read moreSee 1 more doctor answer
Depends: The average life expectancy is 3 to 5 years however there are many factors that could change that. For example what stage you are in now. Other diseases you may have, diet, and smoking are a few of the factors that contribute to ur prognosis. There are 2 pulmonary fibrosis meds, Ofev and Esbriet that may help you. Pulmonary rehaTalk with ur lung doctor and see where you stand. Good luck ...Read moreSee 1 more doctor answer
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