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Doctor insights on: Idiopathic Angioedema Symptoms

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What can I do to try and prevent idiopathic angioedema attacks? Mine occur every 1-2 months

What can I do to try and prevent idiopathic angioedema attacks? Mine occur every 1-2 months

See allergist: Consult an allergy/immunology specialist who can test for underlying conditions which cause angioedema (ae). If any exist then treating the underlying condition will prevent ae. If no underlying cause found then there are many medications which can be used in combination to control the ae. There are several new meds available for ae which may be useful. ...Read more

Idiopathic (Definition)

An idiopathic medical condition is one of unknown or obscure cause. In some conditions, there may be known causes as well. For example, themajority of glaucoma cases are idiopathic (unknown cause), but there are some cases related to eye ...Read more


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I've been suffering with chronic idiopathic urticaria & Angioedema for 6 months now. I still need 1/2 a tablet of 25 mg every 48 hrs. Want to cure it.

I've been suffering with chronic idiopathic urticaria & Angioedema for 6 months now. I still need 1/2 a tablet of 25 mg every 48 hrs. Want to cure it.

Urticaria/angioedema: The chronic idiopathic type (if no cause is found) can last much longer, and resolves on its own, and nobody can predict when exactly will it resolve, most important is symptom control. You mentioned half a tablet of the 25 mg every 48 hours!! of which drug? If it is an antihistaminic of any kind, that's a minimal dose and probably you won't need more, if it is a steroid, better taper it, C ur MD ...Read more

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Are daily hives breakouts a common symptom of angioedema?

Are daily hives breakouts a common symptom of angioedema?

They can be: Chronic hives are thought to be an autoimmune reaction to the cells that make histamine, and can be associated with swelling of the lips and tongue. This type of angioedema is usually itchy and rarely affects the back of the throat or causes trouble breathing. The hereditary form of angioedema does not cause hives and does not itch, but can cause trouble breathing. See an allergist for more info. ...Read more

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I have been diagnosed with idiopathic angioedema, which is controlled by ranitidine and cetirizine. What can I do to get off the meds?

Might have to wait: Many casuse of idiopathic hives and swelling typically run a course and eventially go into remission. The goal is to controlled the disease with safe medications until this occurs and avoid excess use of corticosteroids. ...Read more

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Every 2ish yrs for the last 10, I have an allergic reaction to something, but the cause is never determined nor clear. Angioedema ruled out last time. Could this be something other than an allergy? Symptoms: tight throat, extreme hives, itchy tongue.

Every 2ish yrs for the last 10, I have an allergic reaction to something, but the cause is never determined nor clear. Angioedema ruled out last time. Could this be something other than an allergy? Symptoms: tight throat, extreme hives, itchy tongue.

Urticaria/angioedema: Is what you described, not sure what did you mean when you mentioned that angioedema was ruled out! Those recurrent acute attacks warrant keeping injectable epinephrine handy as well as antihistamines to use in case you need them again. You need to be evaluated by an allergist/immunonlogist, or a dermatologist, check aaaai. Org or acaai. Org for an allergist in your area, best wishes ...Read more

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My dr diagnosed idiopathic angioedema of my lips (had hives 8 months ago)It's been 30hrs, swelling slightly less. How long to go down? Compress? H or C

My dr diagnosed idiopathic angioedema of my lips (had hives 8 months ago)It's been 30hrs, swelling slightly less. How long to go down? Compress? H or C

Depends on cause: Most angioedema should subside by 30 hrs. If you have had recurrent bouts of angiioedema lasting for more than 2-3 days, then you need to get evaluated for hereditary angioedema. Do note that the cause may not be established despite extensive studies. If this was the fist episode, then it may or may not recur. See an allergist if the problem persists or worsens. ...Read more

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22yr female. Experience the following symptoms: angioedema, chronic urticaria, anaphylaxis, bone/muscle pain etc, is this systemic mastocytosis?

22yr female. Experience the following symptoms: angioedema, chronic urticaria, anaphylaxis, bone/muscle pain etc, is this systemic mastocytosis?

Serum tryptase level: You're certainly describing an entity that sounds histamine mediated but of course can be due to other causes and mediators.
Does she have urticaria pigmentosa?
Have you done a serum tryptase level?
To my knowledge the one definitive diagnostic is a bone marrow bx.
The other lab I look at to asses a histamine mediated process is anti high affinityfc epsilon receptor antibodies.
Any meds? ...Read more

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41 year-old woman having lupus-like symptoms, angioedema and low complement levels.....?

41 year-old woman having lupus-like symptoms, angioedema and low complement levels.....?

Lupus: This sounds like a diagnosis of lupus. Finish and additional work up and be seen by a rheumatologist and. Other needed sub specialist. All the best. ...Read more

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What can I do to avoid angioedema?

Depends on cause: Angioedema (swelling of lips/tongue/etc) can be caused by a specific trigger (food, medication, infection), or can also be idiopathic (unknown cause). There are also hereditary forms of angioedema. You should see an allergist to determine the cause. ...Read more

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What other possible DX would there be if I've been told I don't fit hereditary or allergic angioedema profiles?

Need more info: With clinical presentation, one would be unlikely to have both hereditary and allergic angioedema in the same differential. The hallmark of one is lack of pruritis, and the other is pruritis. ...Read more

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How can I tell if I have angioedema or urticaria?

Blood tests: It is not an issue for self diagnosis as it requires blood tests to diagnose angioedema. ...Read more

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I have angioedema and emphysema what is usually perscibed for angioedema? I have had it for 6 months already.

Angioedema: In mild cases of angioedema, longer-lasting antihistamines are frequently given. More moderate angioedema may require something like corticosteroids. Medicines which block h1 and h2 are also used for treatment in cases that do not seem to go away as easily. The most important thing to do is to avoid triggers which cause angioedema. ...Read more

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What is angioedema?

What is angioedema?

SEVERE HIVES: Angioedema is the rapid swelling of the skin, including the dermis, deep dermis, mucosa, and subcutaneous tissue. If angioedema is acquired, it is usually caused by an allergy; if it is hereditary, it is due to a genetic mutation. The skin of the face, around the mouth, throat, and the tongue may swell up over the period of minutes to several hours. It may be a medical emergency. ...Read more

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What causes angioedema?

What causes angioedema?

ALLERGY OR GENETIC: Angioedema is the rapid swelling of the skin, including the dermis, deep dermis, mucosa, and subcutaneous tissue. If angioedema is acquired, it is usually caused by an allergy; if it is hereditary, it is due to a genetic mutation. ...Read more

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Tell me about angioedema please?

Abrupt Swelling: Angioedema (ae) abrupt swelling or edema or the dermis, subcutaneous tissue, mucosa, and submucosal tissue, caused by increase of vascular permeability. Ae can be either acquired or hereditary. Hereditary aeis secondary to a genetic mutation that is inherited as an autosomal dominant trait. Acquired ae is secondary to other causes, including medications such as angiotensin inhibitors. ...Read more

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What is angioedema? Causes? Cures?

Swelling: Angioedema is essentially a bad form of hives.
The mechanism of action is usually similar, but angioedema is the result of a stronger allergic response effecting larger blood vessels. So not just your skin swells, but deeper tissue. If in the throat this can be serious. Acute treatment similar to hives: antihistamine, epinephrine, steroids. A special kind is caused from ace inhibitors. ...Read more

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What sort of problem is angioedema?

Swelling: Angioedema is a swelling of tissues. Some cases can be shown to be a lack of a particular enzyme, but the mild angioedema that occasionally causes swelling of the tongue or eyelid is not life threatening and usually can't be diagnosed. Angioedema is not hives; if it itches, it is not angioedema. Your allergist can help figure out what is going on, and help you if it is treatable. ...Read more

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What is the definition or description of: angioedema?

Deep swelling: Angioedema is swelling that occurs under the skin. Hives are very similar but hives occur in the skin layer. Angioedema is due to fluid leaking from blood vessels usually due to an allergy or genetic abnormality. Treatment includes steroids, antihistamines and h2 blockers. ...Read more

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What's hereditary angioedema?

Genetic disorder: HAE is genetic disorder resulting in unpredictable swelling of any part of the body. It is not caused by histamine, but a chemical caused bradykinin. When released in uncontrolled manner the part of the body where this occurs swells. Swelling occurs within 6-36 hours and if untreated resolves in 2-5 days. There is now a replacement enzyme for Type I and II. 4 on demand meds are FDA approved. ...Read more

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What causes hereditary angioedema to occur?

What causes hereditary angioedema to occur?

Abnl or absent prote: Hae is the result of missing or a poorly functioning protein called c1 esterase inhibitor. When this protein is missing or abnormal then a patient may to prone to swelling problems which can be life threatening. ...Read more

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How to get rid of angioedema?

How to get rid of angioedema?

See an allergist: No all angioedema is allergic and some forms do not response to epinephrine, steroids or antihistamines. I would recommend evaluation by an allergist to help pinpoint the cause of angioedema. ...Read more

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What is the best treatment for angioedema?

Depends: There are numerous causes of angioedema from food allergy to medication reaction to genetic disease. Dependent upon the cause of the angioedema the treatment will vary. ...Read more

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Are angioedema and gastro paresis related?

No: Two different issues- one involves swelling under the skin, the other slowing of the intestinal tract. ...Read more

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Are there some genetic reasons I get angioedema off and on?

Are there some genetic reasons I get angioedema off and on?

Could be: Hae or hereditary angioedema is a genetic swelling disease due to deficiency or dysfuntion in a protein called c1 inhibitor. Typical symptoms include recurrent swelling without hives and unexplained abdominal pain that typically lasts 3-5 days on average. Each child of a parent with hae has a 50% risk of having the disease and it should not skip generations. An allergist can help. ...Read more

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Should I go to the ER for a possible first occurrence of angioedema?

Facial swelling: If the swelling compromises your upper airways or causes significant abdominal symptoms such as vomiting or pain, then you should be seen in the er. Otherwise followup with an allergist is recommended. ...Read more

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If I have once had an allergic reaction (angioedema) to a kiwi, will I for certain have one again?

If I have once had an allergic reaction (angioedema) to a kiwi, will I for certain have one again?

Quite likely: Each repeated exposure to the same allergen (kiwi, in this case) can cause a more severe allergy reaction each time. It would be wise to avoid kiwis for a while. The good news is that there are some food allergic reactions that can decrease in time, as with egg allergies. ...Read more

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Can I get angioedema from botox? I don't have asthma.

Can I get angioedema from botox? I don't have asthma.

Not likely: Although an allergic reaction to Botox can occur, it is very, very rare. In fact since the introduction of Botox over 10 years ago there has not been even one reported case of a severe allergy. ...Read more

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Can kissing cause angioedema?

Possibly: Some rare forms of angioedema can be induced by "trauma" so be gentle. Some forms of angioedema are idiopathic and the trigger is not known. Frequently angioedema is associated with hives and may be from an allergic trigger. ...Read more

Dr. Douglas Johnston
130 Doctors shared insights

Angioedema (Definition)

A condition in which swelling occurs under the skin. Angioedema is due to fluid leaking from blood vessels usually due to an ...Read more