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Doctor insights on: I Was Diagnosed With Porphyria And Positive For Lupus

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How difficult is it to diagnose lupus in a teen with no positive labs?

How difficult is it to diagnose lupus in a teen with no positive labs?

See details: If all of your tests are negative then the diagnosis of lupus is very unlikely. ...Read more

Dr. Aletha Tippett
89 doctors shared insights

Porphyria (Definition)

The porphyrias are metabolic disorders caused by abnormalities in the synthesis of heme, the portion of hemoglobin which carries the iron inside red blood cells. The manifestations of porphyria vary considerably depending on the mutation involved, ranging from light sensitivity to liver failure to nerve damage to bouts of terrible pain. Special testing is required to ...Read more


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Why are doctors so hesitant to diagnose lupus? I have several symptoms and positive sjogren's ss-a.

Why are doctors so hesitant to diagnose lupus? I have several symptoms and positive sjogren's ss-a.

Prob u don't have it: Systemic lupus erythematosis is one of dozens of diseases grouped into the category of autoimmune connective tissue diseases. Many of these do not fit nicely into one, so that one can have a 'mixed' connective tissue disorder, or have an overlap of signs & sx. It may take years of following one of these unclear disorders to see a pattern. U probably have sjogren's disease, period. C rheumatologist. ...Read more

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Dealing with all these symptoms of lupus with a positive Ana just not high enough to diagnose. How sick do I have to get to show in bloodwork?

Dealing with all these symptoms of lupus with a positive Ana just not high enough to diagnose. How sick do I have to get to show in bloodwork?

? Lupus: ANA isn't the only criterion, and some cases are seronegative, i.e. have normal ANA, you may very well don't have lupus. Kindly follow up with your doctor/rheumatologist, best wishes ...Read more

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All symptoms for lupus including positive ANA ana was negative. No diagnose yet. Mom, aunt, cousin all have lupus. How long does it take for dx?

All symptoms for lupus including positive ANA ana was negative. No diagnose yet. Mom, aunt, cousin all have lupus. How long does it take for dx?

Not clear : The first sentence of your questions is not clear. There are certain criteria that are followed in order to make the diagnosis of lupus. A blood test alone is not enough. Talk to your doctor and see what his or her working diagnosis is for you so far. ...Read more

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Started me on plaquenill due to symptoms (no dryness)low positive ana. He mentioned markers for sjogrens then he spoke of lupus.Gave no diagnose?

see details: What symptoms do you actually have? Without this information, it is impossible to answer. If it is just GI issues, get another opinion. Plaquenil, (hydroxychloroquine) however, is commonly used as a first-line agent to treat lupus. ...Read more

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My dsdna double strand reference was 3.45 and very symptomatic.. S this a positive for lupus how is it scored?

Possibly: this is one of the many blood tests used to diagnose lupus..you should consult your rheumatologist to have them run a full battery of tests ...Read more

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What does false positive diagnos on lupus mean?

ANA positive: I see two to three patients per week that have a positive antinuclear antibody (ANA) but do not have lupus. The ANA blood test is very sensitive meaning that if you have lupus, the blood test comes back positive. However, it is not specific meaning that if the ANA is positive, you may or may not have lupus as there are over thirty causes of a positive ana. Normal people can have a positive ana. ...Read more

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If my blood tested positive for lupus what does that mean?

Nothing: Lupus is diagnosed based on a combination of lab tests and symptoms. A lab test alone does not diagnose this disease and could be positive in many diseases as well as individuals who have no health problems. ...Read more

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Can positive dsdna be something other than lupus--like celiacs?

Can positive dsdna be something other than lupus--like celiacs?

Autoantibody: Anti ds dna is an autoantibody that can be positive in a variety of disorders and by itself does not make a diagnosis. In the absence of symptom description, one cannot make a diagnosis based on a blood test. ...Read more

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Can I have Lupus if my ANA is positive, tired is 1:320 homogeneous diffuse, but ENA panel is negative. I do have some s/s?

ANA 1:320: Not all autoimmune disease are totally differenciated into discrete diseases and also markers may appear over time, not initially . What was your double stranded DNA? Complement levels? Rheumatoid factor? Can get false positive ANA from RA, mono , Crohns, viral infection, thyroiditis(check TPO,), meds , silicon implants and 5% healthy. f/u w/ rheumatologist ...Read more

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