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Doctor insights on: I Might Have Discoid Lupus Erythematosus What Is It Like To Be A Patient

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I might have discoid lupus erythematosus. What is it like to be a patient?

I might have discoid lupus erythematosus. What is it like to be a patient?

Your personality: Discoid lupus is a relatively benign disorder and can usually be treated with medication. Different people have different reactions to a diagnosis and their responses vary as with any other life event. If your concern is about being a patient with dle, you should consider yourself fortunate that you do not have a more serious illness. ...Read more

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Dr. Emily Altman
66 doctors shared insights

Discoid Lupus (Definition)

Discoid lupus (think singer seal) is seen by itself or with systemic lupus erythematosus (sle). Abut 25% of sle pts have discoid symptoms. If discoid lupus is by itself, 5-10% of them will go on to have sle, but the disease is relatively mild. Discoid lesions are areas of inflammation that go through the dermal layer of skin, causing scarring (like stretch marks). ...Read more


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Doctor thinks I have a rare autoimmune disease that isn't usually detected in testing? She is referring me to a rheumatologist? What might it be?

Doctor thinks I have a rare autoimmune disease that isn't usually detected in testing? She is referring me to a rheumatologist? What might it be?

I don't know: as you didn't mention specifics, even though we won't be able to diagnose online. Rheumatologist would have more detailed history and physical exam, may order some tests, or may rule it out completely, good luck ...Read more

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Can you explain in detail rosacea. I had thought it was just a skin disease per se. so is it related to lupus or a symptom of lupus?

Can you explain in detail rosacea. I had thought it was just a skin disease per se. so is it related to lupus or a symptom of lupus?

No: Rosacea is not a manifestation of lupus. It is simply a skin disease that can be confused with the rash of lupus but is totally unrelated. ...Read more

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Might it be possible that a person have severe arthritis and not know it?

Might it be possible that a person have severe arthritis and not know it?

See below: It all depends on pain perception---some patients may feel severe pain while others may feel minimal pain with the same degree of arthritis. ...Read more

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Is it possible for someone to have psoriatic arthritis without ever having the skin condition? Specially if a parent has psoriasis?

Is it possible for someone to have psoriatic arthritis without ever having the skin condition? Specially if a parent has psoriasis?

Yes: Psoriatic arthritis can begin before a patient has psoriasis. In that case the diagnosis is made on clinical findings, and radiographs. Blood tests for rheumatoid arthritis are typically negative, but labs may show evidence of inflammation. ...Read more

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What is it like to have septic arthritis?

What is it like to have septic arthritis?

Septic joints: A septic joint is almost always very swollen, very painful , red and hot. The exception would be a patient who is immuno-compromised as they could have an infection without such severe symptoms ...Read more

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Is it possible to have lupus and not have butterfly rash?

Is it possible to have lupus and not have butterfly rash?

Yes: Though the butterfly rash on the cheeks is common, it is not always present. Some patients may never have an evident malar rash (the technical name). Interestingly, the name of the disease, which is latin for "wolf, " is based on the fanciful idea that the rash makes faces look wolf-like. ...Read more

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What to do if my friend has a condition called 'addison's disease' which is a fault with his adrenal glands. If im a match, would it be possible to donate?

What to do if my friend has a condition called 'addison's disease' which is a fault with his adrenal glands. If im a match, would it be possible to donate?

Can be manageable: It's wonderful you'd offer to donate for transplantation, but Addison's is quite manageable nowadays. He needs to carry a cortisol needle (learn how and when you might need to use it), and if you're ever both in an accident and he needs to be treated, let his phyiscians know. ...Read more

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What happens if I have a the butterfly rash on face, is there is possibility that it is not lupus?

What happens if I have a the butterfly rash on face, is there is possibility that it is not lupus?

Yes: Lupus is a relatively uncommon cause of a facial rash. Rosacea is far more common. See a dermatologist and then you will know for certain. ...Read more

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I have sle lupus is it normal to be sweating?

I have sle lupus is it normal to be sweating?

Systemic disease: The sin sle is systemic meaning it can affect multipleorgsn systems including skin, joints, kidneys, lungs , heart, etc. Although sweating is not a common occurrence, any symptom is possible in an unique individual. Depending on the area absorbent powder, evening antiperspirant may be helpful. Have your doctor evaluate you for internal involvement re kdneys etc. ...Read more

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Is it the ANA test that can definitely or almost always tell a dr whether or not u have lupus?

Is it the ANA test that can definitely or almost always tell a dr whether or not u have lupus?

ANA: positive ANA test indicates that there would a connective tissue disease, which needs confirmation by other tests and/or clinically, lupus is one sort of connective tissue disease, ANA is a good screening test 95 - 100% of the time, i.e. Has good sensitivity, meaning it is a good way to rule out connective tissue disease, but not to confirm it, hope that answers your question ...Read more

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If I have a the butterfly rash on face, is there is possibility that it is lupus?

If I have a the butterfly rash on face, is there is possibility that it is lupus?

Could be anything: One of the signs of lupus is a butterfly rash, rosacea may give you a similar rash. Even certain forms of eczema. Get checked and get a diagnosis. ...Read more

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Dr. John Chiu Dr. Chiu
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I had a blood test and I've made an appointment with a doctor as it suggests I have a auto'immune condition. What is this and is it serious?

Dr. John Chiu Dr. Chiu
2 doctors agreed:
I had a blood test  and I've made an appointment with a doctor as it suggests I have a auto'immune condition.  What is this and is it serious?

Depends: If the finding is just a low -titer positive ANA , it often means nothing although it suggests that you may be more prone to an autoimmune disease. If you are feeling well otherwise, I'd doubt that the condition is serious. ...Read more

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How likely is someone that has pre-Lupus to go on to have full Lupus?

How likely is someone that has pre-Lupus to go on to have full Lupus?

Pre Lupus: How are they qualifying "pre lupus"? There are many patients that have blood markers that can be found with lupus, but the patient does not have lupus due to lack of symptoms and clinical findings. ...Read more

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Is it possible for a person to be diagnosed with lupus if they are ANA negative?

Is it possible for a person to be diagnosed with lupus if they are ANA negative?

Rare: Ana's are sometimes done wrong even by good, big labs. If you are speaking of systemic lupus and the person has the classic clinical picture, then i would question the reliability of the lab's ANA and try a different lab or proceed as if lupus was indeed present. ...Read more

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Can you do a skin biopsy for lupus with no rash and it be positive for lupus?

Can you do a skin biopsy for lupus with no rash and it be positive for lupus?

Possible: Would require getting a location that has the characteristics of lupus on examination. Not sure of the odds, but it would be possible. ...Read more

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What do you suggest if my friend has a condition called 'addison's disease' which is a fault with his adrenal glands. if I'm a match, would it be possible to donate?

No : Hi. Addison's disease is not ever treated with organ transplant. It is very easily treated with medication and education about how to manage severe illness/stress. It's kind of you to think of donating an organ to help, but you get to keep your adrenals! You CAN, however, be listed as an organ donor on your driver's license in case you're killed. That's a nice thing to do for someone. ...Read more