Top
10
Doctor insights on: How Rare Is Having Ehler Danlos Syndrome

Share
1

1
How rare is having ehler danlos syndrome?

How rare is having ehler danlos syndrome?

Ehlers-Danlos: The frequency of ehlers-danlos syndrome (all types) has been reported as 1 per 5000 to 1 per 10, 000 in the population. The exact prevalence and incidence of ehlers-danlos syndrome is unknown. Ed is a family of conditions that share a common decrease in the tensile strength and integrity of the skin, joints, and other connective tissues. ...Read more

Dr. Lois Freisleben-Cook
344 doctors shared insights

Ehlers Danlos Syndrome (Definition)

Ehlers-Danlos Syndrome is a medical condition characterized by hypermobile joints, very elastic or stretchy skin that bruises easily, and other abnormalities. It is caused by defects in collagen, an important structural protein that is responsible for the strength of many different types of tissue including skin, ...Read more


3

3
I'm flexible and have slightly stretchy skin, does this meani have ehler danlos syndrome?

I'm flexible and have slightly stretchy skin, does this meani have ehler danlos syndrome?

Maybe: The diagnosis is made on the basis of a history and physical exam. If you have concerns, see your family doctor or a rheumatologist. ...Read more

4

4
What are the differences between Marfan syndrome and ehler-danlos syndrome?

What are the differences between Marfan syndrome and ehler-danlos syndrome?

Some similarities: Ehler-danlos syndrome is a group of disorders, caused by a different mutation than the one that causes marfan syndrome. Some types of ehler-danlos syndrome also have rupture of the aorta as a potential problem. Ehler-danlos patients can have some skeletal features similar to those of marfan patients. ...Read more

See 1 more doctor answer
5

5
I have what feels like a knot in my stomach above my belly button that has a very strong pulse. I'm 40 with ehler Danlos syndrome. Hurts when laying?

I have what feels like a knot in my stomach above my belly button that has a very strong pulse.  I'm 40 with ehler Danlos syndrome.  Hurts when laying?

Needs exam and US: Some forms of Ehlers-Danlos are prone to develop dilated arteries (aneurysms). You should seek an immediate evaluation and may need an ultrasound or CT scan. ...Read more

6

6
What is ehlers-danlos syndrome?

What is ehlers-danlos syndrome?

Extreme joint laxity: Ehlers-danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels. ...Read more

7

7
Can ehlers-danlos syndrome get worse?

Can ehlers-danlos syndrome get worse?

Yes it can: Because of the tendom laxicity, joints may not be as stable as normal joints. That can lead to increased risk of osteoarthritis particularly in larger joints such as the shoulder, hips, and knees. There may also be complications of chronic joint dislocation and chronic pain. The disease itself should not lead to any specific inflammatory diseases such as lupus or ra. ...Read more

8

8
How common is ehlers-danlos syndrome?

How common is ehlers-danlos syndrome?

1 per 5,000: The combined incidence is estimate at one case per 5, 000 individuals. ...Read more

9

9
How is ehlers-danlos syndrome painful?

How is ehlers-danlos syndrome painful?

It may not be: It may not be painful at all. It depends on the type you have and what systems are involved. If your joints are involved and are loose then this could increase their mobility and cause pain. Your evaluation will help explain this. ...Read more

10

10
How to tell if I have ehlers danlos syndrome ?

How to tell if I have ehlers danlos syndrome ?

See details: You will have major increased flexibility of joints and increased elasticity of skin. ...Read more