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Doctor insights on: How Much Copper Can A Wilson Disease Patient Take In Each Day

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My dr. Says I have high copper in my blood (serum copper). Could I have wilson disease? 

My dr. Says I have high copper in my blood (serum copper). Could I have wilson disease? 

Need tests: Most cases of wilson disease show symptoms between childhood and early adulthood, some may present in their 30's and 40's. Diagnosis is made by blood, urine tests and an eye examination for kayser-fleischer rings (copper deposit around the cornea). Liver biopsy and genetic tests are also options. Not all patients experience the same set of symptoms or timeline, so thorough testing is important. ...Read more

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Copper (Definition)

This is a reactive metal, one of the basic elements, which is incorporated in a variety of biochemical pathways in the body to catalyze many important functions. It is rarely deficient but too much can lead to liver disease and brain problems ...Read more


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Why do wilson disease patient have a low ceruloplasmin level? Is it due to wilson disease itself or low production by liver?

Why do wilson disease patient have a low ceruloplasmin level? Is it due to wilson disease itself or low production by liver?

Minor mystery: We do know that the liver tends to underproduce ceruloplasmin in Wilson's, but this is only the case in about 2/3 of patients and it is famously unreliable as a way of screening. The exact mechanisms still haven't been sorted out. ...Read more

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I have Low caeruloplamin 0.19g/L and low serum copper 12.5 umol/L - units (Australian). Do I have Wilson Disease? or Copper deficiency? Thanks.

Finish workup: If there is any concern at all that you have Wilson's, get a proper screen -- urinary copper and perhaps a genetic screen if you've got suggestive symptoms. Missing Wilson's leads to one of the most grisly deaths possible. Managing it is easy. Your ceruloplasmin is trivially low and reference ranges are set so that a few percent of healthies are outside on either end. ...Read more

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Can a carrier (heterozygote) of the wilson disease gene donate part of his/her liver tissue for a living related donor transplant to a patient?

Can a carrier (heterozygote) of the wilson disease gene donate part of his/her liver tissue for a living related donor transplant to a patient?

Yes: Wilsons disease is a disease of copper storage. It is genetically linked. Generally speaking people who are heterozygous (are only carriers) can donate their part of thier livers. People who are heterozygous are carriers and don't have wilson's disease themselves. ...Read more

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What copper levels in drinking water are potentially hazardous for wilson's disease patients?

What copper levels in drinking water are potentially hazardous for wilson's disease patients?

0.1ppm: Drinking water rarely exceeds 0.1 parts per million (ppm), deemed a safe level for wilson's disease. Testing is not so much for fear of exceeding 0.1ppm, but to make sure your home/school is not prone to excessive leaching (example: acidic water in copper pipes). Consistent levels <0.1ppm mean leaching is unlikely. Flushing copper pipes (let water run) is recommended before drinking/cooking. ...Read more

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Are copper iuds safe for wilson's disease patients?

Unknown: Speak with your wilson's specialist first. Then it might be best to have patch testing with an allergist to see if you react to the copper. Very likely it is safe, but there are other alternatives.....Why take the chance? ...Read more

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Should I see a specialist for wilson disease, or can my regular doctor take care of it?

It's your choice: Managing Wilson's is usually very easy and if your personal physician feels comfortable with it and knows what to watch for, and you're good with it, stay with him/her. ...Read more

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Ceruloplasmin is .14 and urinary copper is high. patient is experiencing tremors, brain fog, hyperglycemia, neuropathy, would could be ?

Ceruloplasmin is .14 and urinary copper is high. patient is experiencing tremors, brain fog, hyperglycemia, neuropathy, would could be ?

Wilson's disease: Why were the tests ordered in the first place? Your question is best asked of the doctor who ordered the tests. Results like yours can be seen in Wilson's disease, celiac disease and Crohns. ...Read more

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Do people with wilson disease have a lot of pain?

Do people with wilson disease have a lot of pain?

No: Movement disorder--deterioration of cognition--hepatitis---joint pain is not very significant--but they get a variety of symptom--ask your doctor. ...Read more

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Dr. Robert Hutchman
76 doctors shared insights

Wilson's Disease (Definition)

Wilson disease is a genetic condition in which a person's body cannot handle the normal amount of copper obtained through foods. Over time, the copper accumulates in the body and damages the ...Read more