Doctor insights on:
How Long Should Dermatosclerosis Last
Bad disease: Scleroderma is a progressive disease that affects the skin and connective tissue (including cartilage, bone, fat, and the tissue that supports the nerves and blood vessels throughout the body). There are two major forms of the disorder. One localize and could effect the whole body. ...Read more
Thickened skin: It is a thickening of the skin usually on the upper back and back of the neck. More common in diabetics and heavier people. Treatment is difficult as medicine is partially effective in preventing progression of problem. ...Read more
Clarify: There is no specific disease called "dermatosclerosis." do you mean scleroderma? If so, treatment options include drugs such as penicillamine, immunosuppressives, and antiinflammatory agents, but there is no definitive cure. If you mean something else, please let us know. ...Read moreSee 1 more doctor answer
Non-Specific: Sorry to hear about your dx. but it is treatable. Xray findings are only a small part of the picture, so don't get hung up. More sensitive is chest CT if your Dr. wants to follow you closely. You can see: http://radiopaedia.org/articles/scleroderma-pulmonary-manifestations Yes, the "haze" can be seen in scleroderma, but other factors are impt. so follow with your rheumatologist and be well. ...Read more
Very scared I have scleroderma as I have a positive ANA nucleolar but negative subtests 1 1/2 years ago. I don't have any usual symptoms just eye problems like episcleritis once. How long until someone can say its not scletoderma ot am I a sitting duck
RELAX!: All the "auto-immune" diseases present in a spectrum of symptoms.You are lucky in that you seem to have minimal symptoms.Don't wait for someone to say it is or is not "xyz" disease-live well;know that these conditions have a stress component that you can reduce with exercise, diet, and relaxation efforts.Expect the best but be prepared if worsening occurs.Outcomes will be effected. ...Read more
Scared! I had a positive ANA twice 1:40 and 1:160 nucleolar pattern only symptoms have been mild dry eye and one possible episode of episcleritis in the last year. I am scared I have diffuse scleroderma. Been to several rheumatogists and dermatolog
Relax!: Take a deep breath! having a positive ANA doesn't mean that you have a particular disease. In fact lab testing is only a part of the diagnosis, the main part is the clinical picture. Is a good thing to be on top of your health, but being too much can be harmful too. You have already consulted specialists in that area. Follow their recommendations. ...Read moreSee 1 more doctor answer
Have pulmonary hypertension, pulmonary fibrosis, copd, with lupus,scleroderma,many complications. how long can you live with these lung issues?
MCTD: You mentioned you have scleroderma and SLE. You need to be seen by a lung doc if you have not seen one already. You conditions need a multi disciplinary approach with a rheumatologist/ pulmonary doc/ and a cardiologist. Most large teaching hospital have docs that have exp with such complex issues and may be your best bet. Best of luck. ...Read moreSee 1 more doctor answer
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