Doctor insights on:
How Long Do People With Als Live
How long will i live wirh als? I lost the use of my right arm an hand in about 4 months and now the left is going.
Hard to predict: The average patient who develops problems with breathing and/or swallowing may succumb within 3 years but a medicine such as Riluzole does prolong the need for a tracheostomy. Some pts with medical support, can survive for even 15 yrs., or beyond, such as astronomer, dr stephen hawking. ...Read more
Amyotrophic lateral sclerosis is a disorder of the nerve cells in the brain and spinal cord that play a role in controlling voluntary muscle movement. While few cases may be due to a genetic defect, the cause is usually unknown. Symptoms include difficulty breathing, muscle ...Read more
Not long: Once the weakness becomes apparent, the muscular atrophy and fasciculations start to appear, and within a period of a few weeks the diagnostic studies can be completed. Best to start a drug such as Riluzole as early as possible to provide best outcomes. ...Read moreSee 1 more doctor answer
3 to 5 years: Als, or amyotrophic lateral sclerosis, is better known as lou gehrig's disease. It is a disease of motor neurons that causes progressive muscle weakness and is uniformly fatal. The median time from the first symptom of weakness to the patient's passing is about 4 years. ...Read moreSee 1 more doctor answer
Now entering 7th month of twitching. Started in calf and both calves twitch constant all day long plus now body wide. No weakness noted. Worried ALS.
My grandma has ALS.She can't clearly talk and walk.she has started taking Rilutek.for how long will this medicine delay the progess of this desease?
It varies: As long as her system can tolerate it she will takes it until the end or until it stops helping. I'm not sure when that will happen. I am so sorry for you guys. Good luck ...Read more
I went to ENT and he looked down my throat w/ a long scope and said their is a piece swollen & he said yelow drainage . I have a barium test? Als?
Few possibilities.: I saw 2 questions from you with infomation including swollen neck, stiffhands & feet, fatigue, wt. Loss. Difficulty in swallowing with dry thorat, swollen neck from outside from ?Lymphnodes, then we need to r/o autoimmune conditions with sicca (dry) symptoms, especiall ss-sjogren syn. Have any fever. Is there dryness of eyes , less saliva formation, hoarseness.Need to r/o TB larynx.Vasculitis labs+. ...Read more
Variable: Everyone is different. Depending on comorbid issues. Average is 2-5 yrs after diagnosis depending on aggressiveness. However: 50% more than 3 yrs. 20% over 5 yrs. 10% more than 10 yrs and 5% more than 20 yrs - also depends on how aggressive the care and treatment. ...Read moreSee 1 more doctor answer
Would you recommend coconut oil for someone with als? I've read up on it, and some people have reversed the progression of the disease using it.
ALS and coconut oil: Their have been anecdotal reports of use of Coconut oil in ALS patients , their is no study done to prove whether it works or if it's a placebo effect . This is relatively harmless treatment and hence can be tried in someone with ALS. The medical community needs to look into it and study it further regarding if their is any benefit of using Coconut oil in ALS. ...Read more
No : muscle fasciculations can be seen in a variety of situations ranging from muscle overuse and fatigue to electrolyte imbalance to denervation issues (I.e. Damage to the nerve that connects to a specific muscle). In a person with no overall medical issues, the muscle twitching is most likely benign unless other symptoms such as weakness and loss of sensation are present ...Read more
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