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Doctor insights on: How Long Can Iv Ig Control Multifocal Motor Neuropathy

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Can neuropathy go away?

Can neuropathy go away?

Depends: It depends on what the cause of neuropathy is. In majority of cases you can improve symptoms by treating the underlying cause and taking appropriate meds.

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Dr. Olav Jaren
1,333 doctors shared insights

Nerve Damage (Definition)

A complete nerve transection will leave an area totally numb. The distribution of the numbers depends upon where the nerve was cut. A partial nerve injury may leave the area tingly or incompletely numb. Finally even if the nerve is not cut the swelling and bruising to the tea can affect the nerve as well. Usually we consider sharp penetrating injuries as likely having nerve lacerations when sensation is lost. A hand surgeon can examine the hand and pinpoint the site or extent of nerve injury and recommend ...Read more


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How long can ivig control multifocal motor neuropathy?

How long can ivig control multifocal motor neuropathy?

Forever: Intra venous immunoglobulins can help control many auto immune diseases. Sometimes remission can be achieved after only a few doses, but sometimes long-term or recurrent intermittent use is needed. Other times ivig may fail to control the disease.

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I have been told I have multifocal motor neuropathy in my hand and it's clawed I am currently receiving ivig every 4 weeks, can I ever be cured?

I have been told I have multifocal motor neuropathy in my hand and it's clawed I am currently receiving ivig every 4 weeks, can I ever be cured?

Hard to say: It's certainly possible to stop progression and in some cases reverse the damage from a neuropathy. The answer for you requires many more details - suggest you have a frank discussion with your neurologist.

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How do I tailor this program to my chronic illness (multifocal motor neuropathy). Some weeks I will be able to do more exercise (swimming) but every 4th week is IVIG treatment so I can't exercise that week. Chronic Illness?

How do I tailor this program to my chronic illness (multifocal motor neuropathy). Some weeks I will be able to do more exercise (swimming) but every 4th week is IVIG treatment so I can't exercise that week.  

Chronic Illness?

Are you sure?: I am not aware of any precaution on exercise after IVIG and I have prescribed this treatment often enough. Do check with your doctor to confirm the need for this precaution.

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Whats multifocal motor neuropathy?

Neuropathy: Multifocal motor neuropathy is a progressive muscle disorder characterized by muscle weakness in the hands, with differences from one side of the body to the other in the specific muscles involved. It affects men much more than women. Symptoms also include muscle wasting, cramping, and involuntary contractions or twitching of the leg muscles.

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What is prognosis for multifocal motor neuropathy?

What is prognosis for multifocal motor neuropathy?

See below: Patients usually start to see improvement within 3 to 6 weeks of starting treatment. Over the long hall it is a somewhat progressive disorder.

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Any treatment of multifocal motor neuropathy?

Neuropathy: Treatment for multifocal motor neuropathy varies. Some individuals experience only mild, modest symptoms and require no treatment. For others, treatment generally consists of intravenous immunoglobulin (ivig) or immunosuppressive therapy with cyclophosphamide.

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Have just completed ivig infusions, 4g 1x/wk x 10 weeks with no positive results for the tx of multifocal motor neuron neuropathy throughout tx my rle continued to lose function, distally to proximal although sensation remained intact. No other effects i

Multifocal : Multifocal motor neuropathy (mmn) and motor neuronopathy (which includes a number of conditions including amyotrophic lateral sclerosis [als]) are complicated neuromuscular conditions that loosely resemble each other in terms of symptoms, but that should become more divergent with careful examination and thorough electrodiagnostic and laboratory testing. It would be unusual (but not impossible) for mmn to occur in the lower limbs. Because the implications of both conditions are serious, a "second opinion" or "confirmatory consultation" from an experienced, board-certified neurologist with additional fellowship training in neuromuscular disorders, should always be considered. Such expertise can usually be found at university medical centers, although in some cases a trip to a national center of excellence may be required to clarify the situation.

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Is 120grams over 3 days ivig the right dose for small fiber neuropathy? Is this a high dose? I'm very scared to start this with all th life threat ef

Is 120grams over 3 days ivig the right dose for small fiber neuropathy? Is this a high dose? I'm very scared to start this with all th  life threat ef

Maybe fine: If you have a small fibre neuropathy which is biopsy proven, and your blood and/or spinal fluid studies support an immune mechanism, and the other blood and urine studies do not uncover another disease state, then, I would recommend IVIG, which would be used at an initial dose of 2 gm per kg (120 grams if you weigh 60 kg), and subsequent dosing at 1 gm per kg or even lower at .800 gms/ kg.

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Can Intravenous Immunoglobulin or IVIG really cure Neuropathy and neuromuscular disorders?

Can Intravenous Immunoglobulin or IVIG really cure Neuropathy and neuromuscular disorders?

IVIG treatment: IVIG is helpful for curing a condition called AIDP, or Guillain Barre syndrome, which is a type of neuropathy. It's cousin, CIDP, is treated by IVIG, but it is not cured. Myasthenia gravis is a condition that causes weakness. It is also treated with IVIG, but it is not cured. Few illnesses can be cured in neurology, but many can be treated.

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I had ivig for small fiber neuropathy and got aseptic meningitis. What are the chances this happening again if I try it. ?

I had ivig for small fiber neuropathy and got aseptic meningitis. What are the chances this happening again if I try it. ?

Not none: It is certainly possible for this complication to happen again. Discuss the pros and cons (risk-benefit ratio) of IVIg Rx for your condition, including if you both think it helped. If it did and you want to continue receiving it, discuss with your doctor the possibility of pretreating you with e.g. prednisone, prednisolone or methylprednisolone for a couple of days prior to the infusion.

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I'm going to be starting ivig for dysautonomia pots small fiber neuropathy and autonomic neuropathy. Anything I should be worried a anout?

Ivig: There is a possibility that you may have an allergic or anaphylactic reaction to the ivig. Be prepared with steroids and other medication to counteract the reaction.

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I have small fiber neuropathy with possible ischemic neuropathy. They believe its an autoimmune response. Detected by skin bx. Is this fatal . ? Ivig

I have small fiber neuropathy with possible ischemic neuropathy. They believe its an autoimmune response. Detected by skin bx. Is this fatal . ? Ivig

Not usually: Neuropathy can be painful but usually isn't fatal. It can cause many other issues like wounds that don't heal. These issues can be fatal if not given proper attention. Discuss your fears with your doctor so they can guide you better.

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I was diagnosed with multifocal motor sensory demyelinating neuropathy. Why did they have me get a spinal tap? When will I start treatment

I was diagnosed with multifocal motor sensory demyelinating neuropathy. Why did they have me get a spinal tap?  When will I start treatment

Couple answers: The spinal tap mainly evaluates protein levels to differentiate the condition from other presenting illnesses. If the evaluation is finished, you should be placed on infusions of IVIG in the near future (best within the next few weeks), and treatment should be provided every 3-4 weeks.

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How long is it supposed to it take for neuropathy to set in?

Hours to years: Neuropathy is much more of a symptom than a disease, and the speed of onset is completely dependent on the underlying mechanism. While typical diabetic neuropathy can start causing symptoms of numbness only after years of progressive damage, guillian barre syndrome can lead to complete paralysis in a matter of hours.

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Which medication for pain control of neuropathy is most effective?

Which medication for pain control of neuropathy is most effective?

Depends: It depends on the cause of the neuropathy. Is it diabetic, sciatica, or autoimmune? In general standard pain drugs such as advil or tylenol (acetaminophen) do not work. On some forms drugs such as Gabapentin or Lyrica will work. Narcotics sometimes help as well. Other drugs such as antidepressants and anticonvulsants are sometimes uses as adjuvant therapy. In general neuropathic pain is difficult to treat.

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How can I control peripheral neuropathy?

How can I control peripheral neuropathy?

What's the cause: Neuropathy simply means nerve injury. Peripheral nerves control many things including sensation, motor function and automatic things like sweating, goosebumps. Injury to peripheral nerves can occur from diabetes, trauma, and many other metabolic processes as well as many medicines. With so many causes, the key is to find out the cause and the a treatment can be identified.

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Dr. Michael Kleerekoper
18 doctors shared insights

Intravenous Immunoglobulin (Definition)

Intravenous immunoglobulin (IVIG) is a way to provide antibodies to children with documented immune deficiencies and to treat other problems involving the immune system, such as Kawasaki disease. It has also been suggested as a treatment for children with autism spectrum disorders based on the idea that fetal brain development is related to the prenatal immune response, but there is little data ...Read more


Dr. Bennett Machanic
1,449 doctors shared insights

Neuropathy (Definition)

Weakness, numbness, and pain from nerve damage, usually in ...Read more