Doctor insights on:
How Is The Survival For Someone Diagnosed With Cardiac Rhabdomyosarcoma
Rhabdo is quite: Rare to start, usually in children. Adults and adolescents can get the rarer and poorer prognosis alveolar rhabdo's of extremities. Classic rhabo affects skeletal muscles (those that move bones with volition), but more in the region of, and of un-named muscles. Notice I do not mention heart or cardiac muscle. Sense this is what you have been told. To me, this is unique. Unique is not good. ...Read more
Poor: This is a very rare tumor. The few case reports show very poor outcomes. There is a benign version in infants that has a much better outcome, and can regress on its own. ...Read more
Depends.: There are many factors involved in the long term prognosis. The bladder is a tough spot to have this disease, but i would be very hopeful that there will be a significant response to chemo. The issue is likely to be how to get rid of the tumor and spare the bladder. Good luck. ...Read moreSee 1 more doctor answer
Unknown: The etiology of rms is really unknown. There have been correlations to recreational drug use in utero, radiation exposure in utero, low socioecomic factors, and antibiotic use shortly after birth. There are genetic syndromes associated with a higher incidence as well. Those should be researched with a geneticist. All rms should see a geneticist. ...Read more
Rhabo's are: Unusual pediatric tumors, commonly located in or near the genito-urinary tract or in the head and neck region. They arise in "un-named" muscles. They respond to chemotherapy and are also treated in combination with radiotherapy. They are most common under five, and almost always under 10. ...Read more
Rhabdo tends: To occur in pediatric population, embryonal cell type, anatomically centered in head & neck or gu sites. Alveolar less age and location dependent. 90-95% of recurrences occur in 2 years. At risk until that interval passed. ...Read more
A rare disease group: Dominant in pedatric age, cluster in genitourinary locations and head and neck, adjacent to meninges. Surgery to remove is best; chemotherapy is used when indicated, and radiotherapy only when benefit outstrips adverse effects to growing bones and muscles, so very age dependent. ...Read more
Variable: Depends on the situation and patient age. Some can grow very rapidly, but not all. ...Read more
COG trials ongoing.: The best option is to find a cog treatment center and discuss this with them. In a nutshell, timing/dose/volume of agents is being optimized at present. Late effects and mixtures of drugs that may or may not be too toxic are just now finishing studies. New imaging and new radiation methods (protons) are also coming to light. Better than a 400 word answer, find a face to face option. ...Read moreSee 1 more doctor answer
Tough to answer: Usually a disease of children and very uncommon at that. Very rare in adults. Definitely should be treated at a center. Difficult to answer the question without knowing about treatment, and surgical resection etc. Tried to give some info since I have seen your question for a bit. Would discuss details with oncologist at a large center esp. If a child. ...Read moreSee 1 more doctor answer
Should i be concerned if my 23 month old was just diagnosed with rhabdomyosarcoma and finished the 1st cycle of chemo (5 days)?
Yes , it is serious: This is a type of sarcoma which has good treatment but it depends on how large is the tumor and what is the stage. He should be under the care of a good pediatric oncologist and seem by a specialist in a pediatric or children's cancer center which are the best to seek treatment. There is certainly some serious risks to his life although most children are cured of their cancer when treated well. ...Read more
Biopsy and imaging: The most important test for diagnosing rhabdomyosarcoma (rms) is obtaining a biopsy of the mass and having a pathologist examine it. In general, there are three different types of rms alveolar, embryonal and pleomophic. Special stains will be used on the tissue, and other specialized tests (looking for specific chromosomal abnormalities) may be done. Body imaging will determine the staging. ...Read moreSee 2 more doctor answers
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