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Doctor insights on: How Does Lupus Affect Your Genitals

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Lupus currently inactive- i get mouth, nose and genital sores (all same time) now and then. I read those are symptoms, but how common, all 3?

Lupus currently inactive- i get mouth, nose and genital sores (all same time) now and then. I read those are symptoms, but how common, all 3?

Consult rheumatologi: Lupus usually causes mouth ulcers, not genital or nose ulcers.You probably have another disease that causes genital ulcers/nose ulcers. conult your rheumatologist ...Read more

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Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Inflammation: Lupus and the pre-menstrual phase of the cycle are both known for being states of increased inflammation, so it makes sense that you might have this and notice it during your menstrual cycle. I would speak with your rheumatologist regarding medications that are safe to take to diminish the flare symptoms, as some anti-inflammatories are harmful for kidneys. Best of luck. ...Read more

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I have lupus and I don't know what to do.

I have lupus and I don't know what to do.

Continue seeing M.D.: If you have lupus it needs to be treated and the treatment depends on the extent of the disease. Your doctor will either treat you or send you to a specialist for further tests and treatment. Please don't get discouraged as there are very good treatments available. ...Read more

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This last 2 weeks feel so run down between p.O.T.S and lupus... Im 27 i want to feel normal. But i don't think ill ever be "normal" again. :/?

See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more

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What;s the best pain medicine for lupus patients?

What;s the best pain medicine for lupus patients?

Acetaminophen NSAIDS: For symptom relief of pain you can use Acetaminophen or NSAIDs like Ibuprofen or o Naprooxen or Cox 2 Celebrex Along wih Antimalarials (Hydroxychlroquin) and low dose steroids ...Read more

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If someone has lupus how do you have sex if lubrication isn't working?

If someone has lupus how do you have sex if lubrication isn't working?

Vaginal estrogen!: Vaginal estrogen supply the vaginal mucosa what is needed. There are many lubricants available, but estrogen at the point of need is more important! plus, it does not increase systemic Estrogens by much, since is locally applied! ...Read more

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What causes the intense fatigue in lupus even when one isn't in a flare?

What causes the intense fatigue in lupus even when one isn't in a flare?

Fatigue in Lupus: Atudy was done at hospital for special surgery few years ago, which suggested that depression and sleep prpblems might contribute to fatigue in patients with lupus.There have been other studies which suggest it may be due to lack of exercise. Acanadian study they found the fatigue is related to depression, pain, quality of sleep, quantity of sleep, exercise lack, severity of illness and stress. ...Read more

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Ana test results question - how many people have ANA positive but don't ever get lupus?

Ana test results question - how many people have ANA positive but don't ever get lupus?

Age and gender: Positive ANA test is commoner in older people and women. Up to 25% of the people may have positive ANA test at some time or the other. Only 0.1-0.15% of the population has systemic lupus. ...Read more

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My doctor explained to me that he thinks I have lupus but it hasn't fully manifested yet. Is that normal?

My doctor explained to me that he thinks I have lupus but it hasn't fully manifested yet. Is that normal?

Yes: Lupus can evolve over years and become a more obvious diagnosis as time goes on. I personally do not believe in the concept of undifferentiated connective tissue disorder. The majority of these cases eventually turn out to be lupus. ...Read more

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I jsut read that i shouldn't be on atenolol because I have lupus?!?!? Is this true i just started 12.5mg bid for pots

Not true: You can take atenolol. There is a common misconception that beta blockers can worsen raynauds but studies have clearly proven that this is not the case. ...Read more

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Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Not sure, I don't : think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out. ...Read more

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Can I have Lupus if my ANA is positive, tired is 1:320 homogeneous diffuse, but ENA panel is negative. I do have some s/s?

ANA 1:320: Not all autoimmune disease are totally differenciated into discrete diseases and also markers may appear over time, not initially . What was your double stranded DNA? Complement levels? Rheumatoid factor? Can get false positive ANA from RA, mono , Crohns, viral infection, thyroiditis(check TPO,), meds , silicon implants and 5% healthy. f/u w/ rheumatologist ...Read more

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I see my rheum in a couple weeks, but would having ssb antibodies cause problems even if lupus or other diseases weren't present?

See details: Positive ssb antibodies by themselves (when the ssa antibody is negative) have little clinical significance. They can be falsely positive. If the ANA and other tests for lupus are negative, i would disregard the ssb results. ...Read more

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When your a lupus patient and you haven't taken any medication is your hair supposed to fall out and if so for how longor how do I stop it?

When your a lupus patient and you haven't taken any medication is your hair supposed to fall out and if so for how longor how do I stop it?

It can, but...: There are many reasons for it to fall out, some related to lupus, and others not, which may co-exist. If you have lupus, why would you not take medication. I hope, that if this is so, it is because your disease activity is minimal. B vitamins, including biotin, can help hair loss! i did notice you are on medication. Methotrexate can cause hair loss, not ho-q. Folic acid can minimize this! ...Read more

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As a person with lupus, it normal that i struggle with getting easily fatigued even though i'm not in a flare? My acquaintances don't understand.

Don't take it person: They may never understand, unfortunately that is human nature. The issues is you can't see aches, pains and stiffness, it can't be scanned or analyzed. I had a patient in the 90's keep a clothespin in her purse and clamped it on friends finger to let experience the pain. After a minute, no problem. After 5 mins they wanted it off! see my wellness suggestions. ...Read more

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I have lupus &always get sick (start of flare)for atleast a day(sat) if i don't get enough sleep during work week. Then sleep all day sat. Common?

I have lupus &always get sick (start of flare)for atleast a day(sat) if i don't get enough sleep during work week. Then sleep all day sat. Common?

Lupus Therapy: Antimalarial drugs such as Hydroxychloroquine and Chloroquine are excellent alternatives for people with lupus who do not respond well to Ibuprofen or Aspirin (bayer aspirin, bufferin, ecotrin).Many people on antimalarial drugs experience significant relief of their symptoms, especially rashes, fatigue, and joint and muscle pains. ...Read more

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What are the physical manifestations of anorexia, if any, that could be mistaken for lupus symptoms if a patient isn't forthright about eating bxs?

What are the physical manifestations of anorexia, if any, that could be mistaken for lupus symptoms if a patient isn't forthright about eating bxs?

A patient with: Combined lupus and anoerexia nervosa would be challenging. I am not sure, has she had a diagnosis of lupus? Anoerexia refers to no appetite and can be a part of illness, anoerexia nervosa is a body dysmorphic disorder, a psychiatric condition. If she is very thin and eats little while being preoccupied with calories, may be that but needs a psychiatrist. If its appetite loss it's different. ...Read more

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Neuro couldn't explain this to me. Can someone explain this ANA? Norm LA1&2, Positive Hex.Pho, prolonged APPT and saline. Approx 15%of Lupus anti.

Neuro couldn't explain this to me.  Can someone explain this ANA? Norm LA1&2, Positive Hex.Pho, prolonged APPT and saline. Approx 15%of Lupus anti.

Anti phospholipid : The neurologist may be screening you for condition called anti-phospholipid syndrome. In this condition the most common manifestation would be a propensity for blood clots (thrombosis) but headaches may occur as part of the syndrome. Although the LA 1/2 are (-) your hex phos and APPT are abnormal. A Hematologist can determine if this condition is/is not present with more specific blood tests. ...Read more