Doctor insights on:
How Do I Caregive For My Son With Muscular Dystrophy
Lovingly : Children need love, patience, and guidance to grow. Learn as much as you can about your son's type of muscular dystrophy. Helping your child figure out how to accomplish his dreams with the physical limitatons the dystrphy imposes will be one of your great tasks. You and your child can figure out how to manage the perceptions of others as the physical manifestons become apparent. ...Read moreSee 1 more doctor answer
My son has muscular dystrophy and has tonsil stones , he has trouble breathing and keeps chocking , what do I do ??
See doctor: Tonsil stones normally do not cause symptoms. Very large tonsils and adenoids may cause obstruction and breathing problems at night. You need to take him to his doctor soon with the trouble breathing and choking. It may or may not be related to his muscular dystrophy. He needs a full evaluation of his lungs and ear/nose/throat to know what needs to be treated. ...Read moreSee 1 more doctor answer
Would a child show signs of muscular dystrophy by 4? My son has low muscle tone and can tire quicker than brothers but he can jump, ride bike, etc
Many types: There are many different types of muscular dystrophy, some of which do not show symptoms until even adulthood. If you have concerns about your child's muscle functions, best to go to a large pediatric academic center that has a muscular dystrophy clinic. There you will find the various experts who can determine if there even is a problem, and it so, what it is. Best to use experts here! ...Read more
My son is 5 yo and out-toes when he runs. It makes him fall.Saw ortho last year who said he would outgrow. Should I worry about muscular dystrophy?
My son had genetic test sent to Harvard For hgb disorder. He also has low muscle tone. Would the genetic testing pick up muscular dystrophy too?
Generally not: That would be like doing a compression test on a car engine and finding a brake problem. You only find (or not) what you're looking for. And muscular dystrophy isn't just a matter of muscle tone. You need to read up on a disease or condition before you start making these transcontinental jumps to conclusions. ...Read more
What kind of anemia or hemoglobin disorder would cause elevated LDH? Sons is 600. Concerned this is a marker of Muscular dystrophy?
Don't think so: Without much background data would consider a hemolytic anemia. Need to have your son discuss this with his physicians as than be other causes. ...Read more
Son has muscular dystrophy. School had an eye exam and they made a note that his eye lids are drooping a little over his pupils. Should he be seen by his doctor?
The muscular: dystrophies (MD) are a group of > 30 genetic diseases that cause progressive weakness and degeneration of muscles. Age of onset, distribution & extent of skeletal muscle weakness, rate of progression, cardiac & smooth muscle involvement & pattern of inheritance differ. Duchenne MD affects 1:3500- 1:6000 male births/year in the US. See http://www.ninds.nih.gov/disorders/md/detail_md & mda.org. ...Read more
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