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Doctor insights on: How Do I Caregive For My Son With Muscular Dystrophy

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How do I caregive for my son with muscular dystrophy?

How do I caregive for my son with muscular dystrophy?

Lovingly : Children need love, patience, and guidance to grow. Learn as much as you can about your son's type of muscular dystrophy. Helping your child figure out how to accomplish his dreams with the physical limitatons the dystrphy imposes will be one of your great tasks. You and your child can figure out how to manage the perceptions of others as the physical manifestons become apparent. ...Read more

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Dr. Kathryn Mosher
141 doctors shared insights

Muscular Dystrophy (Definition)

Muscular dystrophy includes a number of disorders which are associated primarily with abnormalities of the architecture of the cells, often causing changes in size and function (weakness). These disorders are typically inherited, and recognized early in life, although there are of course exceptions to this. Prognosis is based on the type of MD and expression ...Read more


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What can I do for my daughter who has muscular dystrophy?

What can I do for my daughter who has muscular dystrophy?

Care for her: Love her, care for her, and get her into a good neuromuscular clinic. Free standing children's hospitals generally have clinics for patients with neuromuscular problems. These clinics include specialists in orthopedics, neurology, rehabilitation, and anything else she could need. ...Read more

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My little brother has duchenne muscular dystrophy. What can I do to help as his health worsens?

My little brother has duchenne muscular dystrophy. What can I do to help as his health worsens?

Help my muscles: Take him to a shriners hospital or a similar facility and show him the wonderful work they are doing with kids like him they can give. You helpful hints. ...Read more

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What can I do so my friends family gets help for their son diagnosed with ms?

What can I do so my friends family gets help for their son diagnosed with ms?

Several ways: Contact local ms society. Learn about the newer more potent medications, and find an appropriate oral med to start. Supplement vitamin d-3, eat a low fat, low salt diet, avoid smoking. Work closely with experienced neurologist. Do aerobic exercise. Encourage him to contact physicians if symptoms change or things worsen. Be aware that heat may transiently worsen symptoms. ...Read more

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What do you suggest if my husband has polymyocitis, and has for over 3 yrs. can anyone help with how I can cope better?

What do you suggest if my husband has polymyocitis, and has for over 3 yrs. can anyone help with how I can cope better?

Therapy/Support: You may benefit from therapy to improve your coping, talking to the therapist will be very helpful. Support groups for spouses of chronic illness patients also may be helpful. Talk to your husbands doctor about groups he/she may know about. ...Read more

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We don't qualify for welfare, so how do I get my son help with Asperger syndrome?

We don't qualify for welfare, so how do I get my son help with Asperger syndrome?

Ask your Doctor: You can also look at asperger.Com you can find information. Your local school system special education department my youngest son has aspergers it is difficult to find help but it is out there. ...Read more

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I am a 17 yr. Old girl & have been diagnosed with peripheral dystonia mainly affecting my right arm/shoulder. How quickly can I get my strength back?

I am a 17 yr. Old girl & have been diagnosed with peripheral dystonia mainly affecting my right arm/shoulder. How quickly can I get my strength back?

Can not answer: Without knowing full details about your case and authenticity of diagnosis i can not answer your question. Best option is to go to movement disorder specialists at mt. Sinai or columbia university hospital in nyc for 2nd. Opinion. Assuming that diagnosis is correct Botox injections may possibly help. ...Read more

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My mother has alzheimer's. How do I explain this to my children?

My mother has alzheimer's.  How do I explain this to my children?

It depends: Explaining a serious illness to children really depends on the age and maturity of the children. A start is to explain that grandma's memory isn't what it used to be so we need to be more patient with her. Other considerations include the stage of your mother's illness. In general, encouraging children to be kind and patient with older adults is a good lesson for all. ...Read more

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How do I get help for my mother who has Alzheimer's disease?

Which help?: There are many different kinds of help that could be provided but they depend on the stage of the disease and needs of the patient. ...Read more

Dr. Laura Pak Dr. Pak
5 doctors agreed:
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My 27 year old daughter has a very bad case of lymphedema. What can I do to help her cope with her condition?

Dr. Laura Pak Dr. Pak
5 doctors agreed:
My 27 year old daughter has a very bad case of lymphedema. What can I do to help her cope with her condition?

See a specialist: Lymphedema nurse specialists can be unbelievably helpful in providing emotional support and counseling, education about skin care, and also in providing treatment for lymphedema with massage and wrapping techniques. Even chronic, massively swollen limbs can see dramatic results with non-invasive limb reduction techniques. ...Read more

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I live in illinois, I am the caregiver to my 86 yr old parent but my older sister has power of attorney. How can I get her to help me with expenses?

I live in illinois, I am the caregiver to my 86 yr old parent but my older sister has power of attorney. How can I get her to help me with expenses?

Make appointment: Maybe consider making an appointment with a good family therapist or social worker for you and your sister to see for some assistance in sorting things out. As long as your sister will go, the therapist can act as a referree to keep things on track and prevent them getting too out of hand. I work a lot with families teaching them how to have a 'fair fight.' good luck. ...Read more

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How can I help care for my 21 yr old daughter who was just diagnosed with fibromyalgia?

How can I help care for my 21 yr old daughter who was just diagnosed with fibromyalgia?

Treatment: Encourage her to start multimodal treatment (non-opioid meds, pt and exercise, behavioral counseling, pain psychology eval and treatment) and avoid taking narcotics. ...Read more

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How can I support my daughter with dyslexia?

How can I support my daughter with dyslexia?

Get professional hel: It is best to have her tested and then to enroll in a remediation program; there are many excellant ones in most communities. ...Read more

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What can I do if my 15 yr old daughter has been diagnosed with visceral hyperalgesia. Where do I go for help?

What can I do if my 15 yr old daughter has been diagnosed with visceral hyperalgesia. Where do I go for help?

Neurology and pain : A neurologist is always the first person here after your primary doctor..Once diagnosed and other causes ruled out, a pain management specialist is the following step. ...Read more

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My father has kidney deseas he does dialisys about 3 months. How can I take care of him?What should I do on these days? Thanks a lot

My father has kidney deseas he does dialisys about 3 months. How can I take care of him?What should I do on these days? Thanks a lot

Dad on dialysis: Your attention to your father depends on his needs. If your father can take care of his activities of daily living, you make not need to take a lot of time helping. If this is not the case, speak to the social worker at his dialysis center to see if any assistance can be given to him. When he goes to dialysis, if he is transported to his center, you can have some free time to tend to yourself. ...Read more

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How could you get 13 y old who is diagnosed with friedreichs ataxia to feel good about himself?

How could you get 13 y old who is diagnosed with friedreichs ataxia to  feel good about himself?

Counseling: The child must be made to understand that gait disturbance (& other associated symptoms if any) do not define his value as a person. This is a difficult time in any person's life, even if perfectly healthy. Supportive home environment from family & close friends. Psychologic counseling is almost certainly needed & possibly antidepressants. ...Read more

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I think I have a hernia. I have fshd muscular dystrophy and im 31. Where i live the doctors no nothing about muscular dystrophy. What do I do?

I think I have a hernia. I have fshd muscular dystrophy and im 31. Where i live the doctors no nothing about muscular dystrophy. What do I do?

See a surgeon: Where you live to see whether or not you have a hernia. If you need to have surgical repair, it would probably be best to go to a medical center for the operation, if you feel uncomfortable with your local doctors. ...Read more

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How do I caregive for my son with muscular dystrophy?

Lovingly : Children need love, patience, and guidance to grow. Learn as much as you can about your son's type of muscular dystrophy. Helping your child figure out how to accomplish his dreams with the physical limitatons the dystrphy imposes will be one of your great tasks. You and your child can figure out how to manage the perceptions of others as the physical manifestons become apparent. ...Read more

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Both of my sons are sick with duchenne muscular dystrophy. Is there a cure?

Both of my sons are sick with duchenne muscular dystrophy. Is there a cure?

Unfortunately no: Unfortunately there is no cure at this time. A great deal of research is taking place regarding treatment. ...Read more

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What is duchenne muscular dystrophy?

X-Linked Reces. MD: Duchenne dystrophy is inherited as an x-linked recessive trait, carried in women. It affects about 1in 3500 male births with no geographic/ethnic variation. About 1/3 of the cases are caused by new mutations, the others are familial. Diagnosis is usually evident from clinical features. The abnormality is in the cytoskeletal protein dystrophin. It is unclear why the lack of dystrophin ->findings. ...Read more

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What causes duchenne muscular dystrophy?

Genetic disorder: Duchenne's muscular dystrophy is an x linked genetic disorder causing abnormalities of the muscle fiber and eventual degeneration. ...Read more

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What causes duchenne muscular dystrophy?

Hereditary: It is inherited because of a defective gene on the x chromosome (female sex chromosome). It is referred to as a "sex-linked recessive" inheritance pattern. Girls get two x chromosomes, and the healthy one overrules the unhealthy gene, preventing girls from contracting the disorder. Boys get an x and a y. If the x has the defective gene, there is no corresponding gene on the y to overrule it. ...Read more

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What sort of disorder is duchenne muscular dystrophy?

What sort of disorder is duchenne muscular dystrophy?

Muscle weakness: Dmd is a condition when muscles start to die prematurely. It starts in early childhood, leads to weakness of voluntary muscles such as those of hips, pelvic area, thighs and shoulders. Calves are often enlarged. Eventually it involves all muscles including that of heart and that control breathing. Life span is shortened to less than 30 years. It is a genetic condition primarily in boys. ...Read more

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What are the symptoms of duchenne muscular dystrophy?

Weakness...: ...More prominent in large muscles than in small ones, progressing to inability to stand up without assistance (see http://en.Wikipedia.Org/wiki/gower_maneuver ); muscles are enlarged early on ("pseudohypertrophy) but wither later. ...Read more

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What are medications for duchenne muscular dystrophy?

Steroids: Currently the mainstay of therapy for duchenne is still steroids. Steroids slow the progression of the disease but are not a cure. There are many promising therapies being tested, but so far no others available at this time. For more information visit mda.Org or duchenneconnect. ...Read more

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Could you explain what is duchenne muscular dystrophy?

See link below: "duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs." - see more at: http://www.Parentprojectmd.Org/site/pageserver?Pagename=understand_about#sthas. ...Read more

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How did our ancestors on the prairie treat duchenne muscular dystrophy?

They Didn't: Although today's treatment is very limited, our ancestors other than supportive devices, had no real therapy. ...Read more

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Is there any way to prevent inheriting duchenne muscular dystrophy?

Abortion: The dystrophin gene can be detected in the fetus. If such testing proves the fetus is male and has the full defect, abortion is an option. There is no way to predict severity of the disorder. There is no way to prevent development of the disorder. Steroid therapy can be started early to try to modify the disorder. ...Read more

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How does one acquire duchenne muscular dystrophy?

Bad genes: Duchenne type of muscular dystrophy is located on the x chromosome and is found in males. There are specific genetic tests that describe the disorder in detail. Women are carriers, and boys develop symptoms during early childhood. In utero testing is available. There is no cure, but early detection and possible use of steroids with appropriate therapy may modify the course. ...Read more

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How does duchenne muscular dystrophy affect the body?

How does duchenne muscular dystrophy affect the body?

See below: It is caused by an alteration (mutation) in a gene, called the dmd gene that can be inherited in families in an x-linked recessive fashion, but it often occurs in people from families without a known family history of the condition. Individuals who have dmd have progressive loss of muscle function and weakness, which begins in the lower limbs. ...Read more

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Where does duchenne muscular dystrophy usually appear?

Before age 3 years: Boys with Duchennes MD experience weakness in their lower extremities, especially the hip and erector muscles of the thighs, with frequent falling. The appear to have hypertrophy of the calf muscles. ...Read more

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What can you tell me about duchenne muscular dystrophy?

Bad disease: This is a group of muscle diseases that all show progressive muscle decline over time. There are a variety of forms, varying from mild to severe. With progressive treatments and care, there are men surviving into their 30's forties and even 50's now. ...Read more

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Where can I find good info on duchenne muscular dystrophy?

MDA and NIH: Muscular dystrophy association www.mda.com. And national institutes of health website. http://www.ninds.nih.gov/disorders/md/md.htm. ...Read more

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Can a person with duchenne muscular dystrophy have children?

Can a person with duchenne muscular dystrophy have children?

Yes but . . .: Yes, there is no reason that a person with duchenne could not reproduce. However, most people with duchenne elect not to because as they get older their health tends to become more fragile. Also if they have daughters they have a 100% chance that their daughters will carry the disease which means their grandsons would be affected. ...Read more