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Doctor insights on: How Do I Caregive For My Son With Muscular Dystrophy

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How do I caregive for my son with muscular dystrophy?

How do I caregive for my son with muscular dystrophy?

Lovingly : Children need love, patience, and guidance to grow. Learn as much as you can about your son's type of muscular dystrophy. Helping your child figure out how to accomplish his dreams with the physical limitatons the dystrphy imposes will be one of your great tasks. You and your child can figure out how to manage the perceptions of others as the physical manifestons become apparent. ...Read more

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Dr. Kathryn Mosher
139 doctors shared insights

Muscular Dystrophy (Definition)

Muscular dystrophy refers to a group of muscle disorders characterized by progressive weakness of the muscles and ...Read more


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My son has muscular dystrophy and has tonsil stones , he has trouble breathing and keeps chocking , what do I do ??

My son has muscular dystrophy and has tonsil stones , he has trouble breathing and keeps chocking , what do I do ??

See doctor: Tonsil stones normally do not cause symptoms. Very large tonsils and adenoids may cause obstruction and breathing problems at night. You need to take him to his doctor soon with the trouble breathing and choking. It may or may not be related to his muscular dystrophy. He needs a full evaluation of his lungs and ear/nose/throat to know what needs to be treated. ...Read more

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Would a child show signs of muscular dystrophy by 4? My son has low muscle tone and can tire quicker than brothers but he can jump, ride bike, etc

Would a child show signs of muscular dystrophy by 4? My son has low muscle tone and can tire quicker than brothers but he can jump, ride bike, etc

Many types: There are many different types of muscular dystrophy, some of which do not show symptoms until even adulthood. If you have concerns about your child's muscle functions, best to go to a large pediatric academic center that has a muscular dystrophy clinic. There you will find the various experts who can determine if there even is a problem, and it so, what it is. Best to use experts here! ...Read more

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My son is 5 yo and out-toes when he runs. It makes him fall.Saw ortho last year who said he would outgrow. Should I worry about muscular dystrophy?

My son is 5 yo and out-toes when he runs. It makes him fall.Saw ortho last year who said he would outgrow. Should I worry about muscular dystrophy?

Needs hips chk: He needs his hips checked for dysplasia yes as child grows the center of gravity does change.but he should not fall needs evaluation for hips and knees ...Read more

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My son had genetic test sent to Harvard For hgb disorder. He also has low muscle tone. Would the genetic testing pick up muscular dystrophy too?

My son had genetic test sent to Harvard   For hgb disorder. He also has low muscle tone. Would the genetic testing pick up muscular dystrophy too?

Generally not: That would be like doing a compression test on a car engine and finding a brake problem. You only find (or not) what you're looking for. And muscular dystrophy isn't just a matter of muscle tone. You need to read up on a disease or condition before you start making these transcontinental jumps to conclusions. ...Read more

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Both of my sons are sick with duchenne muscular dystrophy. Is there a cure?

Both of my sons are sick with duchenne muscular dystrophy. Is there a cure?

Unfortunately no: Unfortunately there is no cure at this time. A great deal of research is taking place regarding treatment. ...Read more

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What kind of anemia or hemoglobin disorder would cause elevated LDH? Sons is 600. Concerned this is a marker of Muscular dystrophy?

What kind of anemia or hemoglobin disorder would cause elevated LDH? Sons is 600. Concerned this is a marker of Muscular dystrophy?

Don't think so: Without much background data would consider a hemolytic anemia. Need to have your son discuss this with his physicians as than be other causes. ...Read more

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Son has muscular dystrophy. School had an eye exam and they made a note that his eye lids are drooping a little over his pupils. Should he be seen by his doctor?

MD: I would have him see an eye physician...Not only due to ptosis (eyelid drooping) which can be helped with minor surgery but also for cataracts and other ophthalmalogic problems associated with various muscular dystrophies.... ...Read more

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How common is muscular dystrophy?

How common is muscular dystrophy?

The muscular: dystrophies (MD) are a group of > 30 genetic diseases that cause progressive weakness and degeneration of muscles. Age of onset, distribution & extent of skeletal muscle weakness, rate of progression, cardiac & smooth muscle involvement & pattern of inheritance differ. Duchenne MD affects 1:3500- 1:6000 male births/year in the US. See http://www.ninds.nih.gov/disorders/md/detail_md & mda.org. ...Read more

Dr. Robert Kwok
3,417 doctors shared insights

Children's Health (Definition)

Children's health refers broadly to the health maintenance and prevention ...Read more