Doctor insights on:
How Can My Treatment For Lupus Be Improved
What type of treatment can be given when lupus-like symptoms do not quite warrant a diagnosis? Do I have to wait for a true diagnosis to get relief?
A correct diagnosis: Get a correct diagnosis now. People with lupus can have a variety of symptoms that can be present in other conditions. If you do not have lupus you have something else. This needs to be defined and then you get help now. Waiting for a diagnosis that you may never get is not going to help you. ...Read moreSee 1 more doctor answer
Many!: Many options, depending on severity and your current treatment. Pulsing IV steroids at high dose, cellcept, (mycophenolate mofetil) benlysta, azothioprine, cyclophosphamide, azothioprine, Methotrexate are all options, alone or in combination. Your treatment should be coordinated by someone in rheumatology and/or nephrology! ...Read more
Probably yes: There is no reason why Lisinopril cannot be used to treat high blood pressure in patients diagnosed with lupus nephritis. In fact, it may be the drug of choice in lupus patients who are also spilling protein in their urine. It may be need to be used with some caution in those patients with more advanced cases of lupus-related kidney disease as it may contribute to high levels of potassium. ...Read more
Why don't men want to go to doctors? My husband has discoid lupus, and I feel I have to drag him in to be seen. What will happen to him without treatment?
Please be specific: Which part of the body is swelling? Your legs? Your joints? The treatment will depend on location and cause of it. ...Read more
See below: Posterior reversible encephalopathy syndrome is characterized by headache, confusion, seizures, visual loss and M.R.I. showing characteristic lesions. It is seen in lupus and treatment is treatment of lupus, treatment of coexisting hypertension, and treatment of kidney failure or eclapsia if it exists. You should be and probably are in the good hands of a Rheumatologist, Neurologist and others. ...Read more
I'm just wondering, if you have lupus and sarcoidosis and you refuse treatment. How long could you live for?
It depends: It depends on the organ involvement. Talk to your rheumatologist who knows your case best and he or she could give you a better estimate. ...Read more
Is it normal w/lupus that even if treatment is working, most days are good, &labs look good to still get occasional bad days related to condition? Why?
Not enough info: What do you mean by bad days and what specific issues do you mean? But yes, there can be occasional days with increased symptoms even if the control is otherwise good. ...Read more
S L E : Systemic lupus erythematosus is an auto immune disease, that can affect skin, joints, kodneys, brain, and other organs.Auto immune means bodys immune system mistakenly attacks healthy tissues it is treated with steroids and non steroidal anti inflammatory meds, avoid sun and wear protective clothing. Cytotoxic drugs if you do not respond to cortico steroids cytotoxics have side effects need to be monit. ...Read moreSee 1 more doctor answer
No sun, some Rx: Sun protection, topical steroids. If no better in 2-4 weeks, cortisone injections into the lesions or topical calcineurin inhibitors. If still no better in 2-4 more weeks, oral hydroxychloroquine, an anti-malarial medication. There are even further treatment for refractory cases but the above usually works. ...Read more
Not usually: It will most often resolve on its own. ...Read more
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