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Doctor insights on: How Can I Manage My Skin From Affects Of Lupus And Ehlers Danlos Syndrome

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How can I manage my skin from affects of lupus and ehlers danlos syndrome?

How can I manage my skin from affects of lupus and ehlers danlos syndrome?

Lupus Management: Only a dermatologist or rheumatologist can manage lupus and ehlers-danlos syndrome. Seek one out. . . Do it soon! ...Read more

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I have really stretchy skin. Worried I might have ehlers-danlos syndrome?

I have really stretchy skin. Worried I might have ehlers-danlos syndrome?

Possibly: However, the hallmark of eds is increased extensibility of joints. If you do not have this, you do not have eds. ...Read more

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If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?

If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?

May occur: The thin skin is part of Ehlers-Danlos. It is called cutest Lexus. However as we mature there can be increased thinning. Part of it also depends on the type of Ehlers-Danlos you as there are many genetics subtypes ...Read more

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Is it possible to have extra stretchy skin without having some serious underlying condition like Ehlers-Danlos syndrome or Marfan Syndrome?

Is it possible to have extra stretchy skin without having some serious underlying condition like Ehlers-Danlos syndrome or Marfan Syndrome?

Potentially: There certainly is a variation in what is considered normal for skin elasticity. Don't hesitate to be seen if there is a question. A biopsy can usually be pretty definitive if there'd is any question about the diagnosis. ...Read more

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Can my cousin with ehlers danlos syndrome live a full life if she mostly has skin involvement and not organ involvement? And can she have kids?

Can my cousin with ehlers danlos syndrome live a full life if she mostly has skin involvement and not organ involvement? And can she have kids?

Detoxification: Skin is the largest organ of the body. It is a great detoxifier, but you do not want that to be its job or else this is the result. You need to find out why the other organs such as the liver, Intestines and her lungs are not functioning it optimal detoxification. ...Read more

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Is it possible to have symptoms of different types but not the full ehlers-danlos syndrome?

Is it possible to have symptoms of different types but not the full ehlers-danlos syndrome?

Spectrum of variety: Yes, it is possible to have several of the symptoms associated with eds and not have the formal syndrome. Many hyperlax individuals have severely loose joints (shoulder and knees are typical), yet they do not have formal eds. ...Read more

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How do people inherit ehlers-danlos syndrome, vascular type?

How do people inherit ehlers-danlos syndrome, vascular type?

Not well known: The inheritance pattern is variable. In the more common eds type3 (hypermobility type), the inheritance is autosomal dominant meaning 50% of offspring would be expected to have it. Rarer forms like the vascular type is less predictable. If you have a parent who died of aortic dissection, you should be checked yourself with an echocardiogram. ...Read more

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Is it too risky for a woman with ehlers-danlos syndrome to have a baby?

Is it too risky for a woman with ehlers-danlos syndrome to have a baby?

More info needed: Most all syndromes vary in degree so a blanket statement of yes or no regarding pregnancy is presumptious you should get consultation from a perinatalogist before you quit effective birth control. ...Read more

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Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.

ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more

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I'm FTM transgender. I want to have metoidioplasty in the future, but I have Ehlers-Danlos syndrome type 3. Could I still have the metoidioplasty?

I'm FTM transgender. I want to have metoidioplasty in the future, but I have Ehlers-Danlos syndrome type 3. Could I still have the metoidioplasty?

EDS/Metoidioplasty: Hi. If you undergo transgender surgery, you have the same risk as everyone for the surgery - plus muscle recovery with EDS will be important post=operatively. You might have some systemic symptoms that might last longer than most but may do just fine. Rest and give yourself ample time recovery after the surgery and good luck! Welcome to health tap, Dr. Ivy Fisher ...Read more

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What treatments for ehlers-danlos syndrome can I try at home?

What treatments for ehlers-danlos syndrome can I try at home?

None: There are several kinds of eh, er danlos and there is no alternative treatment. Evaluation of type and extent is necessary to monitor possible internal involvement in certain cases such as heart valve abnormalities. ...Read more

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How likely is ehlers-danlos syndrome if one parent has symptoms/signs?

How likely is ehlers-danlos syndrome if one parent has symptoms/signs?

From 0 to 50%: Ehlers-danlos syndrome (eds) is a group of inheritable disorders. There are two different inheritance patterns of eds, autosomal dominant and autosomal recessive. If you have the dominant type, there's a 50% risk of eds in your child. If you have the recessive type, eds can only occur if your partner also carries the recessive gene. A genetic counselor is needed to tell you your exact risk. ...Read more

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What can someone do for hypermobility syndrome / ehlers-danlos syndrome?

What can someone do for hypermobility syndrome / ehlers-danlos syndrome?

Strengthen: Strengthening opposing muscle groups helps stabilize joints. Avoid concussive sporting activities such as tennis, but leap to activities suck as cycycling, ei. Stationary, or road (mtb) bike. But stabilizing your joints with my recommendations, which involved weight or machines is best. (machines are safeest, because your joints are tracked in a specific motion.) hypermobility causes arthritis. ...Read more

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Can you have ehlers-danlos syndrome without a parent having it diagnosed?

Can you have ehlers-danlos syndrome without a parent having it diagnosed?

Yes: Ehlers-danlos syndrome (eds) is a group of inheritable disorders. Some types have autosomal dominant inheritance (everyone with one gene gets the condition) and other types have autosomal recessive inheritance. If both parents have a single recessive gene for the same variety of eds, neither parent will have the condition but their kids have a 25% risk of having eds and 50% risk of being a carrier. ...Read more

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Am going to be olympian due to hypermobility. Does this sound like ehlers-danlos syndrome?

Am going to be olympian due to hypermobility. Does this sound like ehlers-danlos syndrome?

Hypermobility: Ehlers danlos syndrome does have hyperflexible joints - this does not mean you will an olympian. If you think you have ehlers danlos then see your doctor to get a confirmed diagnosis. ...Read more

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Ehlers danlos syndrome and fatigue, how are these related?

Ehlers danlos syndrome and fatigue, how are these related?

Depends: It depends on the type of Ehler-Danlos. Some can involve the heart and blood vessels, with mitral valve prolapse, aortic aneurysm and mid-sized arteries, the gastrointestinal tract, the skin and other organs. Proper examinations can give information regarding fatigue and other symptoms. ...Read more

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Are headaches and migraine related to ehlers-danlos syndrome?

Are headaches and migraine related to ehlers-danlos syndrome?

See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out. ...Read more

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