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Doctor insights on: How Can I Cope With A Child With Cystic Fibrosis

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How can I cope with a child with cystic fibrosis?

How can I cope with a child with cystic fibrosis?

Support: Go to your local CF treatment center, they will have oodles of resources for you and your child. The CF foundation has a list of approved centers. ...Read more

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Dr. William Walsh
981 doctors shared insights

Cystic Fibrosis (Definition)

Cystic fibrosis is a genetic disorder of the lungs and digestive tract. It causes recurrent lung infections and inhibits growth in patients. Average life expectancy of patients with cystic fibrosis ...Read more


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What is done for a child with cystic fibrosis?

What is done for a child with cystic fibrosis?

Supportive care: CF patients benefit from active coordinated care involving their pcp and a regional cystic fibrosis care center.These are usually part of a children's hospital and involve pediatric pulmonologists and other respiratory care specialists. ...Read more

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What are the annual hospitalization costs of having a child with cystic fibrosis?

What are the annual hospitalization costs of having a child with cystic fibrosis?

Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf. Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices. ...Read more

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Does a child with cystic fibrosis have to live in a clean and dust free environment?

Does a child with cystic fibrosis have to live in a clean and dust free environment?

No: Clean helps & dust free helps for any kid.To some extent this ideal is relative and perfection on either point is unrealistic. With a stable hygienic environment, close monitoring by a CF center, & proper nutrition, these kids do well.Your CF center should have guidelines for healthy living they will share with you during your regular followups. ...Read more

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Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?

Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?

Yes: Avoiding respiratory irritants is a good rule for a child with cf, but kids with this disease should not be restricted from living a life as normal as possible. ...Read more

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What toys would help a child with cystic fibrosis?

Fun ones: Toys they like are the best for them... Kids with CF are all different, so find out what they want. ...Read more

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What are healthy high calorie foods for a child with cystic fibrosis?

What are healthy high calorie foods for a child with cystic fibrosis?

CF Nutrition: High calorie foods have more calories per ounce. For example, a tablespoon of olive oil, an ounce of cheese has more calories than same amount of rice. Adding cheese, olive oil, nuts, dressing to the meal will help boost calories. In addition, supplements are available specifically for CF patients. The cff.Org and prmg respiratory practice (fax 858 259 9689) can provide further information. ...Read more

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What are the chances of having a second child with cystic fibrosis?

1 in 4 or 25%: Genetic counseling prior to pregnancy is very important if there is a family history of cystic fibrosis. There are many options available to parents who have already had a child with cystic fibrosis. ...Read more

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What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700 . It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000. More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read more

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Could a child under 2 be diagnosed with cystic fibrosis?

Yes: CF is an inherited disorder that requires 2 mutations (1 from mother & 1 from father) to lead to the clinical disease. If you have it, you were born with it. Many states in the U.S. Perform newborn screening that can pick the disease up at birth, but it can go undiagnosed for years in some cases. ...Read more

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