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Doctor insights on: Hemochromatosis And Polycythemia

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Dr. (Liz)Phuong Tran
320 Doctors shared insights

Hemochromatosis (Definition)

A medical condition caused by iron accumulation in the body. It can be the result of underlying hereditary disease or be due ...Read more


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Are there support groups for polycythemia/ hemochromatosis in dallas tx area? What is a list of symptoms for these disorders? Thank u.

Are there support groups for polycythemia/ hemochromatosis in dallas tx area? What is a list of symptoms for these disorders? Thank u.

Search Internet: I found many online support groups for polycythemia by searching for "polycythemia search group" (http://goo. Gl/u06c9s). I'd suggest asking those members for assistance in your area. Same goes for hemochromatosis support groups (http://goo. Gl/8yvkzb). As for symptoms, check out http://www. Mayoclinic. Com/health/polycythemia-vera/ds00919 & http://www. Mayoclinic. Com/health/hemochromatosis/ds00455. ...Read more

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What are the symptoms of hemochromatosis?

What are the symptoms of hemochromatosis?

Varies: Many times, it is only presented with high iron saturation and or iron storage without having any symptoms.
However, the clinical manifestations of iron accumulation can include liver disease, elevation of liver enzymes, skin pigmentation, diabetes mellitus, arthropathy, impotence in males, and cardiac enlargement with or without heart failure or conduction defects etc. ...Read more

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What happens when you have hemochromatosis?

Easy Rx: The key is that you got diagnosed, hopefully early. 1 person in 200 will be symptomatic with this. I'm going to assume the diagnosis is correct & it's common hemochromatosis. You'll have a pint of blood drained maybe 2x/week until you feel better / labs turn good. The blahs, thumb pain, lackluster love life, and whatever else will improve. Untreated, it kills you, treated you do great. ...Read more

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What is the impact of hemochromatosis on you?

What is the impact of hemochromatosis on you?

Death if untreated: Thankfully, if it's picked up early, you're spared decades of ill-health and ultimately death from involvement of the heart, liver, and/or endocrine pancreas. Of all the really nasty common diseases, hemochromatosis is the easiest to treat, by blood-bank-style donations. ...Read more

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My friend has a hemochromatosis? What is that?

Excess iron: Some people have a hereditary condition leading to excessive iron accumulation in the body. Excess iron is toxic. It is easily treatable. See this site for more info.
http://www. Mayoclinic. Org/diseases-conditions/hemochromatosis/basics/definition/con-20023606 ...Read more

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What are the symptoms of having hemochromatosis?

Subtle: Simply feeling unwell. Arthritis worst at the base of the thumb is said to be quite suggestive. Erectile dysfunction in a man. When the symptoms become obvious, the damage is already massive. ...Read more

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What foods are recommended for someone with hemochromatosis?

What you like: If you are monitoring your serum ferritin and getting phlebotomy as needed, go ahead and enjoy that big, juicy, iron-rich steak. If you have one of the rare hemochromatosis variants for which phlebotomy is futile, then you need to get with a specialist dietician. ...Read more

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Can hemochromatosis kill you?

Yes: Untreated, it's lethal. If it's unrecognized, your elevated liver enzymes may lead to your being accused of being a secret problem drinker. You'll lose your sexuality, develop arthritis, and eventually turn yellow, bloat up, and die over several years. It's not pleasant. If you are diagnosed with hemochromatosis, be aware that it's the easiest of all the killers to keep under control. ...Read more

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Is the blood dark in hemochromatosis?

No: The color is normal. Brown blood usually means methemoglobin. ...Read more

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Does stress make hemochromatosis worse?

Does stress make hemochromatosis worse?

Maybe: I see that you have this fairly common illness and I hope that you have having it managed scientifically. Physical and emotional stress are rough on the secondary diabetes that often results from hemochromatosis. If there is stress in your life, I hope it is what Selye called "eu-stress" to help you achieve & learn, and that you'll cope with "dis-tress" proactively. Best wishes. ...Read more

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Are hemochromatosis and diabetes linked?

Are hemochromatosis and diabetes linked?

Very much so: Untreated hemochromatosis ("bronze diabetes") will often cause diabetes that will self-cure when the hemochromatosis is treated. ...Read more

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Help docs! My friend has a hemochromatosis?

Glad it's diagnosed: Of all the common, dread diseases, this one is the easiest to manage. I'm going to assume this is primary hemochromatosis not secondary to transfusion for some other lifetime illness. Your friend will be treated with regular phlebotomy and will start feeling a whole lot better in a short time. ...Read more

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How can you naturally treat hereditary hemochromatosis?

Blood donation: By regularly donating blood, one can lower the iron stores in the body. ...Read more

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What is the difference between hemosiderosis & hemochromatosis?

Acquired vs.: Genetic. Hemochromatosis is the result of a mutation in the iron metabolism gene and body absorbs more iron than needed and it gets deposited in tissues and causes disease. Hemosidrosis usually occurs in people who need repeated transfusions of red cells, e.g, sickle cell disease, or thalassemia, the excess iron in transfused red cells deposits in the tissues. ...Read more

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What is the difference between hemosiderosis and hemochromatosis?

What is the difference between hemosiderosis and hemochromatosis?

Hemochrom is Genetic: Primary hemochromatosis is a genetic disorder that causes too much iron in tissues. It can be treated by removing a little blood every week or so. Hemosiderosis is not genetic. Can be caused by alcoholism or having many blood transfusions leading to excess iron in your cells. ...Read more

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What is the difference between hemosiderosis and hemochromatosis?

Iron overload: Both are forms of iron overload disorders with different etiologies and pathophysiology. Hereditary hemochromatosis is caused by a gene mutation and involves deposition of hemosiderin (storage form of iron) in the organs of the body, such as the heart, liver, pancreas, and skin. The two types of hemosiderosis are idiopathic pulmonary and transfusion-related. ...Read more

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Can exposure to core samples in the oil field cause hemochromatosis?

Probably not: Hemochromatosis is a genetic disorder in which the body absorbs more iron than needed. I do not know the composition of cores you refer to, but it is not likely to cause hemochromatosis. You may consult this site for info: http://www. Mayoclinic. Org/diseases-conditions/hemochromatosis/home/ovc-20167289 ...Read more

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My friend has hemochromatosis. He has never had therapeutic phlebotomy. What should he do?

My friend has hemochromatosis. He has never had therapeutic phlebotomy. What should he do?

Depends: Hi. Hemochromatosis can be a hereditary disease from mutations in the HFE gene, or it can be from transfusion dependency (e.g., for various alpha and beta- thalassemias). You can only treat the hereditary hemochromatosis with phlebotomy...you can't phlebotomize transfusion-dependant patients! Clarify what your friend has, and if he is in fact iron-overloaded. Phlebotomy is easy and very effective ...Read more

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What do you suggest if my dad has niemann pick's disease type c and also hemochromatosis.?

Love him: Hemochromatosis is deadly if missed but very easy to manage. Niemann-Pick's C is getting picked up more often. See whether Dad wants to try to get into a study -- your physician can offer guidance. He's fortunate to have a youngster who cares. Best wishes. ...Read more

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Why doesn't anyone know anything about hereditary hemochromatosis (hh) if it is so common? I feel all alone.

Under-recognized: Actually around 1 person in 200 has it, but it often gets missed -- I've seen it enough at autopsy as a "surprise". If you're diagnosed, be thankful that of all the common, lethal disease it is by far the easiest to manage. There's no glamor, ribbon parades, or sad advertisements simply becuase it's so readily manageable with phlebotomy. ...Read more

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Can you tell me how to know if you have hemochromatosis diabetes or bronze diabetes/is there an online quiz you can take?

Can you tell me how to know if you have hemochromatosis diabetes or bronze diabetes/is there an online quiz you can take?

Real testing: Forget "online quizzes". This is the 21st century, and anything less than a real workup by your physician would be playing games with a life-and-death matter. If you have elevated liver enzymes, an elevated serum iron, ferritin, or transferrin saturation, the odd skin color or the arthritis at the base of the thumb, ask a competent physician to work you up ; rx if you have it. ...Read more

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Has anyone had adult pt grow taller from Hemochromatosis? Saw post/study saying it causes that. Not Dx w/ it but is it poss why I'm growing in late30s

Get checked!: I can understand your worries. If you read the study, carefully, you will see that it's possible to be checked to see if that's what is wrong. Please see your doctor and find out, so you can relax. Best, if you get re-measured at a doctor's office who's measured your height before. The only way to found out what's going on is to see a doctor. We cannot give you a 100% correct diagnosis here. ...Read more

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Which dr sees hemochromatosis?

Any: Any competent primary care physician can diagnose and arrange for treatment hemochromatosis. You may get sent to the gastroenterologist, cardiologist, endocrinologist and geneticist. The key is that if this is common hemochromatosis, you have the serious disease out of all of them that's easiest to manage effectively. ...Read more

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Can I get cure with hemochromatosis?

No: But mainstay of treatment is therapeutic phlebotomy. ...Read more

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Why do people develop hemochromatosis?

Why do people develop hemochromatosis?

It's in the genes: In hereditary (= inherited from parents) hemochromatosis, too much iron is absorbed by the gut & deposits in tissues. Liver, heart, other damage can result. It is autosomal recessive: both parents must carry the gene & not all offspring will be affected. Secondary (= due to other causes) hemochromatosis can occur with certain types of hemolytic anemia (red blood cells bursting, releasing iron). ...Read more

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Do a lot of people get hemochromatosis?

It's relatively rare: Hemochromatosis is a disorder where a person has too much iron in the blood. This can cause significant problems as iron will deposit in areas like the hear and liver. While it is typically rare, it can be seen if someone takes too much iron supplement. Generally, men should not take iron if they are otherwise healthy. Women, on the other hand, are usually ok provided they are still mentruati. ...Read more

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Could I go into the army with hemochromatosis?

Could I go into the army with hemochromatosis?

No: AR 40-501 Ch 2-e (5) "current or history of metabolic liver disease, including but not limited to hemochromatosis..." No chance of a waiver for that one. ...Read more

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What are some of the symptoms of hemochromatosis?

A few: Lack of energy, abdominal pain, memory fog, loss of sex drive, heart flutters, irregular heart beat. When symptoms are associated with hemochromatosis, these usually begin in men in their late 20’s to early 30’s. In women, symptoms usually start about 10-15 years after they stop having a period due to menopause, birth control pills or hysterectomy. ...Read more