Doctor insights on:
Hemangiomas Lupus Vasculitis
Unlike herpes, my ulcers first have a white covering & then break open, never have a red center. Believed lupus/vasculitis misdiagnosis. Wht cld it be?
No: Vasculitis of the actual nerve is very very rare. More likely things are nerve swelling ie pseudotumor cerebri, or papilledema. The answer is in the actual findings on opthalmologic tests and patient should be seen both by a rheumatologist and a neuro-opthalmologist. Treatment for actual vasculitis is more difficult, and the diagnosis usually requires a cerebal blood vessel angiogram. ...Read more
Looking for top doctors in the u.S. Who treat CNS lupus/ceribritis vasculitis. My 22 year old niece has it and none of her drs have ever treated it.?
Need Rheumatologist: My suggestion is to see a progressive rheumatologist in your relatively local area. There are many great centers around the country. Your location and access to the doctor can not be discounted. This is a long term disease, not a single visit issue. Many great doctors are around you. ...Read more
No telling: With proper management of the condition -- one can have a normal lifespan praise the lord! ...Read more
Can methotrexate help with mild vasculitis of brain/cerebritis or neuro symptoms caused my ctd such as lupus?
What are the possible side effects/long term issues related to cutaneous lupus? I currently have vasculitis in my legs. What else could be of concern?
It is always: Important to make sure you truly have the cutaneous type and not the systemic type. Simple blood tests may help. Also having a good Rheumatologist to help with the definitive diagnosis would be important. ...Read more
The palm-side of my hands has a mottled look, like ground beef. With the fingertips being dark red. What can cause this? Lupus? Raynaud's? Vasculitis?
ANA+ (1:160 homologous), all other titers NEG (Lupus, RA, vasculitis, etc) Rheum thinks seroneg RA. Morning stiffness, joint/spine/SI pain. Possible?
Yes: Trust your rheumatologist or get a second opinion. Lupus is also very possible. ...Read more
I developed p.O.T.S and lupus post pregnancy, my BP also drops when standing, is there ever a chance of it getting better?
P.O.T. S: P.O.T.S and lupus post pregnancy needs thorough evaluation and management due to associated symptoms of dizziness, near syncope, palpitations to name a few with changes in posture. Lupus by itself needs careful evaluation and management by a rheumatologist due to its multi system involvement. With full understanding and proper management symptoms of p.O.T.S has better prognosis in younger pts. ...Read more
2 IgA results of low 50's I have lupus, I experience swollen painful lymph nodes, painful breathing etc can low IgA cause symptoms, what should I do?
No: This would not have accounted for your symptoms. Make sure you get a lung function test to find out whether asthma is the only cause for your breathing impairment. Another remote possibility is a drug reaction from the many drugs you have been taking to control your autoimmune disorder. If your rheumatologist can't help you, get a 2nd opinion. ...Read more
How come I can jog 2.5 miles without any issue or shortness breath but I walk a flight of stairs and feel out of breath, I have P.O.T.S and MILD lupus
Not likely: Why worry about 3 disorders, as you likely possess one unifying diagnosis to explain your problems. A good place to start is with an endocrinologist to deal with diabetes and the complications secondary to this. Focus on these issues, and later, if things seem peculiar look into co-morbities. Lastly, if you possess diabetes and lupus, doubt you have ms in addition. ...Read more
Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic
Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?
Inflammation: Lupus and the pre-menstrual phase of the cycle are both known for being states of increased inflammation, so it makes sense that you might have this and notice it during your menstrual cycle. I would speak with your rheumatologist regarding medications that are safe to take to diminish the flare symptoms, as some anti-inflammatories are harmful for kidneys. Best of luck. ...Read more
Can lupus cause malabsorption when not treated? I jut got a message from my doc saying "strongly specific to lupus" could this be the answer to it all the p.O.T.S and weight loss/malabsorption
I hate my life and how I have to be afraid of my medical illness's at 27. Lupus. P.O.T.S. Now maybe lung disease! Yes u can see im anxious w/ my questions but I just want to be ok for once. Just ok.
Find a therapist: Having chronic illness can put a lot of strain on a person and cause depression and anxiety. Feeling like you are always having some medical issue is very frustrating. Talk with your doctor about a referral to a good therapist. Finding better ways to manage your stress can help you manage your illness better as well. It won't make your disease go away, but may help you feel better! ...Read more
Meds & prevention: All people with systemic lupus should take Plaquenil (hydroxychloroquine) unless allergic. It helps control flares & prevent organ damage. Also nsaids help pain. Immune suppression drugs may be needed. Preventing infection (vaccines, hand-washing, etc.) and preventing heart disease are important. A rheumatologist is helpful. ...Read more
A complex autoimmune: Lupus is a very complex disease where a patient's own immune system is attacking your own body. Every patient has a different presentation and you would do best discussing lupus with your doctor and an experienced rheumatologist. ...Read more
Yes: Systemic lupus erythematosus (SLE) is a multisystem autoimmune connective tissue disorder with various clinical presentations. SLE affects many organ systems, including the central and peripheral nervous systems and muscles. Speech may be affected, although not a common manifestation of SLE. You may need a spinal tap to examine the fluid for evidence of white cells, protein and antibody. ...Read more
Fibromyalgia: Lupus can cause almost any symptom so it often mimics other diseases. It is diagnosed by a list of clinical and lab criterea. It is best diagnosed by a rheumatologist with experience in this disease. It is most commonly confused with other autoimmune diseases and other types of arthritis. It is also often missed in fibromyalgia which occurs with it. I hope this is the information you ...Read more
There are many types of lupus and this depends on the types discussed.
This is skin lupus, kidney lupus, lung lupus, neurologic lupus, blood count changes. Each of these have many different sub-types. You can discuss this with your physicians. ...Read more
Everyone is different: Everybody with lupus is different. Some people could have a very mild lupus. Others can have very serious involvement of many organs. The purpose of our therapy is to control it the best we can and help stamp it out. ...Read more
Not a simple answer: Currently the diagnosis of sle is based on 11 criteria that the patient may have at once or over a period of time. To have a diagnosis, 4 of them must be met. Some criteria are clinical and others are from lab tests. See your physician if you are concerned about it. ...Read more