Doctor insights on:
Hb E Beta
My baby have hb e beta thall and her age is 10 months 11 days,current hb level is 9.7.But she is not interested to taking any food.What to do?Pls help
Beta thalassemia: With multiple blood transfusions, iron toxicity can occur which affect the liver. If your infant is acting lethargic, not acting lake she has her normal energy, I would contact you doctor right away. The only cure that I know of is bone marrow transplant, but if she has iron toxicity, she needs that to be treated right away. ...Read more
My first child have hb e beta thall and i want to get 2nd baby.We are carrier.My husband have e trait and ihave beta thall minor.What will i do?Advice
For those who having hb e/beta thalassemia, what food should they eat and what should not they eat?
Genetic disorder: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc3237252/ "the disorder is characterized by marked clinical variability, ranging from a mild and asymptomatic anaemia to a life-threatening disorder requiring transfusions from infancy. "...."careful tailoring of treatment is required for each patient, and that therapeutic approaches should be re-assessed over-time." not curable..Look at website-. ...Read more
If every green vegetables has iron then what type of vegetables I will give to my baby who have hb e beta thalassemia?
Need more info.: The pattern of your blood counts over the years would be helpful. Many asian populations have hemoglobin e. Beta thal trait is also frequently seen. You need to see your hematologist to clarify what is going on and any potential treatments. Good luck. ...Read more
Not the same.:
Hemoglobin e is found in the asian population frequently and may be seen with thal trait.
Thal major is a serious problem requiring much intervention, including transfusions and frequently splenectomy. Your doctor should be your guiding you.
Pregnancy needs to be discussed with your doctor. ...Read more
Weight is 25th %ile,: in the normal range. Review her growth chart with her pediatrician to know if her velocity of growth in length, weight & head circumference & her weight-for-length are okay. Hb E-Beta Thalassemia symptom severity can vary widely. I hope she gets a Complete Blood Count at 6-9 mos., sees a pediatric hematologist regularly & a geneticist who can do further tests to help you know what to expect. ...Read more
No: The normal parent will give his or her normal gene to their baby. That means the baby will have one abnormal and one normal gene, meaning the baby would be a "carrier" of one bad gene and not suffer the actual disease. The only way the baby would end up with 2 abnormal genes is if the gene from the normal parent got altered by a new mutation... Which is unlikely to happen. ...Read more
Always getting transfusion when Hb level is 7 of a 10 months 10 days Hb E Beta Thal baby is ok ? Pls advice.
Depends in growth: Hgb E-beta thalassemia is a thalassemia syndrome that results in highly variable clinical symptoms. A minority of these patients are transfusion independent. The majority are intermittently dependent on transfusions. More recently, it has become apparent that these patients can grow and develop adequately with lower Hgb values (as low as 6). Inadequate growth is the criteria for transfusion. ...Read more
Both of we are carrier and our first baby has hb e beta thall. We are interested about our 2nd baby.Is there any genetic treatment? Please advice...
Risk: There is a 50-50 risk that your baby will be a carrier like you and a 1 in 4 risk that the baby will have the disease. As of now there is no genetic cure ...Read more
My 6.5 months baby have hb e beta thall and she needs monthly transfusion.Is it seems dangerous? Yesterday she taken transfusion when her hb was 7.02.
There's no choice: If a baby cannot make enough of her own red blood cells, she cannot grow and develop. Even though there are problems that come with transfusions, the child has no choice, because she must get enough blood in her body to live and grow. When asking about your baby, be sure you say "hbe beta thal major". That way, doctors will know you are not talking about "thal minor", which is very common. ...Read more
What hb level should maintain to getting transfusion for a 11 months hb e beta thall baby?Pls advice..
No good number: The target needs to be somewhere between the child's normal, baseline hemoglobin value and the hemoglobin level that relieves his symptoms. After transfusion he should be calm, feed normally, have a normal heart rate, and have good color. Once that is achieved he will need some time to get back to his normal hemoglobin. Over-transfusing or transfusing too fast can create other problems. ...Read more
I'm giving rice to my baby with olive oil.She have hb e beta thall so is it helpful or harmful for her?
My 6.5 months baby have hb e beta thall and sometimes i'm giving her carrot juice.Is it harmful for her?
Probably not : This is hemoglobinopathy occur more commonly in southeast asia and can present with varying degrees of severity and need for blood transfusions. I can find no evidence in the literature that carrot juice would be bad for your baby, but i will keep looking. ...Read more
I am HB E Beta thalassaemic patient. I am taking regular Hydra capsule prescribed by my doctor. is it right for me?
You need: to consult with your doctor and possibly a hematologist. It is not our place on Health tap to question the treatment of your physician. ...Read more
Can i give my baby potato, dal and soyabean oil with rice? She have hb e/beta Thai and age 5 months 10 days. Pls advice.
Not necessarily: Did you look at the website reference i sent? It is quite informative. You will be best served with a visit to a specialist to get all your questions answered. It is clear you are so worried about this, and it would be so much more reassuring to have a face to face visit with someone who can answer all your great questions. ...Read more