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Doctor insights on: Grandson Ebsteins Anomaly

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My grandson was just diagnosed with ebsteins anomaly. What can be done for it?

My grandson was just diagnosed with ebsteins anomaly. What can be done for it?

Ebstein's anomaly: Ebstein's anomaly is a rare heart defect that's present at birth (congenital). In ebstein's anomaly, your tricuspid valve — the valve between the chambers on the right side of your heart — doesn't work properly. Blood leaks back through the valve, making your heart work less efficiently. Ebstein's anomaly may also lead to enlargement of the heart or heart failure.

If you have no signs or symptoms. ...Read more

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My grandson was just diagnosed with ebsteins anomaly. Is this dangerous? What can be done for him?

My grandson was just diagnosed with ebsteins anomaly. Is this dangerous? What can be done for him?

Depends: There is a remarkably wide variation in the severity of EA from severely ill, cyanotic newborns to incidental finding later in life and everything in-between. When severe, surgical repair and replacement of the tricuspid valve should be considered. Best wishes to him. ...Read more

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What do you suggest if my grandson was just diagnosed with ebsteins anomaly is it dangerous, and what can be done for it?

What do you suggest if my grandson was just diagnosed with ebsteins anomaly is it dangerous, and what can be done for it?

Ebsteins: It's a rare congenital heart defect involving the right side of the heart and heart valves. Treatment can be complicated and involve both surgery and medications. Your grand baby's cardiologist can best advise you on treatment options. ...Read more

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Should I be concerned if my grandson was just diagnosed with ebsteins anomaly is it dangerous, and what can be done for it?

Should I be concerned if my grandson was just diagnosed with ebsteins anomaly is it dangerous, and what can be done for it?

High variation: Ebstein's anomaly of the tricuspid valve is a highly variable congenital heart defect. In some, no surgery is required ever, and at the other extreme, infants may need surgery to repair the tricuspid valve. Surgical repair is difficult, if necessary, and should only be performed by a surgeon with experience and a history of success. Arrhythmias may complicate long-term outcomes. ...Read more

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What causes ebsteins anomaly?

What causes ebsteins anomaly?

Birth defect: This is a congenital heart malformation of the tricuspid valve which has no obvious cause. The valve leaks and requires surgical repair to treat or prevent heart failure. ...Read more

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I have ebsteins anomaly but church won't let me get surgery. How long do I live?

I have ebsteins anomaly but church won't let me get surgery. How long do I live?

Ebstein's anomaly: Ebstein's anomaly is a rare heart defect that's present at birth (congenital). In ebstein's anomaly, your tricuspid valve — the valve between the chambers on the right side of your heart — doesn't work properly. Blood leaks back through the valve, making your heart work less efficiently. Ebstein's anomaly may also lead to enlargement of the heart or heart failure.

If you have no signs or symptoms. ...Read more

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To all the cardiologists out there -can a woman with ebsteins anomaly have a baby?

To all the cardiologists out there -can a woman with ebsteins anomaly have a baby?

Ebstein's/pregnancy: Studies have shown that women who reach childbearing years and do not have abnormal heart rhythms or low oxygen levels (cyanosis) usually have good outcomes. Congenital abnormalities in the baby are a possibility. Usually need to be followed by a cardiologist who is trained in congenital abnormalities which I suspect you have. ...Read more

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I have Ebsteins anomaly. In the past 6 months I have had a decrease in stamina, become short of breath, &fatigue easily. Should I be considering surgery?

I have Ebsteins anomaly. In the past 6 months I have had a decrease in stamina, become short of breath, &fatigue easily. Should I be considering surgery?

Probably: Need more history but the development of these symptoms calls for some intervention now, and that may involve surgical repair. See your cardiologist soon to protect yourself. ...Read more

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Are there official recommendations for treating ebstein anomaly?

Are there official recommendations for treating ebstein anomaly?

Cardilogist: I am not a cardiologist, so I will like to see some input from a cardiologist regarding this. ...Read more

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How do complementary doctors treat ebstein anomaly?

How do complementary doctors treat ebstein anomaly?

Specialists Needed: Ebstein's anomaly is a serious congenital heart problem that requires surgical correction by a highly trained team headed by a pediatric cardiovascular surgeon and pediatric cardiologist. ...Read more

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My fetus has ebstein anomaly. Is this is consider as defect for life?

Yes.: Ebstein's anomaly can vary in severity. Very mild forms are most of the times inconsequential. Severe forms may cause illness in early infancy, and sometimes require surgical repair. I'm assuming your doctor referred you to a pediatric cardiologist for a fetal echo. Ask about the severity of the ebsteins and the associated tricuspid regurgitation (valve leakage). Good luck. ...Read more

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Are there different severities of ebstein's anomaly?

Are there different severities of ebstein's anomaly?

Yes: Ebstein's anomaly may be so mild that the child has no symptoms and never requires treatment. At the other end of the spectrum, it may be so severe that a child cannot survive. ...Read more

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Can an ebstein's anomaly fatal?

Yes: Severe ebstein's anomaly may cause fetal loss and may lead to death in the first months of life. Abnormal heart rhythms can coexist with this and complicate managment. Most forms of ebstein's anomaly are less severe and many are asymptomatic. ...Read more

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What are the tests for ebstein anomaly?

Echocardiography: Is the test of choice. Also get an ekg to assess for a commonly associated rhythm problem. ...Read more

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What sort of disorder is ebstein anomaly?

What sort of disorder is ebstein anomaly?

Congenital defect: Ebstein's anomaly is a rare heart defect that's present at birth (congenital). The tricuspid valve — the valve between the right atrium and right ventricle — is malformed and doesn't work properly. Blood leaks back through the valve, making the heart work less efficiently. Ebstein's may result in heart enlargement or heart failure. Rhythm problems are common. It can be mild or severe. ...Read more

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What are the symptoms of ebstein anomaly?

What are the symptoms of ebstein anomaly?

Cyanosis and CHF.: The most important symptoms in ebstein's anomaly are related to the tricuspid valve being positioned too low inside the right ventricle. Essentially, the right side of the heart may not work well causing poor oxygenation (cyanosis) and backing up of blood in the lung circulation (chf). There is wide variety of severity of the anomaly, from mild to severe. Patients may have heart beat problems. ...Read more

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Explain ebstein anomaly and what is done about it?

Explain ebstein anomaly and what is done about it?

Ebstein anomaly: It is a congenital heart condition where the valve between the right upper and lower heart chambers, triscuspid valve, does not work properly and the blood backs into the right atrium and over time the right atrium gets enlarged causing heart failure. Symptoms could be shortness of breath with routine regular activity, cyanosis, etc. Treatment is meds and/or surgery. There could be asso. Asd. ...Read more

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What is the definition or description of: Ebstein anomaly?

Tricuspid Valve: Ebstein anomaly is an abnormality in the tricuspid valve. The tricuspid valve separates the right atrium (the chamber that receives blood from the body) from the right ventricle (the chamber that pumps blood to the lungs). In Ebstein anomaly, two leaflets of the tricuspid valve are displaced downward into the pumping chamber. The third leaflet is elongated and may be tethered to the wall. ...Read more

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Is possible to not discover an ebstein's anomaly until someone is 15yo?

Yes: Sometimes there are no symptoms with this abnormality, if no symptoms, no reason to look at heart with echocardiogram - the best way to diagnose. ...Read more

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Is my child considered disabled if he has an ebstein's anomaly in his heart?

Is my child considered disabled if he has an ebstein's anomaly in his heart?

Depends: Ebstein anomaly is variable, changing the size of rt ht chambers & valve efficiency. If the change is minimal the effect on later function may be also. The more complex the defect the more likely to impair function. Disability is used to describe lack of certain functions at the expected age (walking, self help, seeing, hearing etc.).If the kid can't do kid level stuff, the disability lable applys. ...Read more

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My grandson has abad cough what do I need to do.?

My grandson has abad cough what do I need to do.?

More Info needed: Is your grandson an infant, child, teenager, or an adults. What other symptoms does he have? Is there a history of asthma? How is his breathing? If he is an infant and you feel nervous about it, consider taking him to an urgent care for immediate check by a physician. ...Read more

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No gross fetal anomaly seen means what?

No gross fetal anomaly seen means what?

Unremarkable scan.: This is typical verbage for an unremarkable prenatal ultrasound. That means that the examination did not identify major fetal anomalies such as gastroschisis, omphalocele, anencephaly, spina bifida, diaphragmatic hernia, major heart/kidney/lung/skeletal defects. Congratulations - however keep in mind that even in experienced centers the detection rate of anomalies may not surpass 60-80%. ...Read more

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Why do my grandson twitch on left side of body?

Why do my grandson twitch on left side of body?

See a physician.: These could be seizures (serious) or just myoclonic jerks which are harmless but this needs to be addressed right away. If the symptom is new, see dr. Asap! If the symptom has been there for many months and he seems fine, you still need to get him evaluated but it is not an emergency. If the jerks are new in just the last several days or getting worse, go to an emergency room. ...Read more

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Is ttp hereditary, I have 3 sons and 2 grandsons.

Is ttp hereditary, I have 3 sons and 2 grandsons.

Certain forms: Depends which type of thrombotic thrombocytopenic purpura you have. Some are hereditary. ...Read more

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How can I get treatment for my grandson'sschizophrenia?

How can I get treatment for my grandson'sschizophrenia?

Combo: Hello. I don't know his age. If he is a minor - that seeing a board certified child psychiatrist for medication and a doctoral level clinical psychologist who is specialized in children may be the best bet. If he is an adult - getting help with both appropriate psychotropic medications and therapy is also important. Take care. ...Read more

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My grandson has been constipated for a few days now, what can I do?

My grandson has been constipated for a few days now, what can I do?

Diet modification: For immediate relief you can try using a glycerine suppository, or give him miralax (polyethylene glycol). Over the long run he needs to have his diet modified by reducing the milk and milk products he eats, increase the fiber in his diet by giving him fruits and vegetable, high fiber cereals and replace white bread with whole wheat bread.
No apple or pear juice since they contain pectin and can be constipating. ...Read more

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My grandson lines all toys up he is 2years 5 months was late in saying first words?

My grandson lines all toys up he is 2years 5 months was late in saying first words?

Further evaluation: Sounds like your grandson could benefit from a full developmental evaluation. Many totally normal toddlers do the toy lining up thing, and many normal toddlers are a little late talking. Need to assess his social and peer interactions, eye contact, gross and fine motor skills, etc. Only then can you say that these are just normal variations or warning signs of something more concerning. ...Read more

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My 51/2 month grandsons soft spot closed early. What should we expect going forward?

My 51/2 month grandsons soft spot closed early. What should we expect going forward?

Not uncommon: The soft spot can be tiny or large or increase from birth for a few months before decreasing in size. The bones of the skull grow apart from each other using 17 different suture centers up to the age of 9 when the adult head size is reached. The timing of soft spot closure has no impact as long as the growth centers remain open to grow normally. ...Read more

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