Doctor insights on:
Fruity Chews Nf Medication
Could pba cause my crying I have NF type 1 I have lots of pain with this I take lots of medications but have had this uncontrollable crying ?
Neurology consult...: ....would be necessary. It is not in my vocabulary to say something can NEVER happen in this world of medicine but since NF1 is basically defined as a PERIPHERAL NERVE type of problem which definitely is painful and so forth...it would not be the most likely type of problem in my opinion to cause or be associated with PBA. I also searched the literature and couldn't find anything convincing. ...Read more
Inherited or new : Neurofibromatosis can be passed from parent to child as an autosomal dominant trait, meaning an affected parent can pass a single gene to their son/daughter and they get the disease. At least half of nf cases arise as a new gene mutation in a kid. ...Read moreSee 2 more doctor answers
NF 1, very briefly: Nf 1, from a gene mutation; on chromisome 17, has highly variable medical & neurodevelopmental manifestations. Nerve tumors form on/under skin, in brain & other areas of nervous system, & other parts of body. Genetics, psychology, development, tumor and vision specialists are some drs. Who help patients with nf. Learning disorders & adhd often occur. www.ctf.org has complete info & resources. ...Read moreSee 1 more doctor answer
Work with doc: A seizure disorder is worrisome & if related to a structural defect like in nf, it can be a progressive problem. You say you can't take meds ? You may not have been tolerant to those tried before but their are many that could help that you should try before giving up. Work with a neurologist & come up with a workable plan. ...Read moreSee 1 more doctor answer
What to do if I have nf type 1 I'm perfectly heathly and no disformities can I join the marines when I turn 18 I'm 16 years ol?
Neurofibromatosis: NF1 is a complex disease and has many manifestations and if you are healthy with no tumors and in particular any growing ones then you are doing well. as for joining the US Marines it is unlikely they will accept you with that diagnosis do to the long term possibilites. ...Read more
Yes: Research teams located the exact position of the NF1 gene on chromosome 17.Product of NF1 gene is a large and complex protein called neurofibromin,which is primarily active in nervous cells as a regulator of cell division.Intensive efforts have let to the identification of the NF2 gene on chromosome 22. NF2 gene product is a tumor-suppressor protein called merlin.Ongoing research to discover genes ...Read moreSee 1 more doctor answer
I have a child with nf, she's spontanous, not me or my hubby have it, so if I do a cvs can we know if second child has nf too?
Im male 28y weight 80kg im not getting nightfall from last 2 years previously iwas getting nf frequently.Is that normal?Isthat mean sexpower reducing?
Neurofibromatosis: Nf is a collection of genetic diseases that have no cure. When you have it, management requires observation & occasional studies to detect certain complicating issues before they can cause trouble. Surgical intervention may be required in some forms of the disease. Some forms never need any extra help. ...Read moreSee 4 more doctor answers
Sometimes: Physicians for care of nf1 vary according to severity of involvement. Most cases are mild and do not require attention more than usual patients. Severe involvement with brain tumors requires neurologist/neurosurgeon, bone problems such as pseudarthrosis , scoliosis, extremity enlargement orthopedic surgeon, learning disorders psychologist, tumors oncologist, and abdominal issues general surgeon. ...Read moreSee 1 more doctor answer
Neurofibromatosis: Neurofibromatosis or nf is an inherited disorder or one that occur spontaneously in a patient. It is a disorder that involves the nerves, structures that carry information from the brain to outlying parts of our bodies. In nf there are tumors, which in most cases are benign that arise from these nerves. The disease is extremely variable in how it affects a patient. ...Read moreSee 1 more doctor answer