Doctor insights on:
Fruity Chews Nf Medication
Could pba cause my crying I have NF type 1 I have lots of pain with this I take lots of medications but have had this uncontrollable crying?
Neurology consult...: ....would be necessary. It is not in my vocabulary to say something can NEVER happen in this world of medicine but since NF1 is basically defined as a PERIPHERAL NERVE type of problem which definitely is painful and so forth...it would not be the most likely type of problem in my opinion to cause or be associated with PBA. I also searched the literature and couldn't find anything convincing. ...Read more
NF 1, very briefly: Nf 1, from a gene mutation; on chromisome 17, has highly variable medical & neurodevelopmental manifestations. Nerve tumors form on/under skin, in brain & other areas of nervous system, & other parts of body. Genetics, psychology, development, tumor and vision specialists are some drs. Who help patients with nf. Learning disorders & adhd often occur. Www. Ctf. Org has complete info & resources. ...Read more
NF?: Please re ask and let us know what nf is and be specific about management. ...Read more
Work with doc: A seizure disorder is worrisome & if related to a structural defect like in nf, it can be a progressive problem. You say you can't take meds? You may not have been tolerant to those tried before but their are many that could help that you should try before giving up. Work with a neurologist & come up with a workable plan. ...Read more
What to do if I have nf type 1 I'm perfectly heathly and no disformities can I join the marines when I turn 18 I'm 16 years ol?
Neurofibromatosis: NF1 is a complex disease and has many manifestations and if you are healthy with no tumors and in particular any growing ones then you are doing well. As for joining the US Marines it is unlikely they will accept you with that diagnosis do to the long term possibilites. ...Read more
Yes: Research teams located the exact position of the NF1 gene on chromosome 17.Product of NF1 gene is a large and complex protein called neurofibromin, which is primarily active in nervous cells as a regulator of cell division. Intensive efforts have let to the identification of the NF2 gene on chromosome 22. NF2 gene product is a tumor-suppressor protein called merlin. Ongoing research to discover genes ...Read more
I have a child with nf, she's spontanous, not me or my hubby have it, so if I do a cvs can we know if second child has nf too?
I'd advise it: One of you may be a mosaic and have many germ cells affected. ...Read more
I'm male 28y weight 80kg im not getting nightfall from last 2 years previously iwas getting nf frequently. Is that normal? Isthat mean sexpower reducing?
Neurofibromatosis: Nf is a collection of genetic diseases that have no cure. When you have it, management requires observation & occasional studies to detect certain complicating issues before they can cause trouble. Surgical intervention may be required in some forms of the disease. Some forms never need any extra help. ...Read more
Sometimes: Physicians for care of nf1 vary according to severity of involvement. Most cases are mild and do not require attention more than usual patients. Severe involvement with brain tumors requires neurologist/neurosurgeon, bone problems such as pseudarthrosis, scoliosis, extremity enlargement orthopedic surgeon, learning disorders psychologist, tumors oncologist, and abdominal issues general surgeon. ...Read more
Neurofibromatosis: Neurofibromatosis or nf is an inherited disorder or one that occur spontaneously in a patient. It is a disorder that involves the nerves, structures that carry information from the brain to outlying parts of our bodies. In nf there are tumors, which in most cases are benign that arise from these nerves. The disease is extremely variable in how it affects a patient. ...Read more
No: There is no cure for neurofibromatosis and goal of treatment is to relieve symptoms. Painful cutaneous and subcutaneous tumors and those that occur on visible areas of the body may be removed surgically. Surgery also may be performed to remove schwannomas and nerve tissue tumors (neurofibromas) that cause pain, sensory loss, and loss of function. ...Read more
Rare but does occur: Neurofibromatosis type 1 (NF1) is a hereditary condition commonly associated with multiple café-au-lait spots on the skin. These are light brown in color, and in many instances continue to progress with the conversion to malignant melanoma. Many of the patients develop a number of neurofibromas (benign) They are often seen as raised bumps on the skin. Occassionally one can convert to sarcoma. ...Read more
You're fine: You're nineteen years old and should be treasuring this time in your life, rather than letting some quack "spiritual" or "health" advisor frighten you about your nocturnal emissions. They're normal, healthy, and a part of your life that you should be enjoying. Talk to a reasonable older guy -- maybe even Dad -- about your new body & the responsibilities and joys it brings. ...Read more
My son is 4 week old at what age can you tell if he would have neofibermentosis sorry if I spelled it wrong I was born with nf as well?
Varies: Nf can manifest rarely at birth with deformity of tibia, plexiform neurofibromas with skin discoloration, enlargement of head, and overgrowth or undergrowth of extremity. More commonly nf gradually appears with development of brown flat spots and soft nodules under the skin. The brown (café-au-lai) spots are the main symptom of neurofibromatosis. Freckling of armpits is another symptom. ...Read more
Have nf child, spontanous case, not my or hubby have it, if I do a maternit21 test insted of cvs or amnio...can we stll know if second child has nf too?
NO: Nf is a genetic disosrder that can predispose patient to tumors, mostly benign such as neurofibromas tumors of skin and other tissues. Plexiform neurofibromas are deeper tumors that affect nerves. These rarely become malignant. Other tumors can involve optic nerve (gliomas), acoustic nerves (neuromas), meningiomas, astrocytoma brain, intestinal tumors (carcinoids)and adrenal pheochromocytomas. ...Read more
NF 1, very briefly: Nf 1, from a mutation at chr. 17q11.2 has highly variable medical & neurodevelopmental manifestations. Nerve tumors form on/under skin, in brain & other areas of nervous system, & other parts of body. Genetics, neuro, psychology, development, tumor. Eye specialists & surgeons are some drs. Who help patients with nf. Learning disorders & adhd often occur. Www. Ctf. Org has complete info & resources. ...Read more
Mostly genetic: Neurofibromatosis is a mostly inherited problem or mutation with degrees involvement from mild to severe. NF t autosomal dominant pattern of inheritance. People are born with one mutated copy of the NF1 gene in each cell. In about half of cases, the altered gene is inherited from an affected parent. Remaining cases result from new mutations in the NF1 gene, ...Read more
Mom passed@40 HxPCOS, thyroid, CHF, CRF, NF. SHE smoked, I don't.My HxPCOS&I&D.want 2live longer than 40.approaching 30. suggestions??
Keys: Chances are that the cause of this very early death had to do with her renal disease. You need to kind out what it was. If diabetes, make fitness your lifestyle focus. If a hereditary nephritis, there are meds to slow it. Learn Mom's actual medical history. Chances are you can outlive her, as I have most of my relatives. ...Read more